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Thanksgiving And Family...


Trudyjerry

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GFinDC Veteran

Hi BC,

Hashimoto's is associated with celiac disease. They are both autoimmune condtions. The odds of having another autoimmune condition are higher for people with celiac disease too. There are several people with Hashimoto's Thyroiditis on the forum.


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Cara in Boston Enthusiast

My son and I are the only two gluten free in the entire extended family (although many others probably should be . . . ) and he is so sensitive that he cannot eat anything prepared in someone else's kitchen - even if no gluten ingredients are used. I usually cook a gluten free "Thanksgiving" earlier in the week to have at home with my immediate family and we save leftovers to bring as our meal to the "real" Thanksgiving. I try to make similar foods so at least at the table, it looks like we are eating what everyone else is having. (but we would both probably prefer lasagna or something)

I found that bringing a side dish to share doesn't always work out because unless we get to it first, it almost always gets contaminated somehow (there are about 40 people there, so someone always switches a serving spoon or something . . .)

We each have one of these:

Open Original Shared Link

and it is AWESOME. It is pretty compact, so whipping it out to plate our dinner is usually quick and inconspicuous. We've even used them at formal weddings and other functions. They keep food hot for HOURS. Even when we get home (7-8 hours later) the leftovers are still warm.) They hold plenty of food. Sometimes I just open one and can fill both our dinner plates.

No one should feel weird bringing their own food. Expecting the host to be able to safely prepare food for you (in my opinion) is rude. You are doing what you need to do to stay healthy and you are not creating any extra work or stress for anyone else.

I also always bring one or two desserts to share. That way there is something on the dessert table for my 7 year old to choose and he doesn't feel like he is missing out on anything.

To be honest - it has been GREAT bringing our own meal. Everything is made the way we like it!

Cara

ButterflyChaser Enthusiast

I felt very reassured reading all this, and I think Cara expressed my feelings well in saying that expecting others to cook in compliance with your restrictions is rude.

I just called my friends and told them, and they said it wasn't a problem, and that they had had some family members who had had to "bring their own," even if that person wouldn't be there this year. So now I only have to device some mini and portable Thanksgiving menu that can survive some travelling...

Trudyjerry Rookie

I would never invite anybody into my home, knowing that they have dietary restrictions without being willing to make some concessions. Personally, I think that it's rude to invite someone under such circumstances and thinking that they would not bring something safe to eat and be willing to make themselves sick.

kareng Grand Master

I would never invite anybody into my home, knowing that they have dietary restrictions without being willing to make some concessions.

that works well for someone who can't have dairy. You can make baked potatoes instead of Au Gratin. They can have the asparagus but not the broccoli with cheese. For Celiacs who need to be sure there isn't a crumb of gluten, it unrealistic to expect them to buy new muffin tins, colanders, cutting boards, mayo, etc.

My SIL is coming over. she is extremely allergic to cats. Gracie will be in the basement and my SIL said she would be fine using a wooden or leather chair ( cat hair not sticking to it). that is a reasonable accommodation. if she expected that I get rid of the cat and get new furniture, that would be a bit much.

  • 4 weeks later...
Hala Apprentice

Thank you! I feel a bit better now. Though I have improved, I still struggle not having to justify why I eat the way I do. It is a very charged topic for me, because at the onset of my autoimmune disease no one - friends, doctors - believed I was sick and they just insisted I had an ED, and I "ate like a rabbit" - because eating leafy greens and simple food is part of the cultural heritage of the poor, rural area I come from. :(

Even if I am overweight now, and having always been known as a connoisseur and a great cook, I still feel like I have to justify myself, probably because such misconception was, in my case, almost lethal, because they let me get to a BMI of 13 before someone did blood tests.

I think I need to stop apologizing because I have auto-antibodies...

Hi, sorry to drag up an old post, but I was wondering how long it took until you started to gain weight?

My weight dropped really dramatically before I was diagnosed with coeliac disease. I've been gluten-free for around a month now and I'm still not gaining much weight! I have a BMI of 13 too and I'm scared :(

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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