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Gluten-Free Glutton: Celiac Disease Is Expensive -- But I'm Not To Whine About It - Florida Times-Union

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The Massachusetts Daily Collegian

Gluten-Free Glutton: Celiac disease is expensive -- but I'm not to whine about it

Florida Times-Union

You may not be aware of it, but there is a federal tax deduction that people with celiac disease can take for the increased cost of gluten-free food. It will probably be an exercise in futility, but I'm going to take all the steps necessary this year ...

Gluten free diet requires careful shopping The Massachusetts Daily Collegian

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I hate to be the bearer of bad news but that 7 1/2% threshold is going up to, or has already gone up to, 10%, courtesy of Obama Care. So, unless you have 20 children and they all are diagnosed Celiacs, you can forget about this deduction. It's shameful that the US government cares so little about medical costs for everyone and especially those of us who have to eat this way. No one should be taxed on legitimate medical expenses, especially when those passing these ridiculous laws have the best medical care in the world. :angry:


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Oh, that guy. Mark Basch. He is a one-man typing font of celiac/gluten intolerance misinformation, and now he's adding IRS problems to the resumé. :rolleyes:

You have to see this:

When he's not bashing the merely gluten intolerant, he's the Big Fan of the looser definition of "gluten free" to include processed gluten :angry: and up to 20 ppm.

I don't worry about that a lot because I generally don't get sick if I eat a small amount of gluten. I avoid gluten because I know that it is damaging my intestine and will cause long-term health issues.

So when the FDA guidelines came out last year, I put this question to one of the leading researchers on the disease, Stefano Guandalini of the University of Chicago Celiac Disease Center. He assured me that "there is good, solid science" behind the safety of the 20 ppm standard. He also pointed out that the standard has already been adopted in Europe.

He said studies have shown that celiacs can consume up to 10 milligrams per day of gluten without causing damage, or about 1.1 pounds of food that contain 20 ppm of gluten.

With that reassurance, I was interested to read recently about a new beer produced by a brewery in Oregon. The beer is called Omission and it claims to be the first gluten-free beer in the U.S. that is brewed with traditional beer ingredients, including malted barley.

Here comes the let's make gluten free food, or beer, out of gluten nonsense again. It only bothers the super- sensitive, right ? :ph34r:<_<

And if Europe doesn't do something correctly, of course we should then emulate them, right ? Of course, that University of Chicago Celiac Disease Center website,, that Guandalini is on the board of, claims on its website that the gluten free diet "fails to heal intestinal damage in more than half of cases." (earlier discussion of this on this thread here, including links and the link to the FAQ page from, with this claim here:

If this contention was true, that a gluten free diet does not work in over 50% of diagnosed celiacs cases, based on studies done in parts of the world with alleged "gluten free" food made with gluten ingredients, should not the standard here in the United States be BETTER THAN THAT ? And should not the gluten free diet topic media writers with the disease be more concerned about that ?

Mark Basch also was claiming that the Domino's Pizza (the ones who got so into trouble with the not really gluten free because of cross contamination, that one of the celiac organizations tried to "rate," as to probability of safety :angry: ) was tested by an independent company as it was gluten free. But he also says that he eats them and doesn't get sick, so he's the the right "test patient for that."

He shouldn't give bad tax advice, either.


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    • Already had that looking on experience and in the end had to leave the room as it was unbearable just sitting there with people laughing at me not being able to eat, yup people are cruel and really show their colours at times like this. Tbh based on the reactions I've had from people my age so far the kissing thing will be irrelevant as no one will stick around to get that far. Since the diagnosis whenever the gluten stuff has come up I've been belittled and made the butt of jokes. Then even people who previously were OK with it started jumping on the bandwagon too. Seems like the alternative to the "bad ones" is no one, which is even worse @GFinDC it's the time thing that's really getting me down right now. Feel like I've lost out so much already and the thought of losing another year or two to this is driving me crazy, especially when I see others my age making the most of their lives and I know with this I can't do the same.  I'm exactly one of those people you described, never been interested in cooking and vegetarian too which rules out this paleo diet everyone seems to use as gut healing. Just adds to the feeling of being lost in all this and once I close the forum window I'm on my own. Still wondering if to do those Cyrex tests to find out early on which other foods may be problematic. Part of me isn't convinced they're scientifically proven enough to be useful but then others seem to have had useful result. Trouble is it's not cheap and already been drained money-wise by these private hospital visits so have to pick the treatments wisely...
    • Ifyour using local  agricultural products  check into and your state dept  of ag.  You can  also check to see the types of projects that are available.  GOOD LUCK  
    • Q: My friends are talking about gluten-free diets and gluten-free foods. ... In celiac disease, the immune system identifies gluten as a foreign invader ... View the full article
    • Yes, GFinDC you've got the gyst of what I am after. If I am reading your response correctly then, you think that inflammation in the gut caused by gluten ingestion is enough to trigger diarrhea, quite apart from the state of one's mucosa? That would be good news for me. More information on this inflammation reaction in the gut with gluten ingestion is precisely what I am after, but cannot seem to find. Because, as stated, as far as I know, D is mostly if not only, caused by flattened villi. OTOH, how interesting to hear from you, cycling lady, that you had flattened villi and no D! RMI, the link is quite depressing. Many appear not to have healed mucosas after a gluten-free diet. A repeat endoscopy is what is so clearly needed by many of us, but honestly I am a little wary of the risks.
    • No, they didn't test my ttg igg, which I was surprised about considering the low IgA and positive DGP Igg. (The tests they did were IgA serum, Ttg IgA, DGP Igg and IgA and gene testing) If he ever returns my call, I was going to ask him about that.  He initially wanted to set up a endoscopy, but I told him I had one last year (with my prior GI) and he said he'd take a look at it and we'd go from there, except that was two weeks ago and I haven't heard from him.  My prior GI did take biopsies, I believe to rule out H.Pylori and I was told biopsy results were normal, however, I didn't receive a pathology report or anything like that.
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