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Posted 23 September 2012 - 11:12 AM

Hello! I am 48 (almost 49 yrs old) and was diagnosed 3 years ago and remained in denial and then partial denial that it would go away. Well, it did not go away and the reactions are very disturbing. If I get wheat my lungs shut down completely. I was recently diagnosed Hypothyroid. I almost died twice as an infant and had growth problems. So, I was undiagnosed or misdiagnosed for 46 years of my life. :(
I decided to make my son some pumpkin/chocolate chip bars to take back to college today. Working with the flour made the sharp pain in my head come back and the allergy triggers start. It is so hard to cook for yourself and keep your family on a regular diet. I do not feel like it is fair to them to change them to gluten free. My son plays college football and I do not want him sick by drastically changing his diet. (suspicious that he is wheat intolerant) so what do you all do??????
Thank you!!!!
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Posted 23 September 2012 - 12:11 PM


Being diagnosed w/ celiac when my most favorite thing to do was to bake beautiful, crusty, country loaves of bread wasn't fair either... but it is what it is.

If your son is at all wheat intolerant, it's not only fair to offer a gluten free diet but it might make him feel so much better.

I don't know what to tell you about your symptoms using gluten ingredients. If it makes you sick then you shouldn't do it. Teach the gluten eaters how to cook maybe?
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Living in the beautiful Ozark mountains in Arkansas
positive blood tests and later, positive biopsy
diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day
Dairy free since July 2010 and NOT happy about it!!




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Posted 23 September 2012 - 01:56 PM

I made my family go gluten-free. It was too much worry for me to keep bread and flour in the house. Plus i believe that the wheat we consume today is not good for them anyways.

There are a lot of gluten-free baking books and recipes out there that make really nice products. Even my pickiest eaters (elementary aged boys) are slowly coming around. My husband is also picky, but we do more corn, potatoes, and rice; and I always make leftovers so he can have warm lunches... he has barely noticed the difference... or he is being a good husband and not complaining. :) LOL

Good luck!
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"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012


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Posted 23 September 2012 - 06:39 PM

"Well, it did not go away and the reactions are very disturbing. If I get wheat my lungs shut down completely."

Bad news:
I don't think you really have a choice. If you are having reactions like that, you could die! It can't be worth it.

Good news:
You can still bake yummy cookies for your son. There are many gluten free recipes on the internet. You don't even have to tell them they are gluten free.

I have mild reactions to airborne grains. I can tell you if and when it is in the room, but please don't try me. My family started off 5 months back totally unwilling, but they are starting to come around as they see what it does for us when I eat gluten free.

I hope all of the same for you-and safety. I am sure you can find food all parties will enjoy.

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Posted 23 September 2012 - 07:37 PM

Welcome - it is really hard when it comes to family. But one of the factors in developing coeliac disease is genetic predispostion + a gluten filled diet. If your son has only a wheat intolerance now, by limiting his wheat intake you could actually prevent him from getting full blown coeliac disease. I'm speaking from personal experience - my mum looked after my wheat intolerance so well, baked everything from scratch long before gluten-free foods were available. But as soon as I was left to my own devices, I took the easy, wheat filled road. Now I have coeliac with a beautiful DH rash in everyplace you could imagine. And so now I'm also in the process of having to think about my own children...

It may be more fair to limit his gluten than to cook it for him. It is hard at first...but when you need help, come here. Lots of us to support. Plenty of recipes available on the net. Best wishes to all of you
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Posted 23 September 2012 - 07:44 PM

Would son rather have a healthy, living mom, or wheat filled goodies? I am guessing the former. And football or not, if he is celiac too, (which is likely) he needs to stop eating it. Unless you wish to explain to him down the road as to why his football career meant more than intestinal cancer.

Once you commit, and get over the hump, it isn't really a hardship except when eating out. Then its a pain. But at home, our whole house is gluten-free so the kids and I can be safe. And we eat very well. I make lovely muffins and cakes and cookies and breads that no one would know are gluten free. It takes more time, and there is a learning curve, but life is so much better now. Give yourself the chance to experience that.
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Posted 24 September 2012 - 09:40 AM

Hi Jasmine
Welcome to the forum! Hope we can all be of help.

From the sounds of it, you should definitely not be handling wheat flour, or preparing any gluteny foods for other people.
If your son or other family members want something you can't eat, ask them to make it themselves (which is a great chance to teach your son to cook and bake!) If they're baking in the house, it's probably better if you aren't in the kitchen at the time, and make sure everything is cleaned properly, they use different pans, etc.
Co-existing with gluten-eaters is possible, but you have to be careful: you need a separate toaster, cutting boards, pans... anything that gluten could be stuck to, you shouldn't be using.
So, if they don't want to cook for themselves, then they'll just have to eat gluten-free. (And your son should definitely get tested if he hasn't already).
Also, you can probably alter your baking recipes to be gluten-free as well, and just as tasty.

Good luck!
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~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.

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