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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

One More Tie

4 posts in this topic

I swear if anybody in myhouse eats my food one more time I am gonna go to the store and buy my own refregerator, nuwave cooktop and nuwave oven. I will fix all my stuff in my room. They just don't care but them eating my food means there is a day I go without supper. I can't just go to a snack machine or just fix a microwave dinner. All my food is budgeted. They know it makes me sick if I eat something else,m they just don't care. I have to work to pay for my food and one day I cave in because I am starving and weak and running on fumes at work, means I spend the next week ill.

Am I the only one who sometimes feels as if the people who are supposed to love you the most don't care if they make you ill? On top of this, one of the very few people in my life who listens and cares about me just died in a car accident and I am beginning to feel that I wish it were me instead. Of her. This suffering seems endless and a lost cause. I am on a rollercoaster of anger, hurt, depression and I don't know how long I can hold onto hope :'(


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I am sorry for the loss of your friend :( Some people are very special and make such a difference in our lives. Hang in there, and don't let the grieving get you down too far.

Family can be very thoughtless and inconsiderate. Try to be rational with them rather than angry, if you can. Print our your post here and give it to them, so that they can understand in a moment of reflection what they are doing to you and how bad it makes you feel. Chin up a bit, Razzle, you can do this !!


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Awww ((((hugs)))) hang in there! Losing a friend is always a terrible thing, but we're all glad to still have you here. :wub:

You aren't the only one to get mad, or upset about stuff like that. I about blew my top this evening when I found a bunch of my stuff in the "deli" drawer of the fridge. You know... the one everyone else in the house gets into while handling bread. But eating my stuff? I'd lose it. You're right, we don't have options. I try to talk to people about things like this when I'm not mad, that way I don't freak out and make them not listen to me. It is possible that they just don't realize they are being inconsiderate jerks. Of course, you need to be all PC and not actually use those words when you talk to them, no matter how appealing. :P


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Thanks to the both of you for your encouragement. Tried to post sooner but had problems with replying so I gave up. My brother is psycho...literally. He has gone crazy and there is no talking to him. It is like talking to a drunk. If i get stern he could fly off the handle and punch a hole in the wall or who knows what. Not being able to assert myself with someone who is very selfish and egocentric leaves me feeling trapped. Yesterday I came home and my coconut milk is completely empty because he drank all their milk then mine. He makes excuses and says he doesnt know whats mine. Really?! when in our entire life has mom ever bougt coconut milk or anything besides dairy? When has she bought brown eggs? When has mom ever made burgers out of turkey meat?

There is absolutely nothing I can do about it but it causes anxiety when I think about him messing with my stuff. I am a CNA and if i get glutened bad enough I dont want to lose my job because my stupid brother got into my crap as if there is not enough food in this house for him to eat. Hhh I am thinking about asking my aunt if I can move in with her because there is also mold all in this house making me ill


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    • How do you know what's causing what?
      I am in same boat, yesterday my stomach was churning and bloated and I don't know what the cause was.  How about keeping a food diary? Just note what you ate and how you feel. A few days may be sufficient to discern a pattern, either some rogue product or a previously unknown intolerance. I have read that after gluten is removed further intolerances which were hidden can become apparent.  I don't know whether you could cut yourself some slack from a full vegan approach whilst your body heals? If not, maybe you could substitute say milk with coconut milk or similar to give your body a break whilst keeping calcium levels high? If you join coeliac uk you can check your sauces etc on their gluten-free database, they'll also send you a book which became my bible until I got a hang of which brands I could eat safely. Finally, have you excluded cross contamination from pots and pans, toasters, shared condiments etc?  Good luck!
    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels.
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum! theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
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