Celiac Shoppers Fight Against ’Poisonous' Store Placement of Gluten-free Flours

Fair Dinkum! Sounds like some of the people stocking shelves really are kiwis, but I won't hold that against them. Hopefully Countdown sorts it out and realises the seriousness of celiac disease and the need for storing gluten free flour where it won't get contaminated. I'll have to check my local Woolworths (or 'Woolies') here in the land down under ?

I had a similar experience with gluten free tortillas.  

There's vigilence and there's OCD.  Celiac disease and gluten allergies toxic level is 20ppm. 

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Also, inhaling or touching the gluten doesnt do anything.  If the packaging had dust on it, clean it off before opening it.  Don't vilify businesses that sell the food that you can eat.  

Some people with celiac are super sensitive to contamination and will stay sick for days or weeks.  So to call them OCD or tell them that the toxic level is 20ppm is rude.  Not everyone is the same.  That is a general guideline.   Some people can't even walk into a store that has a bakery without getting sick because flour is in the air and they breath it in.   

Stores need to have a dedicated gluten-free area to avoid the contamination.

Persons with gluten related dermatitis cannot have "skin contact" with gluten w/out lesion formation.

If possible I suggest buying gluten-free flours in soft plastic bags that can be washed prior to opening.

Actually gluten OCD is an interesting thought.  Better to be "overly" cautious than to live with contant "high anxiety". 

On 1/2/2019 at 10:02 AM, Guest Laura said:

Persons with gluten related dermatitis cannot have "skin contact" with gluten w/out lesion formation.

whhhaaat ??  i thought we were talking about celiac, here...... gluten molecules can't get through your skin......

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On 12/31/2018 at 11:40 PM, Guest SMG said:

There's vigilence and there's OCD.  Celiac disease and gluten allergies toxic level is 20ppm. 

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Also, inhaling or touching the gluten doesnt do anything.  If the packaging had dust on it, clean it off before opening it.  Don't vilify businesses that sell the food that you can eat.  

 

I would like to have you know that you are incorrect. Someone as sensitive as I am can be sick for days from just inhaling a small amount of wheat flour, please don't comment what you have no idea about, sensitive celiac patients can be harmed by inhaling or touching it.

On 1/12/2019 at 3:59 AM, Guest Celiac patient said:

I would like to have you know that you are incorrect. Someone as sensitive as I am can be sick for days from just inhaling a small amount of wheat flour, please don't comment what you have no idea about, sensitive celiac patients can be harmed by inhaling or touching it.

Has a point, if you inhale flour/wheat dust it gets in the mucus in your throat and nose, then that runs into your stomach and digestive tract...you get glutened.

I would also like to say stores are getting more and more annoying. I have been hounding my local HEB for years, they store extra wheat flour above the gluten free flours and the outsides of the packages are dusted in wheat flour.....I would never buy that. I would get it on my hands, the dust would get in my house...any chance of not rinsing any off and getting me or my customers sick...yeah no. I just buy my flours straight from the manufactures in bulk and save on the CC warehouse BS...and money.
Oh and I have talked the guy into moving them....next day they are back...corporate companies like this do not care.
BUT I have talked to a local healthfood store (Ann's Healthfood Store) and they moved all gluten flours to bottom shelf and all gluten free flours to top shelf and with all gluten products in the store...gluten on bottom gluten free on top. They are overpriced but that kind of commitment keeps them as my emergency go to in case I run out of something.