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Losing Weight And Frustrated


Macmuireadhaigh

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Macmuireadhaigh Enthusiast

So, since I've lost a good eight pounds from obvious steatorrhoea, which has been confirmed, aside from taking Creon, what kind of things should I do to help myself gain/keep weight? Less sugar consumption? Less fat intake? I have started eating more, and increasing my caloric intake to between 2500-3000 calories a day. I already have a fast metabolism, and I started out slim to start with. Originally I weighed 140, now I only weigh 132. I'm trying my best to keep this weight and gain more, but it's getting frustrating because I don't know even with the caloric increase if I'm actually gaining anything. Is there something you guys did to help this? Thanks.


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GottaSki Mentor

Are you newly gluten-free? If so, it can take time for your body to heal and begin to absorb nutrients properly. Once this happens weight/metabolism issues tend to equalize - those that lost weight gain and those that gained weight lose - for now keep up the caloric intake and increase good fats from fish, nuts, avocado, coconut, olive oils, etc.

dilettantesteph Collaborator

My son and I both lose weight every time we have problems with one or more of our foods bothering us. We have to do diet challenge/elimination studies to figure out what it is. We both get pretty obvious symptoms so that helps figure it out. Then we consume like crazy to get the weight back up again. Whole milk and whole milk yogurt helps a lot. I've just been through that and regained the 5 lbs that I had lost. My son could still use another 10 or so.

Do you just need to heal more to get rid of the steatorrhoea, or do you need to make dietary changes?

akate Newbie

Like GottaSki said, it could be because you're new to the diet (if you're new to it). I've been gluten free for almost two years now and have only started putting weight back on, except for some silly reason, its going all to my stomach :angry:

It'll definitely take some time, especially if you have a fast metabolism. I have one too, which could be why I took so long to put the weight on.

GFinDC Veteran

Eat plenty of meats, eggs, avocadoes, fish, and nuts. I don't suggest sugar and carbs because they can cause other problems.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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