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No Urge For A Bowel Movement?

adambryant

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adambryant Explorer
adambryant
Posted

Sorry, I've posted like 4 different threads now, just getting things off my chest what I was wondering! Does anyone get symtoms, by not having the urge to pass bowels? Its like you never need to go.. Sorry for the topic but yeah haha!

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Persei V. Enthusiast
Persei V.
Posted

I have those too... I honestly don't know either I actually just don't need to go to the bathroom or I can't go. Either way, I force myself to go at a regular time everyday. When I went grain free (last week) soon everything was very regular, by the seventh day. Then I had rice for lunch again, and then... Well...

It's going to be a long week.

shadowicewolf Proficient
shadowicewolf
Posted

Ditto. I still have small issues dealing with "C". I too make myself go at a certain time every day.

adambryant Explorer
adambryant
Posted
  • Author

Since I've been gluten free (5 days) I've had a bit more regular movements but don't fully need the urge to go. Did it keep happening when you ate rice?

adambryant Explorer
adambryant
Posted
  • Author

Hmmmmm, do you think its normal for this to happen? How long have you been gluten-free? Could still be a healing process?

shadowicewolf Proficient
shadowicewolf
Posted

i've been gluten free for over a year (will be two in april). My issue stems from the fact that A: i have no appitite thus i don't eat alot, i still eat enough to keep my GERD under control. B when i do eat, i kinda sorta go for easy things (pb and honey on tortillas over something else). I need to eat more fiber i have no doubt.

I've been working on it, no doubt about it. But still, i tend to stick to foods i KNOW won't make me sick, thus its an endless cycle.

adambryant Explorer
adambryant
Posted
  • Author

Ahh I see, not to sure a bit strange. I've had similar symtoms, espeiclly no appetite, but I eat as it will never solve any problems.. I also got bad bloating and C but this seems to be decreasing and I've only been on gluten-free for around 6 days. Also I've not been tested positively, I'm just on a celiac diet as I think its the problem.

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AmyVC Rookie
AmyVC
Posted

Constipation is my issue! My sister has Celiac and she always had diarrhea so that is why I thought I didn't have it. By I do. I thought once I was diagnosed and eliminated gluten, I would get "regular". But it has been almost 6 weeks and I am still not. I need to take iron but am afraid that will make it worse. I am taking probiotics and trying to be patient. Uggg

burdee Enthusiast
burdee
Posted

I struggled with constipation for years (like maybe 50). During my 20s I took daily laxatives so that I could 'go' each day. Later I discovered magnesium oxide, but that aways caused lots of bloating and gas. During the next 25 years I followed all the 'regularity rules' (fiber, liquids, exercise, etc., etc.), but still struggled with constipation. I THOUGHT getting dx'd with celiac disease and abstaining from gluten would resolve constipation. I noticed slight improvement after abstaining from gluten. After being dx'd with 6 more delayed reaction food allergies and abstaining from each of those, I noticed slight improvement. Then I was dx'd with and treated for 8 different gut bugs (5 bacteria, 2 parasites and candida) over a 4 year period. Resolving those helped a little, but I never experienced normal regularity (soft stools) UNTIL I was diagnosed with Hashimoto's thyroiditis (hypothyroidism) which decreased my metabolism and really slowed my gut motility. After a year or so of experimenting with thyroid supplements and doses I FINALLY have normal regularity every day no matter what I eat, no matter how much liquid I drink or what kind of vitamin/mineral supplements I take. All those years I had hypothyroid symptoms (low blood pressure, low pulse, feeling cold all the time, ever increasing TSH, as well as constipation), but all my docs never considered hypothyroid, maybe because I was thin (due to long undiagnosed celiac disease), rather than overweight because of lower metabolism.

If you stuggle with constipation, despite following all the 'regularity rules' and abstaining from all your diagnosed allergens, ask your doc for a thyroid hormone panel, including free T3, free T4, TPOab (thyroid peroxidase antibodies) and TSH (which is not as important as the previous 3 tests, despite most docs' reliance on the TSH for dx'ing hypothyroid).

AmyVC Rookie
AmyVC
Posted

Wow. Thanks for all that info, Burdee. I have very low bp. In fact, when I have it taken they often ask if I am ok or if I feel faint. One time a nurse ran and got me a cookie (before I was diagnosed...so of course I ate it). And, I am always cold. My list of things to talk to my dr about is getting longer...as I get more informed...from all of you!

Persei V. Enthusiast
Persei V.
Posted

Well, I think burdee is right in his advice to look for other possibilities. Constipation is a sign something is still wrong (I would know, damn you rice) so maybe the OP should look it up for what might have been causing this. Either thyroid, or another food intolerance, whatever.

adambryant Explorer
adambryant
Posted
  • Author

These past few days its been a lot better after being a week on gluten free, I didn't ever have bowel movements, 1 a week if that! Now I've been every day since the diet. Touch wood lol!!

nvsmom Community Regular
nvsmom
Posted

Glad things are... moving. LOL

I'm in the same boat as Burdee. I had "C" and rarely had the urge to go. I was disappointed when that didn't improve with the gluten-free diet. Then I found out I was hypothyroid and after a few weeks on the meds, things got moving (but still cold,tired with the low BP and pulse... hmph). It could be coincidence but I'm guessing my "C" was mostly the Hashimotos.

adambryant Explorer
adambryant
Posted
  • Author

Haha thanks! And yeah things seem better ill see how they go!

burdee Enthusiast
burdee
Posted

Glad things are... moving. LOL

I'm in the same boat as Burdee. I had "C" and rarely had the urge to go. I was disappointed when that didn't improve with the gluten-free diet. Then I found out I was hypothyroid and after a few weeks on the meds, things got moving (but still cold,tired with the low BP and pulse... hmph). It could be coincidence but I'm guessing my "C" was mostly the Hashimotos.

Nicole: How are you doing now? If your thyroid supplement didn't resolve all your hypo symptoms (including 'cold, tired and low pulse'), you may not have a large enough dose or maybe you need a different brand or even different kind of thyroid supplement (i.e., combination t4/t3 or even t3 only, rather than t4 only). Most docs start with a t4 supplement like Synthroid or Levoxyl and just assume that your body easily converts t4 to t3. Some people don't (I'm one) and need more t3 or only t3 to resolve their symptoms. I spent a year trying different doses of t4 and t3 before I realized that I did better on t3 only. Few traditional docs consider t3 only, but many people do better on just t3. (See "Recovering with T3" by Paul Robinson.)

adambryant Explorer
adambryant
Posted
  • Author

Do routine blood tests implicate if thyroid is high or low?

burdee Enthusiast
burdee
Posted

Depends on what your doctor considers 'routine'. Specifically ask your doc for a thyroid panel including free t4, free t3, TPOab (thyroid peroxidase antibodies which indicate Hashimoto's which is highly correlated with gluten intolerance) and TSH. Most docs will only test TSH, which is not even a thyroid hormone, but a pituitary hormone which can indirectly suggest thyroid problems. However the other 3 tests are more useful in detecting specific thyroid problems and specific supplementary treatments.

nvsmom Community Regular
nvsmom
Posted

.... What Burdee said. :)

TSH is the thyroid stimulating hormone. It's numbers go up as your thyroid function goes down. The problem is that the numbers in the normal range often include those with symptoms of problems so doctors ignore the symptoms and go with the lab numbers. Plus people can have a pituitary that's not working great and a poor functioning adrenal can affect that test too.

TSH lab are somewhere between 0.2-6.0; most are closer to 0.5-3.5 in range. When I was feeling hypo (underactive thyroid) my TSH has ranged from a mid 2 to 6 to in the teens. My doctors ignored it when it was below a 7 even though I had many symptoms. :rolleyes:

Nicole: How are you doing now? If your thyroid supplement didn't resolve all your hypo symptoms (including 'cold, tired and low pulse'), you may not have a large enough dose or maybe you need a different brand or even different kind of thyroid supplement (i.e., combination t4/t3 or even t3 only, rather than t4 only). Most docs start with a t4 supplement like Synthroid or Levoxyl and just assume that your body easily converts t4 to t3. Some people don't (I'm one) and need more t3 or only t3 to resolve their symptoms. I spent a year trying different doses of t4 and t3 before I realized that I did better on t3 only. Few traditional docs consider t3 only, but many people do better on just t3. (See "Recovering with T3" by Paul Robinson.)

Thanks Burdee. I'm only 3 months into treatment and not near a good dose (synthroid) yet. I'll get there... eventually...and hopefully sooner than a year! Yikes! That must have been "fun".

adambryant Explorer
adambryant
Posted
  • Author

Ahhh ok cheers. I think its just celiac to be honest(fingers crossed :D) as things are improving!

mushroom Proficient
mushroom
Posted

Ahhh ok cheers. I think its just celiac to be honest(fingers crossed :D) as things are improving!

The one thing celiac will teach you is patience... just wait a while and see what happens..... :D

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    • trents
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      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
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