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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- dixonpete commented on dixonpete's blog entry in Pete Dixon1I started another couple of jars today
Day 2, the day after incubation, I found 1 inactive larvae after sampling both jars. By sampling I mean inspecting about 15 mls of water extracted from each jar. Day 3, nothing. Day 4, I saw one larva in each jar. Day 5, I estimate there were 15–20 larvae in each jar. Enough to inoculate. So I guess that's the answer. 5 days. Waiting l... -
- trents replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Trying to read my lab results
You have three celiac disease specific antibody tests that are positive: Endomysial Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual... -
- Bayb posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Trying to read my lab results
Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac? Endomysial Antibody IgAPositive Ft-Transglutaminase (tTG) IgA6 H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG... -
- Aussienae replied to Aussienae's topic in Coping with Celiac Disease63Constant low back, abdominal and pelvic pain!
Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse. Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and...- abdominal pain
- celiac
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- ButWhatCanIEat replied to Aussienae's topic in Coping with Celiac Disease63Constant low back, abdominal and pelvic pain!
Good morning, I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having...- abdominal pain
- celiac
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Posts
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You have three celiac disease specific antibody tests that are positive: Endomysial Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease. Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:
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Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac? Endomysial Antibody IgAPositive Ft-Transglutaminase (tTG) IgA6 H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55 L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183 H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
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Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse. Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
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By ButWhatCanIEat · Posted
Good morning, I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now! -
So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
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