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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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- Ronnie d replied to Stephanie Wakeman's topic in Coping with Celiac Disease14Is it common to develop a wheat allergy in addition to Celiac Disease?
yes, the above is true. however; if the doctor does the tests and finds your are a candidate then dapsone is the drug that will stop the blisters immediately. dapsone started as a drug for malaria and leprosy....I do not know how it became known for dermatitis herpetiformis. I can tell you that my doctor told me she had several patients that have... -
- Scott Adams commented on Jefferson Adams's article in Additional Concerns14Is Cracker Barrel Gluten-Free?
This article, and the comments below it, may be helpful:- celiac disease
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- chrish42 posted a topic in Doctors0Doctors and Celiac.com
I wonder how many doctors are aware of this site and would or should recommend it to their patients? -
- imdoodah331 commented on Scott Adams's article in Summer 2025 Issue1Gluten-Free in the Apocalypse: How to Build a Celiac-Safe Emergency Food Supply (+Video)
I am so pleased to see this article. I was diagnosed "probable" Celiac, but definitely gluten intolerant just as the last pandemic got started. I had no idea how difficult daily life could be until then. I had to completely unlearn and re-learn safe ways to eat at a time when pretty much everything was scarce, limited, or just disappeared from store shelves...- celiac disease
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yes, the above is true. however; if the doctor does the tests and finds your are a candidate then dapsone is the drug that will stop the blisters immediately. dapsone started as a drug for malaria and leprosy....I do not know how it became known for dermatitis herpetiformis. I can tell you that my doctor told me she had several patients that have taken it over 20 years. our dosage was one a day until clear,then we went to every other day for a while, working down to zero a day. I still have an active prescription for dapsone but have not had to take one in several years. in closing, if anyone reads this and has truly been diagnosed for dermatitis herpetiform is, then ask your doctor for dapsone..... for those of you reading this that have never had the blisters and infections from the scratching and oozing fluid...than you can't identify. you can have celiac without dermatitis herpetiform is....but all people with dermatitis herpetaformis have celiac... a double whammy, so to say.
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I wonder how many doctors are aware of this site and would or should recommend it to their patients?
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I just got my test results after a less than 2-week gluten challenge consuming about 5 g of gluten per day on average. Anti tTG-IgA: <0.2 AU/ml (<8 is negative) IgA: 180 mg/dl (Reference range is 70-400) I previously had been on a gluten-free diet for around 3 years or so, with occasional cheating and not being strict about cross-contamination. I am however still suffering from the effects of the gluten challenge (food sensitivities, slight brain fog, weird stool, fatigue, swollen thyroid, bodyaches). Is this likely to be NCGS rather than celiac disease given the test results and my history? Note: I have one copy of HLA-DQ8.
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How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time.
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By nataliallano · Posted
Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.
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