Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms


Guest rt1234

Recommended Posts

Guest rt1234

I am 15 years old and recently have been experiencing symptoms similar to those diagnosed with Celiacs disease/ gluten sensitivity. The symptoms effecting me for the past 2 months include the following:

-sharp pain in my upper right abdomen

-severe upset stomach

-bloated stomach and nausea

-extreme fatigue

-weight loss

I recently went for blood work and am waiting on results. Does anyone feel celiac's could possibly be an option corresponding to my symptoms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Definitely. It could also be non-celiac gluten sensitivity which would give you the same symptoms but will be negative on all tests. When your testing is done, I would recommend a gluten free trial of a few months (3-6) and see if that helps. Lactose in milk can also cause these symptoms, and many celiacs are lactose intolerant.

Best wishes to you. I hope you find answers in your test results and feel better soon!

GFinDC Veteran

HI rt1234,

Sounds like celiac symptoms. There are other things it could be. It is important to keep eating gluten (wheat, rye, barley) until the medical tests are all done. The tests are usually an blood draw for testing antibodies to gluten (gliaden) and later an endoscopy to check for damage to the gut villi). The test results usually take a couple weeks in each case as they send the samples to a lab for analysis. If it does turnout to be celiac we can help you with getting started in the gluten-free diet.

There are conditions that have very similar symptoms to celiac are different though. One is called NCGI (non-celiac gluten intolerance). They don't have any test protocol for that yet, so the best test is to go on the gluten-free diet for 3 to 6 months and see if you improve.

Non-celiac wheat sensitivity article

http://www.celiac.co...ists/Page1.html

mommida Enthusiast

In undiagnosed Celiac disease there is also the chance of a non functioning gall bladder.

A few cases of diagnoses have had the gall bladder removed to be later diagnosed with Celiac.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,199
    • Most Online (within 30 mins)
      7,748

    Andrea Spencer
    Newest Member
    Andrea Spencer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.