Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cd & Itching


Judyin Philly

Recommended Posts

Judyin Philly Enthusiast

HI

Just joined 2 days ago and have been looking at the subjects and posts. This is the first time I've sent a post so forgive any mistakes---

I was dx'd with celiac disease 11 weeks ago and have been 100% gluten free to the best of my knowlege...Loosing weight like crazy and I've been fighting this battle for years so I'm very encouraged however; July 31 dx'd with UTI and put on Cipro ( have alot of drug allergies) for 10 days. Didn't seem to go totally away so went on doxy for 3 days and then ended up in ER with hives and trouble breathing. Was it the cipro or doxy WHO KNOWS. ER Doc. gave me some antihistimine and predizone which makes me a crazy lady...can't sleep. Now it seems I itch all the time....question...still gluten free...can antibiotics screw up the diet. The cipro was on the 'gluten free drug list' Any help will be totally appreciated.

Has anyone had itching with celiac disease even with compliance" Don't have the symptoms that the dermatology term they use here in the topics...just the itching...Now I'll have to figure out how I can read the answers you all might give me! Thanks for you time.

Judyin philly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Claire Collaborator
HI

Has anyone had itching with celiac disease even with compliance" Don't have the symptoms that the dermatology term they use here in the topics...just the itching...Now I'll have to figure out how I can read the answers you all might give me! Thanks for you time.

Judyin philly

<{POST_SNAPBACK}>

My most recognizeable symptom of gluten is itching (no rash) and cold chills. Claire

judy05 Apprentice
My most recognizeable symptom of gluten is itching (no rash) and cold chills.  Claire

<{POST_SNAPBACK}>

I have a lot of itching, I had to change my soap to Dove and my shampoo to Garnier Fructis. I used to use Nexxus but it has wheat in it. My back still itches, don't know why (no rash). It could be your soap or skin lotions. I was on Doxy for 10 days, couldn't find out if it was gluten-free but the skin started to peel on my fingers, a sure sign that I got some Gluten! Hope this helps...

Judyin Philly Enthusiast
I have a lot of itching, I had to change my soap to Dove and my shampoo to Garnier Fructis. I used to use Nexxus but it has wheat in it. My back still itches, don't know why (no rash). It could be your soap or skin lotions. I was on Doxy for 10 days, couldn't find out if it was gluten-free but the skin started to peel on my fingers, a sure sign that I got some Gluten! Hope this helps...

<{POST_SNAPBACK}>

JUDI42MIL Apprentice

I personally would blame the cipro. I hate that drug. Too many I know have reacted bad from it. From what I understand it is way too strong for most and shouldnt be given so easily.

I wound up in hosp from it for days, it wiped out all the good bacteria in me.

My boss almost was given a trach from it-- breathing problems.

my daughters boyfriends grand dad died after taking it and it wiped out all his good bacteria, he was unable to fight it.

jenvan Collaborator

OOOOOO-I also would be likely to blame the Cipro. I took it once and had a terrible allergic reaction--terrible hives and itching, and had to go to the emergency room as well, steriods etc. Cipro causes allergic reactions in a lot of people. Be careful to not take any sulfa drugs either--I had an idiot doctor give me some and I reacted...they are related to Cipro and if you have probs with it, you will have issues with sulfa drugs. Also--watch out for Celebrex--also sulfa related. Hope the itching goes away soon!

Judyin Philly Enthusiast

WOW, thanks for all the info on Cipro. The dr's want me on doxy now for two weeks. the Watson manufacture I called said it was gluten-free but I don't trust any of it now.

I am learning so much from all you!

Judy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Billygoat Apprentice
I personally would blame the cipro. I hate that drug. Too many I know have reacted bad from it. From what I understand it is way too strong for most and shouldnt be given so easily.

<{POST_SNAPBACK}>

Be careful to not take any sulfa drugs either--I had an idiot doctor give me some and I reacted...they are related to Cipro and if you have probs with it, you will have issues with sulfa drugs.

I think I might have to disagree here. (Hate going against the tides. :( ) But Cipro does not have sulfa in it and it is not related to sulfa drugs other than it's an antibiotic. Most doctors give this to patients that have an allergy to sulfa drugs, because it IS that safe. And it is gluten-free. Is there a possibility that you took the generic version that might not be gluten-free? I ask because at one time, my pharmacy gave me generic even if I didn't ask for it because I got a larger discount with my insurance. They're just trying to save me money, but I had to inform them of my gluten-intolerance. Now they help me by checking with the manufacturer for me before I even pick up the script.

gluten-free but the skin started to peel on my fingers, a sure sign that I got some Gluten!

This is one of my first signals as well. Strange peeling too. Little circles of skin peeling off like I had blisters there. But I never have the blisters or any itchiness at all. Just peeling skin. Strange.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,311
    • Most Online (within 30 mins)
      7,748

    EMP6543
    Newest Member
    EMP6543
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.