Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Serious Help!


raea2002

Recommended Posts

raea2002 Apprentice

I was diagnosed with gluten intolerance in feb this year. I've been struggling staying on the diet. I have a serious addiction to good gooey gluten. I normally do well, but I keep falling lately. I feel like since I didn't get an official diagnosis of celiac that all the issues I have are in my head. I eat gluten and then I pay for it, and my family does too. I get really severe headaches and have no energy after I eat it. I wish I could just accept this in my head.

I guess I struggle with all of this because I'm such a picky eatter I'm a vegitarian so my meal/food options are limited and feel like I'm eatting the same thing repeatedly.

The rest of my family eats gluten so it's too easy to fall off. I try to buy things that I do not like for them so the temptation is not there.

I wish that there was a test that sys "yes" this is what you have. I feel mental. Sigh. Thanks for listening,


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

If eating gluten gives you a headache and makes you exhausted it may be affecting your brain and nervous system. The antibodies are mounting an attack against all your organs. I do hope you can find the willpower to keep yourself healthy and on the diet. It is hard but you don't want to end up with damage that can't be undone. GI is no less serious than celiac and both need to be strict with the diet. Can you try to keep some safe treats on hand for when you get tempted?

Takala Enthusiast

You will discover you will get more and more sensitive to gluten cross contamination and "accidents" over time.

THIS is your PROOF that it's not "all in your head."

Ask yourself what you would be doing if you were not sick all the time.

Consider changing your diet to reflect what you need, not what you think you need. Vegetarian is designed for grain eaters, and is frequently too high carbohydrate and too starchy for gluten intolerants, especially if they have blood sugar issues, shown by cravings, then crashing and burning after consumption of too many high carb grain products.

Find a gluten free calcium and magnesium supplement, and a gluten free B complex, to help with the cravings.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,487
    • Most Online (within 30 mins)
      7,748

    Karen Murphy
    Newest Member
    Karen Murphy
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.