Posted 23 January 2013 - 03:20 PM
I am new here and have not had official gluten testing done because I am unable to see a GI until 2/4. My symptoms all seemed to start (or get progressively worse) about a month ago. The symptoms include abdominal pain which was located right under the rib cage mainly on the right side which would occasionally also occur on the left side. Diarrhea has been common and I haven't had a "normal" bowel movement in forever. I have also been experiencing chest pains which feel like really bad heartburn. I have been in the ER twice because of these pains where they have done a EKG, CT scan, ultrasound and different blood work. Everything has seemed to come back normal minus high white blood cell (13) and slightly elevated blood pressure. My family seems to have a trend of gluten intolerance and a cousin who is confirmed celiac. I have tried since Sunday to go gluten free and see if it helps with my issues. The first couple days I felt better, only using the restroom once per day which made me very happy and excited, thinking I may have a better idea of what's going on and stop some of the anxiety issues that have accompanied this whole process. Last night I started to develop a pain in my lower left abdomen, which I had not felt before, and today my bowel movements have gone crazy again starting off with what seemed to be darker than normal in the morning and diarrhea since then. I'm so confused as to what is going on and would just like to know of others have experienced things like this or if it sounds more like I am suffering from a different illness
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Posted 24 January 2013 - 06:27 AM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 27 January 2013 - 10:28 AM
TTG IgA and IgG
total serum IgA
DGP IgA and IgG
The first two tests are the most common. The third test is not actually a celiac test but it checks whether you have enough IgA to register a positve Ttg IgA or EMA IgA test if you are a celiac. Keep eating gluten until you are tested
Be aware that approximately a quarter of all celiacs seem to have negative blood tests and are diagnosed by the biopsy.
If all the testing comes up negative, try the gluten-free diet for 6 months and see how you feel; it sounds like you were having good results with it already.
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012
Posted 27 January 2013 - 12:07 PM
Just a thought
Allergic to red food coloring.
Posted 28 January 2013 - 07:52 AM
Any opinions would be welcome. For the record, I definitely plan on asking my doc these questions as well now that I've had time to let the implications of her instructions sink in. Don't have an appt date for the scope yet.
Thanks for reading.
Posted 28 January 2013 - 01:09 PM
It is no fun learning that you have to avoid foods that you enjoy, but it is also no fun to suffer from mystery ailments all the time.
Hope you feel better soon.
Posted 28 January 2013 - 06:09 PM
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