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Muscle Tension A Frequent Celiac Problem Or Rare?
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I have one more question and I promise ill stop posting until I go to the doctors again. My main symptom apart from digestive problems is muscle tension/ pain.I get frequent back of the neck tension and aches, upper back and shoulder tension, sometimes ill also get muscle pain like a sun burn but under neath the skin.And lastly like a lower back ache , but minor,and muscle weakness if I eat the wrong stuff like McDonald mcmuffins ,donuts etc but usually the day after and not right away.Since my digestion is either sloth slow or in overdrive. Just wondering because I have read recent posts but I don't see a lot of muscle problems ??

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Hello

I don't know if this is valid for everybody but yes, in my personal experience celiac disease has a close relation to muscle tension although I don't know why. In my worse month pre-diagnosis, last November, I had a headache every single day, generally around the left eye or the left temple, sometimes just a distant thump thump sometimes strong pains. I had read celiac disease and headaches were related but was very worried. Then I went to my dentist and she touched my jaw and did I jump on that chair... To make a long story short: I have been suffering from tension headaches from the extreme tension in my jaw, but I felt the ache around the eye and in the neck. I have been clenching my jaws at night for years and I do have a bite but it never was THAT bad. It's been much better since going gluten free and I believe it might get better still in time (up to a few years ago I did not clench my jaws at all..) I have read several topic with people saying they clenched or ground their teeth at night and the problem seemed to get better going gluten free.

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My sister and I (sister also celiac) had a terrible teeth-clenching problem before gluten free. I had also extreme muscle tension throughout my body, which did not relax with massage therapy. I took a relaxation class, and the more I tried to relax a part of the body, the greater the tension became :rolleyes:

I still have some problems with my legs and shoulders, but no longer clench my teeth.

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Great info for me,thank you very much for the responses this gives me hope

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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