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What Do You Do After Glutening?
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10 posts in this topic

I was glutened a week ago today. I feel so much better now, but it has been a difficult week with pain, D, C, D again, muscle weakness and pain, headache (haven't had one since gluten-free). What is your secret to healing as quickly as possible? Probiotics? Other supplements? Foods?

I started taking VitaCost 20Bil probiotics and I noticed some faster healing, but that could be coincidental with the timing of natural healing...just not sure at this point. I take double the dose right now and will cut to normal dose on Tuesday. That'll be one week of double dosing to help heal the damage this past week caused. SHould I be taking other steps?

Looking for your best secrets to managing times when getting glutened to make future events hopefully less painful. Thanks everyone!

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I've heard L-glutamine can help with the healing. Luckily I haven't been glutened recently so I haven't personally tried it out.

I'm glad you are feeling better. :)

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I havent tried any supplements to help healing but my go-to has been some rice to bind things up in there (I tend to get D when I get glutened), home made chicken broth (which I keep frozen until I need it), and a good old heating pad that seems to relieve some of the cramping and abdominal pain during the initial stages. Don't know if this will be a help to you, but I figured I'd share!!

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Homeopathic medicine. Maybe it's just the placebo effect, though at least it tames my symptoms (they are not baaad, per se, just bloating and uncomfortableness, though for someone who spent nine years with constant stomach cramps and vomiting, anything can be pretty unsettling).

Also, I tend to juice fast for eight hours or so and it usually works well.

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Thanks everyone! Your ideas will come in handy for next time.

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Usually, I just go to bed. Whether it's a nap, or down for the night. I usually at least feel functional after wards. I am only a month of being gluten free. Before, when I was trying to be gluten-free but would slip, I would feel sick but nothing major. Now that I am a month free, it hits me a little harder than I expect it to. I ate 2 bites of my daughters donut 2 weeks ago and I was so sick, sicker than I had ever been and it took me a few days to really come out of it. Then, yesterday, I accidentally licked my fingers after cutting the kids a slice of cake. I didnt even think about it, it just happened and after ward I though, oh no! But then I thought, ehhh a lick isn't going to hurt me. But within an hour, I was very sick, headache, nauseous, foggy head, etc.

I am sure pretty soon just sleeping it off won't help. I am learning as I go. But that is what I do for now. Tylonal and sleep.

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Wow KMMO320, that's some rough punishment you've endured lately. I will give the some ibuprofen or something a shot, but my pain lasted 3-4 days so I kinda fear doing it to myself. That cake incident had to be pretty scary when you caught yourself.

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My daughter discovered charcoal tabs (gluten-free) helped her greatly after she discovered a wait staff had brought a dish with gluten by mistake. She said she will keep them on hand forever now.

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Pepto Bismol and lots of water, plus aspirin. Avoid sugary things as they can make the bloating worse.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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