Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gi Doc Noticed My Low Total Serum Iga....


MoMof2Boyz

Recommended Posts

MoMof2Boyz Enthusiast

so he said even though I tested negative, and with a negative biopsy, to go ahead and avoid gluten, corn, soy and potatoes!  I was going to bring up the low IgA but he brought it up first!  I am having trouble swallowing food and pills again, so because of the low Iga, he wants to do an immune electrophoresis, which I guess will check IgM, IgG and IgE to see if there's some kind of reaction going on. Has anyone had this done because of low IgA? what were your results?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

To my understanding, if you have a low total IGA, they move to IgG for the testing.

MoMof2Boyz Enthusiast

Hi , yes I know, but he didn't say they would do another celiac panel using IgG and also basically said I am negative case closed on that. He just said test for immune electrophoresis.hm.

 
mushroom Proficient

Interesting.  I just looked up immunoelectrophoresis. 

 

Open Original Shared Link

Normal results
Reference ranges vary from laboratory to laboratory and depend upon the method used. For adults, normal values are usually found within the following ranges (1 mg = approximately 0.000035 oz. and 1 dL = approximately 0.33 oz.):

    IgM: 60-290 mg/dL
    IgG: 700-1,800 mg/dL
    IgA: 70-440 mg/dL

 

I wonder what he intends to do with this information??

MoMof2Boyz Enthusiast

I have no idea. My test is tomorrow and I"m sure it will probably take 7-10 days to get the results.  I will post back when I get it.

beachbirdie Contributor

I don't want you to be frightened but since you asked the immunoelectrophoresis is used to look for a number of conditions some of which are more benign than others.  Your doc is being more proactive than most, and looking to make sure there is not something serious that might escape notice.  Here is a run-down from Open Original Shared Link:

 

Why Is the Test Ordered?

 

To Confirm a Diagnosis

 

The immunoelectrophoresis-serum (IEP-serum) test is ordered to help
diagnose an underlying health condition. Your doctor may order the test
if abnormal results have been detected through other laboratory tests.
The IEP-serum test may be ordered if you show symptoms of:

 

  • a chronic infection

  • an autoimmune disease

  • a protein-losing disease, such as enteropathy (a disease of the intestines) or inflammatory bowel disease

  • Waldenström’s macroglobulinemia

 

The test can be used to rule out conditions such as leukemia and multiple myeloma. Symptoms of these disorders include:

 

  • weakness and fatigue

  • weight loss

  • broken bones

  • recurrent infections

  • weakness in the legs

  • nausea/vomiting

foam Apprentice

I've had this test. It shows up a lot of things and helps you rule out some things, I have eosinophil inflammation caused by gluten damage and a leaky gut, this test showed the reason why when it came back with very high IgE levels. My IgA and IgG are within range I believe but my IgM was a little high (not much) my IgE was 4100!. I will post back my results when my wife comes home as my paperwork is in the car. 4100 was something like 40x over the normal limit and helped both with understanding the eosinophil level, the gut pain and pointed us in the right direction to diagnose Kimuras disease which I also have :S!. Without this test I would still be very much in the dark about what to do about it. The test takes a week to come back but if there's a major anomaly like with mine they will do some more work on it to double check and it might take two weeks.

 

If they find something weird in the Ig levels they might then send you to an immunologist for more in depth testing of the Interleukin levels or something like that. If the IgE levels are high you will go to an Allergist first maybe... I'd say skip him and find someone that does both if it comes to that (but it probably wont)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MoMof2Boyz Enthusiast

Thanks! foam, did you have to fast for this test?  I was told to fast but can't seem to find anything on the 'net saying so.

foam Apprentice

Um I don't think I had to fast, but I had lots of blood tests drawn that day and I had to fast for some so I was fasting for them all :).

 

Here's my results anyway, seems I got confused in my earlier post it was the IgA that was a little high but the IgE is the crazy one for me.

 

In the brackets are healthy reference ranges. Bold are those results out of range.

 

Serum Immunoglobulins

IgG: 14.7 g/L (5.2-16.0)

IgA: 3.62 g/L (.85-3.50)

IgM: 2.09 g/L (.32-3.00)

 

IgE is a separate test here but was ordered with this one

Serum Immunoglobulin E : 4105 kU/L (0-200)

 

IgE is the one that gets pumped when you have a leaky gut and also for my Kimura's disease, which causes what is debatable :) but I think I'm being sensible in leaning towards the gut. On another not related note I've managed to hold my Vitamin D over 100 all summer without supplements  I'll have to get back on them soon, just something I'm proud of :P because it was a big effort to get it up to 100.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.