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Been Called In By Doc Re Bloods

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Posted 12 October 2012 - 04:09 AM

Psawyer and Celiac Mindwarp

Many thanks! I think I have been very fortunate with my doctor and am grateful for it. The same goes for this forum! :P

At the moment, of course, I'm still on the gluten (as per doc's instructions) until the endoscopy results. I will be very interested to discover what difference will be made once it's removed. Either way, I guess I'll likely feel healthier!


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Celiac Mindwarp

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Posted 12 October 2012 - 08:24 AM

Did you get a blood test for vitamin levels too? Worth an ask. Mine were all within range, but at the low end for B and D.

Once you are through the endoscopy it might be worth looking at supplements. I am on a multivitamin and sublingual b12, and my energy is rising for the first time in months.

I am looking to add more but have exhausted the gluten-free options in my little town!

Off to the big city soon...
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image



    A little farting never hurt anybody... :-).

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Posted 12 October 2012 - 08:38 AM

Hi Nicky,

The celiac antibody tests are pretty reliable when they show a positive, but some of them are not so reliable when they show a negative result. So even if you get a negative blood test, it is good to try the gluten-free diet and see if it helps your situation. Some links below that may fill up your reading hours for a bit.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.

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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul



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Posted 14 October 2012 - 02:51 AM

Many thanks indeed. Think I can prob manage most of that but I do like a glass of wine!

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Posted 15 October 2012 - 07:32 AM

Many thanks indeed. Think I can prob manage most of that but I do like a glass of wine!


Nicky....the last 3 things to avoid on that list are not mandatory. Everyone is different and you have to go by how you are feeling. I needed to gain weight badly at time of diagnosis so I did eat sugar and starches and amazingly enough, as long they where gluten free, I did not have a problem. You will never know until you try things yourself. The emphasis should really be on not overdoing any one thing. Drinking an occasional glass of wine, having a gluten-free brownie or ingesting dairy does not mean you will not heal. I don't know where the idea came from to avoid all these things for awhile but it's not necessary for all.

I was pretty damn sick and down to 97 pounds at time of diagnosis so I hope that gives you a point of reference when making a decision of what to eat.
You may discover other intolerance's along the way so feeling bad after eating something isn't always about gluten. If something bothers you at first, avoid it until a later date and try again.
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