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Recent Convert To A Gluten Free Life Was Wondering…


lumdogs

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lumdogs Newbie

Hi all,

I’ve recently started a gluten free diet as a trial more than anything after suffering through nausea and GERD for the past 12 months. I had a blood test for Celiac come back as negative although my IgA levels were lower than the norm. Anyway I thought what the heck - just trial gluten free and see if it makes a difference to my symptoms. I’m pleased to say that after 4 days of being Gluten Free, i’m still Gluten Free. I haven’t noticed a change in symptoms as yet but I am only 4 days in and very realistic that it will take time. I was wondering though about side effects. I don’t really seem to be suffering anything major other than dehydration. I drink my 2 litres of water per day as I have done for years prior to going gluten-free, however it seems that now I am permanently dehydrated. Can anyone tell me whether this is a common side effect and is it likely to disappear with time? Thanks in advance - LD.


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GFinDC Veteran

Hi Lumdogs,

Welcome to the forum! :)

I don't recall that particular symptom myself but that doesn't mean it isn't related. There is a very wide range of physical symptoms that people get from eating gluten and stopping it too. Sometimes people have withdrawal symptoms, while others don't even notice a change. Some celiacs have villi damage but have no outward symptoms at all. That is called silent celiac. So going by symptoms is tricky. If you want to get tested though you should do that before being gluten-free for very long. The tests are a simple blood draw for antibodie testing, and then possibly an endoscopy for biopsy. The antibodies in the bloodstream drop off after going gluten-free and that makes the blood tests useless. The other trick to it is that NCGI doesn't show up in blood tests just yet, as it is newly recognized and no tests have been devised.

It is helpful to write down a food and symptom log each day. Not just physical symptoms but also if you felt well or were anxious for no reason, depressed etc.

Non-celiac wheat sensitivity article

https://www.celiac.com/articles/23033/1/Non-Celiac-Wheat-Sensitivity-It-Exists/Page1.html

1desperateladysaved Proficient

I recall some discussion on dehydration in the past, so you might try searching for it. From my own memory in 2007(in my gluten days) I spent the summer drinking cup after cup of water and still feeling thirsty. The doctor checked for diabetes and kidney trouble, but they were negative.

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    • trents
      @N00dnutt, been there, done that! Cheers!
    • N00dnutt
      @trents You're right, thanks for pointing that out. On @somethinglikeolivia comment regarding potential ingesting or cross contamination; there is a product marketed in Australia as "GluteGuard" which is designed for just this scenario. It is not a defence for and is not recommended for use by full-blown celiac disease but, it helps those with GI. I'll be reading slower in future so I don't skim over the subject matter. Cheers.
    • N00dnutt
      @Knitty_Kitty Noted with appreciation.
    • trents
      @N00dnutt, as OP explained earlier, she had a gastroscopy done earlier while she had been eating plenty of gluten for months. It was negative despite strong positive antibody scores.
    • N00dnutt
      The best way to determine positively is to undergo a Gastroscope. Your Endocrinologist will assess the condition of your "Villi". These tenticles are what extract the nutrient from what we ingest. The Protein in Gluten is like acid to these tenticles.
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