New And Kinda Confused
Posted 31 January 2013 - 07:24 AM
I told her I cannot get enough water (15-18 8 oz glasses a day and I am still thirsty). Of course, I have to go to the bathroom all the time as a result. We discussed my joint pain--thumb, elbow, shoulder and hip. I have been checked for RA, lupus, gout and nothing shows. Bone scans on my thumb (which is the worst) are fine. She asked about any digestive issues, and I told her pasta kills my stomach (diarrhea), that usually my bms are soft and greasy, and that I try to avoid pasta and usually bread because they make it worse.
But, by and large, the joint pain, fatigue, and foggy memory are worse concerns for me.
The first thing she said was it sounds like celiac. She is referring me for blood work, mentioned something about a biopsy, and so here I am--doing my homework!
I read that avoiding gluten can throw off testing. I can't say I have been gluten free, but I don't eat a high level of it, either. My stomach just does better when I don't have the pasta and such.
It felt so good to have someone validate what I was feeling, as I had started to think of myself as a bit of a hypochondriac. Part of me is worried that any testing will be negative and I will go back to feeling like it is all in my head!
Does this sound typical of celiac?
Posted 31 January 2013 - 10:58 AM
It could very well be. Pasta, and i was (correction still am) a pasta fanatic. The wheaty stuff would set my stomach off and fealt like lead. It did eventually get worse too.
Now i eat a corn/quinoa mix pasta and i'm happy
At any rate, you're probably getting enough in ya. Generally its reccommended for those who are doing a trial to do 1-2 slices of bread per day. But i think you can also sub that with other gltueny things.
Allergic to red food coloring.
Posted 31 January 2013 - 02:15 PM
Welcome to the board and let us know how we can help.
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 31 January 2013 - 07:10 PM
Posted 31 January 2013 - 07:15 PM
Good luck with the testing. I hope you get some clear and definitive results. If you are unsure of what the results mean, bring them here. There are a few veterens around here with a wealth of information.
And good luck with the gluten consumption... perhaps eat it in the evening before bed to minimize symptoms affecting your day. Best wishes.
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hashimoto's - August, 2012
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