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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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    • trents
      Welcome to the forum, @Gary Libby! This might be helpful: https://www.celiac.com/forums/forum/27-gluten-free-recipes-cooking-tips/ Also, just "google" for the gluten free version of something you like and want to try. For instance, google "gluten free recipe for meatloaf" or "gluten free recipe for tuna casserole".  There are also gluten free cookbooks available. There are a bunch of them offered on Amazon. The most important thing is to get a good handle on what gluten is and where and how it is hidden in food products. Many things you already eat are naturally gluten free but many things you would never expect to find gluten in will have it. For examples of the latter, Campbell's tomato soup and most soy sauces. Many canned soups contain gluten because wheat flour is used as a thickener and a texturing agent. You must get in the habit of reading ingredient labels, especially the allergen section.
    • milana
      Hi, is Pepsid safe for those with celiac? If not ( and I belive it is not gluten-free) what are other alternatives? I was not able to find anything but gluten-free tums in CVS. But I really need famotidine. Thank you
    • Gary Libby
      Are there any recipes or diet information on gluten free meals to cook..I'm not a very good cook so the simpler the better. PS. Do you feel rough/sickly 80% of the time with this disease. Thx 
    • HilaryM
      Thank you Scott - I can’t think of much that’s changed diet wise but I’ll definitely try to see if any of this works and probiotics are a great idea thank you!
    • cristiana
      Hello there @maylynn  I'm a slow healer from the UK.  I sympathise.  Despite three endoscopies which showed nothing wrong, I frequently suffered from a very sore stomach, bloating, feeling queasy.   For some time I was taking the wrong iron supplement (Floradix instead of Floravital - the former has gluten in it, but the latter none).  But I would say even very little iron from an approved source made my stomach sore, I think it can be quite irritating. Perhaps that is an issue for you? Oats (the gluten-free pure ones) were an issue for many years (now fine).   Even though my endoscopy findings did not reflect any problems with healing, or any other issues, I self-diagnosed myself with gastritis as it seemed the feeling of nausea and in my case burning in the stomach pointed to it.  I went onto a gastritis/reflux diet and that really helped.   Have a google - there are tonnes online.  That meant avoiding spicy, greasy food, onions, tomatoes, coffee and alcohol.  (Actually, I don't drink, but I did toast someone during that time at a baptism and it set my stomach on fire.)   Instead of drinking strong coffee, I drank water, camomile tea, warm ginger water... so soothing.  I would not go to bed with a full stomach when things were bad, I would let my stomach rest from say 8pm to 8am, which really helped.   My husband and I then decided to buy a new oven and to buy a new dishwasher - we did need new ones anyway.  The new oven had two compartments, gluten goes in one, gluten free in the other.  The new dishwasher was a Miele which does a full rinse with clean water before washing the dishes.  But before I could afford a new dishwasher I would hand wash the dishes and make sure they were really rinsed well, no residue  (unlike our old dishwasher that was really not rinsing well at all). I stopped eating out for quite a few years - I think this is a biggy - although I would have coffee and soft drinks out. Eventually, my levels normalised.  What of the above was the 'silver bullet'?  I am not sure, but finally I did feel a lot better.  Occasionally I will take an over the counter PPI (omeprazole) or a small dose of Gaviscon, but most of the time I don't need them now. I'm not expecting anyone to go to all these lengths, but it could be that one or two of the tips I give you might work.  Don't give up hope! Cristiana
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