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Thanksgiving And Family...


Trudyjerry

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GFinDC Veteran

Hi BC,

Hashimoto's is associated with celiac disease. They are both autoimmune condtions. The odds of having another autoimmune condition are higher for people with celiac disease too. There are several people with Hashimoto's Thyroiditis on the forum.


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Cara in Boston Enthusiast

My son and I are the only two gluten free in the entire extended family (although many others probably should be . . . ) and he is so sensitive that he cannot eat anything prepared in someone else's kitchen - even if no gluten ingredients are used. I usually cook a gluten free "Thanksgiving" earlier in the week to have at home with my immediate family and we save leftovers to bring as our meal to the "real" Thanksgiving. I try to make similar foods so at least at the table, it looks like we are eating what everyone else is having. (but we would both probably prefer lasagna or something)

I found that bringing a side dish to share doesn't always work out because unless we get to it first, it almost always gets contaminated somehow (there are about 40 people there, so someone always switches a serving spoon or something . . .)

We each have one of these:

Open Original Shared Link

and it is AWESOME. It is pretty compact, so whipping it out to plate our dinner is usually quick and inconspicuous. We've even used them at formal weddings and other functions. They keep food hot for HOURS. Even when we get home (7-8 hours later) the leftovers are still warm.) They hold plenty of food. Sometimes I just open one and can fill both our dinner plates.

No one should feel weird bringing their own food. Expecting the host to be able to safely prepare food for you (in my opinion) is rude. You are doing what you need to do to stay healthy and you are not creating any extra work or stress for anyone else.

I also always bring one or two desserts to share. That way there is something on the dessert table for my 7 year old to choose and he doesn't feel like he is missing out on anything.

To be honest - it has been GREAT bringing our own meal. Everything is made the way we like it!

Cara

ButterflyChaser Enthusiast

I felt very reassured reading all this, and I think Cara expressed my feelings well in saying that expecting others to cook in compliance with your restrictions is rude.

I just called my friends and told them, and they said it wasn't a problem, and that they had had some family members who had had to "bring their own," even if that person wouldn't be there this year. So now I only have to device some mini and portable Thanksgiving menu that can survive some travelling...

Trudyjerry Rookie

I would never invite anybody into my home, knowing that they have dietary restrictions without being willing to make some concessions. Personally, I think that it's rude to invite someone under such circumstances and thinking that they would not bring something safe to eat and be willing to make themselves sick.

kareng Grand Master

I would never invite anybody into my home, knowing that they have dietary restrictions without being willing to make some concessions.

that works well for someone who can't have dairy. You can make baked potatoes instead of Au Gratin. They can have the asparagus but not the broccoli with cheese. For Celiacs who need to be sure there isn't a crumb of gluten, it unrealistic to expect them to buy new muffin tins, colanders, cutting boards, mayo, etc.

My SIL is coming over. she is extremely allergic to cats. Gracie will be in the basement and my SIL said she would be fine using a wooden or leather chair ( cat hair not sticking to it). that is a reasonable accommodation. if she expected that I get rid of the cat and get new furniture, that would be a bit much.

  • 4 weeks later...
Hala Apprentice

Thank you! I feel a bit better now. Though I have improved, I still struggle not having to justify why I eat the way I do. It is a very charged topic for me, because at the onset of my autoimmune disease no one - friends, doctors - believed I was sick and they just insisted I had an ED, and I "ate like a rabbit" - because eating leafy greens and simple food is part of the cultural heritage of the poor, rural area I come from. :(

Even if I am overweight now, and having always been known as a connoisseur and a great cook, I still feel like I have to justify myself, probably because such misconception was, in my case, almost lethal, because they let me get to a BMI of 13 before someone did blood tests.

I think I need to stop apologizing because I have auto-antibodies...

Hi, sorry to drag up an old post, but I was wondering how long it took until you started to gain weight?

My weight dropped really dramatically before I was diagnosed with coeliac disease. I've been gluten-free for around a month now and I'm still not gaining much weight! I have a BMI of 13 too and I'm scared :(

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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