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Gas, Flatulence, And Healing My Annoying Insides
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I have serious gas issues. As soon as I get rid of it, it builds up again! I make jokes of it since I am in college and have nice roommates. However, the flatulence is stinky, loud, and painful. The bloating is bad and it is relieved when the gas comes out. Coffee enemas help a lot, but I'm really tired of doing those.

I've been gluten free for a year and also have cut out dairy, soy, eggs, and corn. I have to eat really naturally and am very strict. I really try to limit anything questionable, and eat almost nothing refined.

I get glutened every few days from my roommates using flour, or accidentally when I eat food at someone's house (Thanksgiving ham gravy = gluten). It gets better in a few days and then I get glutened again. I know from a colonoscopy from before that I had little or no microvilli in my intestines. They were flat and probably covered in mucous.

What can I do? When will the gas and pain go away? What do the rest of you do to get rid of gas? When will healing finally come?

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Imo, you need to get out of the gluteny enviorment if you are getting cc'd every few days. I'm wiling to bet once you stop getting cc'd then it'll stop.

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i really dont know, its a great question i am hoping more experienced people will answer. I was just diagnosed 3 months ago and while i understand it hasnt been that long i find myself furstrated and that im not 100% better by now. I thought when i found out it was great just change my diet around and all better, no meds, surgeries, whatever..., and i did get a little better but now it seems to have stalled. i just want to know if that normal or if im doing something wrong. this whole thing is frustrating and im starting to resent the whole diet. I dont why im becoming so bitter about it. i feel like everyone always says their depression or moodiness got better with the diet, but i feel like thats just starting with me. did anyone else go through something similar????

fyi gas x worked intially for me but then not so much i think just overused it idk but might not hurt to try (this ws before i was diagnosed havent checked the label or anything so just check before you do hope it helps/ also i give you a lot of credit for sticking with it while in college, but maybe you have to talk to your roomates again)

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rmbyr12 -- I have no words of wisdom, since I'm going through this, too, but I sympathize. It's the holiday season (and today's my birthday...yay...) and I can't even eat really plain food that I made myself, while everyone else is gorging on cookies, cake, and seaweed tempura (I'm in Japan, so this is the holiday food here).

It's crazy annoying, I have near-constant pain of some kind, not to mention brain fog and downward mood swings after I eat.

So far this website is my therapy: http://howitfeelstobeglutenfree.tumblr.com/ That, and finding people on this forum who are also going through this.

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Make sure you've replaced appropriate kitchen items. Check all medications and supplements for gluten. Check pet foods, shampoos, lipsticks.

For the roommate situation. If you can't move, make sure you stock up on papertowels. Wipe down surfaces before preparing food. Also wipe down plate, glass and silverware as flour may settle on those items. Get your own condiments.

Lastly, educate your roommates about the damage that happens to your gut when you ingest gluten. It is a serious matter that needs to be treated as such. Hope this helps a bit.

Wishing you luck,

Colleen

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I agree that getting glutened every few days is not acceptable! This is serious stuff. I'm sure your gas symptoms will improve once you get that under control.

Gas and bloating are among my major problems too but they're gotten much much better the longer I'm gluten-free. I did the gas-X too but now I don't have to. I've been gluten-free for 4 months and for the first 2-3 was getting accidentally glutened all the time, too, so I feel your pain. I've learned to just quit taking chances on eating out, eating at friends' etc. It's been hard, but slowly my friends and I are finding other ways to socialize that don't revolve around food.

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Seriously, DON'T get glutened every few days. For realz. Now it's only gas and flatulence, but it will get worse if you keep going like this because the damage will build up. Follow the gluten-free diet strictly and you'll see improvement.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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