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Symptoms

Guest rt1234

By Guest rt1234
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

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Guest rt1234
Guest rt1234
Posted

I am 15 years old and recently have been experiencing symptoms similar to those diagnosed with Celiacs disease/ gluten sensitivity. The symptoms effecting me for the past 2 months include the following:

-sharp pain in my upper right abdomen

-severe upset stomach

-bloated stomach and nausea

-extreme fatigue

-weight loss

I recently went for blood work and am waiting on results. Does anyone feel celiac's could possibly be an option corresponding to my symptoms?

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nvsmom Community Regular
nvsmom
Posted

Definitely. It could also be non-celiac gluten sensitivity which would give you the same symptoms but will be negative on all tests. When your testing is done, I would recommend a gluten free trial of a few months (3-6) and see if that helps. Lactose in milk can also cause these symptoms, and many celiacs are lactose intolerant.

Best wishes to you. I hope you find answers in your test results and feel better soon!

GFinDC Veteran
GFinDC
Posted

HI rt1234,

Sounds like celiac symptoms. There are other things it could be. It is important to keep eating gluten (wheat, rye, barley) until the medical tests are all done. The tests are usually an blood draw for testing antibodies to gluten (gliaden) and later an endoscopy to check for damage to the gut villi). The test results usually take a couple weeks in each case as they send the samples to a lab for analysis. If it does turnout to be celiac we can help you with getting started in the gluten-free diet.

There are conditions that have very similar symptoms to celiac are different though. One is called NCGI (non-celiac gluten intolerance). They don't have any test protocol for that yet, so the best test is to go on the gluten-free diet for 3 to 6 months and see if you improve.

Non-celiac wheat sensitivity article

http://www.celiac.co...ists/Page1.html

mommida Enthusiast
mommida
Posted

In undiagnosed Celiac disease there is also the chance of a non functioning gall bladder.

A few cases of diagnoses have had the gall bladder removed to be later diagnosed with Celiac.

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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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