Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

In Hindsigh, Maybe It Wasnt A Good Idea

KMMO320

Recommended Posts

KMMO320 Contributor
KMMO320
Posted

My dr appt with the GI isnt until Tuesday, but I have been playing around with eliminating foods and seeing what happens. I tend to react almost immediatley. I went 2 days without eating Gluten and felt really..fantastic. I wasnt dragging, I felt alert and awake and this is just after 2 days. I was still having some digestion issues but I have always had trouble with eggs. So today, I am thinking wow, I feel so good that I bet I had just been not feeling well..maybe I had a cold, maybe because my primary mentioned Celiac to me I was sort of being a hypochondriac and thought I had symptoms of it, maybe it was in my head and Im fine.

So at work ( I waitress) I had some toast...and felt fine. nothing happened. No headache, no body aches, no chill or low grade fever. So I was like ok..now I feel stupid, Im fine.

On the way home, I stop at the Donut shop to get my coffee..and a muffin. I said the heck with it..Im fine.

Im not fine :(

I just want to know what is causing this..is it really gluten? what can make me feel so horrible? Why cant I just be normal and eat what I want? Why is this happening out of NO WHERE????

The stomach thing has been going on for years..but the head stuff is relatively new.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

It takes most people years to develop enough damage that it shows up in different body systems.

Eggs could be a sign of your gall bladder/liver is very upset with you, because they are full of fat. Off of gluten, eating fat (like gluten free versions of muffins, doughnuts, etc) can be easier because the gall bladder and liver are working better.

squirmingitch Veteran
squirmingitch
Posted

It's not happening out of nowhere. You said yourself :

"The stomach thing has been going on for years"

You have now progressed to the next stage where it has done so much damage to the intestines & is now doing damage to other parts of your body. And even that has been in progress --- it's just deteriorated to the point that you FEEL it now.

KMMO320 Contributor
KMMO320
Posted
  • Author

It takes most people years to develop enough damage that it shows up in different body systems.

Eggs could be a sign of your gall bladder/liver is very upset with you, because they are full of fat. Off of gluten, eating fat (like gluten free versions of muffins, doughnuts, etc) can be easier because the gall bladder and liver are working better.

I actually dont have a gall bladder, it was removed 13 years ago.

KMMO320 Contributor
KMMO320
Posted
  • Author

It's not happening out of nowhere. You said yourself :

"The stomach thing has been going on for years"

You have now progressed to the next stage where it has done so much damage to the intestines & is now doing damage to other parts of your body. And even that has been in progress --- it's just deteriorated to the point that you FEEL it now.

I suppose you are right. I do want to thank everyone on the boards for dealing with my whining and ranting. This is very new to me. Though not the worst thing that can happen, and certainly not the end of the world, I always assumed food allergies and such were things that happened to OTHER people, and not me. lol.

So its all very surreal right now. I think its going to take a while to process.

Jestgar Rising Star
Jestgar
Posted

I suppose you are right. I do want to thank everyone on the boards for dealing with my whining and ranting. This is very new to me. Though not the worst thing that can happen, and certainly not the end of the world, I always assumed food allergies and such were things that happened to OTHER people, and not me. lol.

So its all very surreal right now. I think its going to take a while to process.

Whine is always better when shared with friends. ;)

squirmingitch Veteran
squirmingitch
Posted

I will echo what Jestgar says. Whine away. Sometimes we rant pretty good too!

I know it's shocking at first. All I could think of was all the foods I could never have again. My favorite foods. The comfort foods. But it's weird --- I don't think about those things at all now. In fact, the thought of them turns me off. I've read quite a few who have said that.

Hang in there. We're here for you. smile.gif

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KMMO320 Contributor
KMMO320
Posted
  • Author

I will echo what Jestgar says. Whine away. Sometimes we rant pretty good too!

I know it's shocking at first. All I could think of was all the foods I could never have again. My favorite foods. The comfort foods. But it's weird --- I don't think about those things at all now. In fact, the thought of them turns me off. I've read quite a few who have said that.

Hang in there. We're here for you. smile.gif

Chocolaye chip muffins from Dunkin Donuts are my all time most favorite things to eat. I am remembering back to a few days ago when I felt AMAZING (relatively) and thats how I want to feel all the time. So I guess I will do what I need to do. I just cant wait to see the dr and find out for sure.

I do know that even if she comes back and says she doesnt think its Celiac, I KNOW how I feel, I KNOW how much better I felt by not eating wheat and since there is no harm in NOT eating it, thats what I will do, regardless.

I definitely have a problem with eggs and too much dairy. Eggs do me in within minutes of eating, just goes right through me. I dont mean if eggs are an ingredient, but just straight eggs...its hell. And too much creamy milk/cream or liquidy type cheese is just awful too. I am ok with hard cheese and skim milk, but creamy stuff kills me.

I dont know if its related to the Celiac or not..I have been reading and saw how many people have trouble with it first while healing. I hope thats all it is and not a seperate allergy :(

squirmingitch Veteran
squirmingitch
Posted

It could very well be b/c of celiac. You may find you can get those foods back after you heal. And you may try them at say 6 mos. & not be able to tolerate them but try again @ 1 year & you will or 2 yrs. We all heal at different rates so it will be a trial & error thing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      22

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    2. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    3. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
    4. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Here is a link to the spreadsheet I kept to track my nutrition intakes. Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/...
    5. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Hello @catnapt, That's so true. Every person with Celiac Disease has different symptoms. There are over 200 that it mimics. Too many still believe that it is only a childhood disease you outgrow. Or it's psychosomatic or simply a fad. Idiots. It's easy to get angry at all of them. You just have to pick at the answers until you find...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.