Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I Have Not Posted Before
0

7 posts in this topic

Hello! I am 48 (almost 49 yrs old) and was diagnosed 3 years ago and remained in denial and then partial denial that it would go away. Well, it did not go away and the reactions are very disturbing. If I get wheat my lungs shut down completely. I was recently diagnosed Hypothyroid. I almost died twice as an infant and had growth problems. So, I was undiagnosed or misdiagnosed for 46 years of my life. :(

I decided to make my son some pumpkin/chocolate chip bars to take back to college today. Working with the flour made the sharp pain in my head come back and the allergy triggers start. It is so hard to cook for yourself and keep your family on a regular diet. I do not feel like it is fair to them to change them to gluten free. My son plays college football and I do not want him sick by drastically changing his diet. (suspicious that he is wheat intolerant) so what do you all do??????

Thank you!!!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome!

Being diagnosed w/ celiac when my most favorite thing to do was to bake beautiful, crusty, country loaves of bread wasn't fair either... but it is what it is.

If your son is at all wheat intolerant, it's not only fair to offer a gluten free diet but it might make him feel so much better.

I don't know what to tell you about your symptoms using gluten ingredients. If it makes you sick then you shouldn't do it. Teach the gluten eaters how to cook maybe?

0

Share this post


Link to post
Share on other sites

I made my family go gluten-free. It was too much worry for me to keep bread and flour in the house. Plus i believe that the wheat we consume today is not good for them anyways.

There are a lot of gluten-free baking books and recipes out there that make really nice products. Even my pickiest eaters (elementary aged boys) are slowly coming around. My husband is also picky, but we do more corn, potatoes, and rice; and I always make leftovers so he can have warm lunches... he has barely noticed the difference... or he is being a good husband and not complaining. :) LOL

Good luck!

0

Share this post


Link to post
Share on other sites

"Well, it did not go away and the reactions are very disturbing. If I get wheat my lungs shut down completely."

Bad news:

I don't think you really have a choice. If you are having reactions like that, you could die! It can't be worth it.

Good news:

You can still bake yummy cookies for your son. There are many gluten free recipes on the internet. You don't even have to tell them they are gluten free.

I have mild reactions to airborne grains. I can tell you if and when it is in the room, but please don't try me. My family started off 5 months back totally unwilling, but they are starting to come around as they see what it does for us when I eat gluten free.

I hope all of the same for you-and safety. I am sure you can find food all parties will enjoy.

Diana

0

Share this post


Link to post
Share on other sites

Welcome - it is really hard when it comes to family. But one of the factors in developing coeliac disease is genetic predispostion + a gluten filled diet. If your son has only a wheat intolerance now, by limiting his wheat intake you could actually prevent him from getting full blown coeliac disease. I'm speaking from personal experience - my mum looked after my wheat intolerance so well, baked everything from scratch long before gluten-free foods were available. But as soon as I was left to my own devices, I took the easy, wheat filled road. Now I have coeliac with a beautiful DH rash in everyplace you could imagine. And so now I'm also in the process of having to think about my own children...

It may be more fair to limit his gluten than to cook it for him. It is hard at first...but when you need help, come here. Lots of us to support. Plenty of recipes available on the net. Best wishes to all of you

0

Share this post


Link to post
Share on other sites




Would son rather have a healthy, living mom, or wheat filled goodies? I am guessing the former. And football or not, if he is celiac too, (which is likely) he needs to stop eating it. Unless you wish to explain to him down the road as to why his football career meant more than intestinal cancer.

Once you commit, and get over the hump, it isn't really a hardship except when eating out. Then its a pain. But at home, our whole house is gluten-free so the kids and I can be safe. And we eat very well. I make lovely muffins and cakes and cookies and breads that no one would know are gluten free. It takes more time, and there is a learning curve, but life is so much better now. Give yourself the chance to experience that.

0

Share this post


Link to post
Share on other sites

Hi Jasmine

Welcome to the forum! Hope we can all be of help.

From the sounds of it, you should definitely not be handling wheat flour, or preparing any gluteny foods for other people.

If your son or other family members want something you can't eat, ask them to make it themselves (which is a great chance to teach your son to cook and bake!) If they're baking in the house, it's probably better if you aren't in the kitchen at the time, and make sure everything is cleaned properly, they use different pans, etc.

Co-existing with gluten-eaters is possible, but you have to be careful: you need a separate toaster, cutting boards, pans... anything that gluten could be stuck to, you shouldn't be using.

So, if they don't want to cook for themselves, then they'll just have to eat gluten-free. (And your son should definitely get tested if he hasn't already).

Also, you can probably alter your baking recipes to be gluten-free as well, and just as tasty.

Good luck!

Peg

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,311
  • Topics

  • Posts

    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,121
    • Most Online
      1,763

    Newest Member
    Sambud
    Joined