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Recent Convert To A Gluten Free Life Was Wondering…
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Started by lumdogs,

3 posts in this topic

Posted

Hi all,

I’ve recently started a gluten free diet as a trial more than anything after suffering through nausea and GERD for the past 12 months. I had a blood test for Celiac come back as negative although my IgA levels were lower than the norm. Anyway I thought what the heck - just trial gluten free and see if it makes a difference to my symptoms. I’m pleased to say that after 4 days of being Gluten Free, i’m still Gluten Free. I haven’t noticed a change in symptoms as yet but I am only 4 days in and very realistic that it will take time. I was wondering though about side effects. I don’t really seem to be suffering anything major other than dehydration. I drink my 2 litres of water per day as I have done for years prior to going gluten-free, however it seems that now I am permanently dehydrated. Can anyone tell me whether this is a common side effect and is it likely to disappear with time? Thanks in advance - LD.

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Posted

Hi Lumdogs,

Welcome to the forum! :)

I don't recall that particular symptom myself but that doesn't mean it isn't related. There is a very wide range of physical symptoms that people get from eating gluten and stopping it too. Sometimes people have withdrawal symptoms, while others don't even notice a change. Some celiacs have villi damage but have no outward symptoms at all. That is called silent celiac. So going by symptoms is tricky. If you want to get tested though you should do that before being gluten-free for very long. The tests are a simple blood draw for antibodie testing, and then possibly an endoscopy for biopsy. The antibodies in the bloodstream drop off after going gluten-free and that makes the blood tests useless. The other trick to it is that NCGI doesn't show up in blood tests just yet, as it is newly recognized and no tests have been devised.

It is helpful to write down a food and symptom log each day. Not just physical symptoms but also if you felt well or were anxious for no reason, depressed etc.

Non-celiac wheat sensitivity article

http://www.celiac.com/articles/23033/1/Non-Celiac-Wheat-Sensitivity-It-Exists/Page1.html

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Posted

I recall some discussion on dehydration in the past, so you might try searching for it. From my own memory in 2007(in my gluten days) I spent the summer drinking cup after cup of water and still feeling thirsty. The doctor checked for diabetes and kidney trouble, but they were negative.

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Go To Topic Listing Celiac Disease - Pre-Diagnosis, Testing & Symptoms

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    • squirmingitch
      Getting sicker after diagnosis

      By squirmingitch · Posted

      Gluten withdrawal. It's real. I agree with what cstark said but I call it gluten withdrawal. Your body really does get "addicted" to gluten and when you go gluten-free, then the body has to cope with the withdrawal of a substance it was used to getting on a regular basis even though that substance was killing you. It isn't much different than drug addiction & the withdrawal process from that.  It sucks, I know but I promise it will get better. Rest as much as you can, drink tons of water, eat well cooked foods to ease the strain on your villi. Bone broth - home made - is a great healer of the gut & very gentle on it as well as being extremely nourishing. Just google how to make it. {{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}
    • Centime
      request suggestions

      By Centime · Posted

      Push for the endoscopy.  My GI said at the initial consult that he didn't think I had celiac but wanted to do the scope to "rule it out"  When he saw me immediately after the endo, while I was still in recovery, he saw enough damage to change his position and sure enough the biopsy came back positive.
    • cstark
      Getting sicker after diagnosis

      By cstark · Posted

      Your body has been used to ingesting and has been coping with the gluten in its systems.  DON'T PANIC because your body is doing it for you.   Seriously now, the medical field has a technological term defining when a system is used to working a certain way/routine.  When that is either disrupted or changed, it could take a while for the body adjust to a different way of doing things.  Another factor in the increase in symptoms could possibly be that your body is starting to "clean house".  It's trying to get rid of the amounts of gluten hiding out in all its nooks and crannies.  It is going to be a long term process.  It's like cleaning out a vacuum hose or other household item that is just caked with gunk.  The first cleaning gets rid of a large portion of the gunk and ick.  The subsequent cleanings gets rid of more and more ick but in lesser amounts. I thought I was going to go crazy those first few months, but things are a lot better now. (I am about 10 months gluten free).  I still have moments of brain fog and even episodes, but my body is getting closer (and more used to)  to having a cleaner "household item".  I know it's tough at first with the increased onslaught of symptoms, but hang in there.   You may want to keep a journal of all that you ingest or come into contact with for a time to track anything that could exacerbate symptoms.  (For me, my episodes are chemically triggered as well.)  If for some reason a few months down the road, you still have large amounts of symptoms it would be a good idea to visit your GP again just in case there something else that is going on.  
    • Jessie.Cait
      Getting sicker after diagnosis

      By Jessie.Cait · Posted

      I would love some help! After 20ish years of being misdiagnosed with IBS, I was diagnosed with celiac disease (positive blood test for tTG IgA and positive duodenal biopsy) ~ 6 weeks ago. Of course I've gone completely gluten free, and I've been crazy paranoid careful not to ingest any gluten. I've also completely avoided all oats (even certified gluten free) and cut out lactose (due to transient lactose intolerance... because I don't have villi) . But now I feel WAY WORSE. I've had abdominal pain every single day, which ranges from mild aching to severe 10/10 laying on the floor crying and vomiting pain. I understand that it takes a long time to get better, but why would I get so much worse? My best guess is SIBO, but I can't imagine that it could cause such extreme symptoms, can it?  So my question to you fine folks is: did this happen to anyone else? Have you gotten sicker after you changed your diet? Is this normal?  For arguments sake, lets assume that I did not ingest any gluten to cause these symptoms... Thank you for your help!
    • jhc
      request suggestions

      By jhc · Posted

      Thanks very much Cyclinglady. Yes, it is Kaiser. I doctor said the GI think it is unlikely to be celiac deisease (he did not say how he came to this conclusion), but he would be happy to do an upper endoscopy for me. I did some look up online, this procedure should be low risk. Still feel a little hesitate while reading the potential risks :(.

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