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Results Of Me Going Gluten Free. ,questions...
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I've been off gluten totally for a little over two weeks.Some interesting results have come from this.Without going into detail lets just say my BM are no longer pale in color or smelly.Now I'm more regular and seemingly less bloated and more hungry than I used to be so I see all this as positive. Now I have a few questions for those who have been down this road before.I understand that people who are celiac develope other intolerences and or allergies because the intestine lining is frankly butchered from the attacks.With that said I still have one odd problem and that's muscle soreness/ fatgue.I believe I narrowed it down to one of three foods (eggs,potatoes,caffeine) as I'm already off dairy.My question is can those foods produce widespread muscle pain? Not fybro pain,but actual pain.The reason I ask these questions is I've read on numerous sites that one comes to crave the food(s) they are allergic to.I grave a lot ,potatoe chips and I mean a lot!! Ill eat a bag a day no problem.(kettle chips non gluten).Also I noticed that after I ate bacon&eggs Thursday,the very next day I had body pains (but I also ate chips everyday).I eat eggs sat/sun every week usually but would the symptoms keep going all week? Thanks for any answers

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Potatoes belong to the nightshade family of foods (plants that grow at night - potatoes, tomatoes, eggplant, peppers, etc.) and are known to be pro-inflammatory. You might try cutting out the potatoes, especially if you are craving them which, as you say, is often a sign of a toxic reaction. I do not eat any of the nightshade foods and it has made such a difference to my psoriatic arthritis. :)

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It could be a matter of time too. I've had pretty bad joint pain in the past; the kind where it's difficult to hold a pen, and it hurts to carry a couple of paperbacks in a bag. I'm not sure if it was caused by celiac or other autoimmune problems (I have Hashi's and suspect another) but my joint pain has improved a great deal lately. If it was caused by celiac, it took over 6 months of eating gluten-free (and 4 months dairy free) before I saw any improvement. It actually got worse in the first few months on the gluten-free diet.

I would try cutting out potatoes for a few months and see if there is any improvement... It beats waiting 6 months like I did. LOL You might want to reduce caffeine too; high consumption of caffeine is often advised against for those with AI diseases.

Good luck. :)

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Yeah I did some tests.Last week I noticed an increase in symptoms Friday after I ate bacon and eggs for dinner on Thursday.I also always eat eggs and bacon weekends I drive to my parents it's a weird tradition.I then spend my weeks mon/Tuesday /Wednesday feeling like crap.Tense neck/shoulders,body pain and sensative to light and sinus pain/ear fullness.so today I'm cutting eggs and see what happens.

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    • I never worried about cross contamination because i was originally told i was just intolerant. after going gluten free i felt so much better up until this last march. dairy and fructose have been giving me problems but both lactose and fructose test came back negative.  this is what my gi doctor emailed me today 
    • Any place you know of to find more info? Seems like I am still in so much pain/bloat, I am not even sure if I would pick the right 5 foods!
    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
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