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Gluten-Free Glutton: Celiac Disease Is Expensive -- But I'm Not To Whine About It - Florida Times-Union
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The Massachusetts Daily Collegian

Gluten-Free Glutton: Celiac disease is expensive -- but I'm not to whine about it

Florida Times-Union

You may not be aware of it, but there is a federal tax deduction that people with celiac disease can take for the increased cost of gluten-free food. It will probably be an exercise in futility, but I'm going to take all the steps necessary this year ...

Gluten free diet requires careful shopping The Massachusetts Daily Collegian

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I hate to be the bearer of bad news but that 7 1/2% threshold is going up to, or has already gone up to, 10%, courtesy of Obama Care. So, unless you have 20 children and they all are diagnosed Celiacs, you can forget about this deduction. It's shameful that the US government cares so little about medical costs for everyone and especially those of us who have to eat this way. No one should be taxed on legitimate medical expenses, especially when those passing these ridiculous laws have the best medical care in the world. :angry:

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Oh, that guy. Mark Basch. He is a one-man typing font of celiac/gluten intolerance misinformation, and now he's adding IRS problems to the resumé. :rolleyes:

You have to see this:

http://jacksonville.com/entertainment/food-and-dining/2012-07-12/story/gluten-free-glutton-whats-really-gluten-free

When he's not bashing the merely gluten intolerant, he's the Big Fan of the looser definition of "gluten free" to include processed gluten :angry: and up to 20 ppm.

I don't worry about that a lot because I generally don't get sick if I eat a small amount of gluten. I avoid gluten because I know that it is damaging my intestine and will cause long-term health issues.

So when the FDA guidelines came out last year, I put this question to one of the leading researchers on the disease, Stefano Guandalini of the University of Chicago Celiac Disease Center. He assured me that "there is good, solid science" behind the safety of the 20 ppm standard. He also pointed out that the standard has already been adopted in Europe.

He said studies have shown that celiacs can consume up to 10 milligrams per day of gluten without causing damage, or about 1.1 pounds of food that contain 20 ppm of gluten.

With that reassurance, I was interested to read recently about a new beer produced by a brewery in Oregon. The beer is called Omission and it claims to be the first gluten-free beer in the U.S. that is brewed with traditional beer ingredients, including malted barley.

Here comes the let's make gluten free food, or beer, out of gluten nonsense again. It only bothers the super- sensitive, right ? :ph34r:<_<

And if Europe doesn't do something correctly, of course we should then emulate them, right ? Of course, that University of Chicago Celiac Disease Center website, cureceliacdisase.org, that Guandalini is on the board of, claims on its website that the gluten free diet "fails to heal intestinal damage in more than half of cases." (earlier discussion of this on this thread here, including links and the link to the FAQ page from cureceliacdisease.org, with this claim here: http://www.cureceliacdisease.org/archives/faq/why-do-i-need-a-cure-when-i-can-simply-eat-a-gluten-free-diet

If this contention was true, that a gluten free diet does not work in over 50% of diagnosed celiacs cases, based on studies done in parts of the world with alleged "gluten free" food made with gluten ingredients, should not the standard here in the United States be BETTER THAN THAT ? And should not the gluten free diet topic media writers with the disease be more concerned about that ?

Mark Basch also was claiming that the Domino's Pizza (the ones who got so into trouble with the not really gluten free because of cross contamination, that one of the celiac organizations tried to "rate," as to probability of safety :angry: ) was tested by an independent company as it was gluten free. But he also says that he eats them and doesn't get sick, so he's the the right "test patient for that."

He shouldn't give bad tax advice, either.

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Would you review this on Find Me Gluten free?  You can  use the app or just go to it on line. If the restaurant isn't listed, there is a way to suggest it.  I have done that and it works.  Many of us look at that site/ app
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