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Symptoms


Guest rt1234

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Guest rt1234

I am 15 years old and recently have been experiencing symptoms similar to those diagnosed with Celiacs disease/ gluten sensitivity. The symptoms effecting me for the past 2 months include the following:

-sharp pain in my upper right abdomen

-severe upset stomach

-bloated stomach and nausea

-extreme fatigue

-weight loss

I recently went for blood work and am waiting on results. Does anyone feel celiac's could possibly be an option corresponding to my symptoms?


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nvsmom Community Regular

Definitely. It could also be non-celiac gluten sensitivity which would give you the same symptoms but will be negative on all tests. When your testing is done, I would recommend a gluten free trial of a few months (3-6) and see if that helps. Lactose in milk can also cause these symptoms, and many celiacs are lactose intolerant.

Best wishes to you. I hope you find answers in your test results and feel better soon!

GFinDC Veteran

HI rt1234,

Sounds like celiac symptoms. There are other things it could be. It is important to keep eating gluten (wheat, rye, barley) until the medical tests are all done. The tests are usually an blood draw for testing antibodies to gluten (gliaden) and later an endoscopy to check for damage to the gut villi). The test results usually take a couple weeks in each case as they send the samples to a lab for analysis. If it does turnout to be celiac we can help you with getting started in the gluten-free diet.

There are conditions that have very similar symptoms to celiac are different though. One is called NCGI (non-celiac gluten intolerance). They don't have any test protocol for that yet, so the best test is to go on the gluten-free diet for 3 to 6 months and see if you improve.

Non-celiac wheat sensitivity article

http://www.celiac.co...ists/Page1.html

mommida Enthusiast

In undiagnosed Celiac disease there is also the chance of a non functioning gall bladder.

A few cases of diagnoses have had the gall bladder removed to be later diagnosed with Celiac.

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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