Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Common Variable Immune Disorder

NorthernElf

Recommended Posts

NorthernElf Enthusiast
NorthernElf
Posted

CVID

 

I have been trying to figure out for 2 years why I hurt, why I am so tired - lots of ups & downs. Sometimes I'm fine, sometimes joints hurt a little (mostly wrists/hands/elbows...then also knees/ankles/feet), sometimes I am in agony. I have seen two different rheumatologists, had an MS scare, had a ton of blood work & astounded my doctor. Within the last year I have had pneumonia confirmed by xray once, been treated for it two more times after that.

 

Last week another round of bloodwork showed low IgG...just completed more bloodwork Friday to measure other Ig levels. Getting a referral to a rare blood disorder clinic. It lookds like CVID because of the joint pain (which bloodwork would confirm if IgA and IgM are low).

 

Finally some answers!

 

Anyway - anyone else heard of this, have this ?

 

Autoimmune....related to celiac ? Doesn't help that I am undiagnosed celiac (ie. don't have a positive test to show on paper)...I have been gluten-free for 11 years after a wicked virus.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

I had to look it up.

Open Original Shared Link

I don't have it but those symptoms really do sound a fair bit like celiac doesn't it? (I do have a related condition (low platelets) and many of those symptoms myself but I know I am not low in IgA.) I hope you find some answers in this, good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,477
    • Most Online (within 30 mins)
      7,748
    HelenIndee
    Newest Member
    HelenIndee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Refractory Coeliac Disease research to reduce anxiety

      By RMJ · Posted

      Is there a minimum time since diagnosis of refractory celiac disease?  I really hope I’m not eligible for your study, but looking for it is one reason my gastroenterologist suggested an endoscopy. I’m having it later this month, due to still having GI symptoms on a strict gluten free diet.
    • xxnonamexx
      Juice shots? Anti inflammatory

      By xxnonamexx · Posted

      There's a company called thistle subscription based food completely gluten free plant based. They offer juices, juice shots. I was wondering has anyone made their own juices shots for anti inflammatory gut healthy juices etc? 
    • xxnonamexx
      Contamination symptoms?

      By xxnonamexx · Posted

      If you prepare gluten free and eat  gluten free but feel stomach pains hours later what makes it gluten contamination vs. something else you may have ate etc? anything to differentiate in symptoms? Thanks
    • MelissaClinPsyD
      Refractory Coeliac Disease research to reduce anxiety

      By MelissaClinPsyD · Posted

      Anyone diagnosed with Refractory Coeliac Disease can participate (they do not need to be in the UK but would need to be able to speak and understand English as the intervention is facilitated in English language)
    • Scott Adams
      Refractory Coeliac Disease research to reduce anxiety

      By Scott Adams · Posted

      Is this only for those in the UK, or can anyone diagnosed with celiac disease participate?
×
×
  • Create New...