Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tummy Ache After Quinoa - Other Non-Grain Subs?


archaeo in FL

Recommended Posts

archaeo in FL Apprentice

After a little searching online, I'm finding that I'm not alone in loving quinoa but not how it makes me feel. I know it is a safe grain, and my reactions aren't like my Celiac reactions (Celiac involves alternating d and c, severe fatigue, brain fog; after quinoa, it's stomach and upper GI pain, pretty acid feeling, and I almost never get an acid stomach).

 

It appears that some folks simply don't do well with this item, whether it is cleaned or not. (Quinoa has to be cleaned to remove saponin, a natural compound produced by the plant apparently for protection - it is supposed to be washed away via a thorough rinsing of the quinoa before cooking.)

 

Anyone else have bad reactions to quinoa?

 

What other non-grains or safe grains do you use as you would quinoa, couscous, barley, etc.?

 

(For those who don't have any reactions, it's great! Do be aware that it has become a little controversial, though, not for its healthiness but for the impact it rapidly growing popularity has had on the places and communities that grow it.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

Buckwheat groats?

SensitiveMe Rookie

Organic roasted buckwheat groats (also known as Kasha). My box here is by a company called Pocono. There are instructions on the back of the box with basic directions and a recipe for Kasha Pilaf. And it also says Kasha can be added to soups, casseroles, stuffings, and other recipes.

 

I also love quinoa but mostly for now I just eat the quinoa flakes as a hot cereal. They are supposed to be easily digestible and don't need to be rinsed. I add maple syrup to it and usually have it once a day. And I will just be heartbroken if I ever react to it as it is one of the few things I can tolerate not being able to have wheat, oats, corn, soy and lactose. My daughter tried to tell me a few times about some people having reactions to it because I mentioned to her that it is my superfood. Then she said there is no such thing as a superfood and I said I pity the fool who tries to take my quinoa away. So she doesn't mention anything to me about quinoa anymore. :)

 

I did try quinoa flour making the recipe on the box for banana quinoa muffins but I didn't care for them as they seemed to have a dry and almost burnt quality to them. And then I did try adding quinoa flour to my glutenfree bread recipe and I found the same almost burnt quality about it. So as far as that goes I am not that impressed by using the flour.

archaeo in FL Apprentice

SensitiveMe and JNBunnie1, thanks for the response! I have a taste issue with buckwheat - it tastes like plastic to me. I've heard other people say some people think it tastes soapy, but I think maybe my palate is funny (I also don't like cilantro, which some people think tastes like soap, but just triggers my gag reflex - yuck!). I've hard the untoasted buckwheat groats have a less strong taste, but I've only tried them once and that recipe wasn't a winner.

 

I'm so glad you can continue to eat quinoa - it certainly seems well known as a "superfood" and I don't think there's any harm in using the term, especially when it describes a food that is delicious, easy, and nutritious!

 

Apparently I may do ok if I cut it out of my diet and slowly reintroduce it again (but I'll be sure to rinse it, in case that's what got me before), and I do periodically have some gluten-free cereal with quinoa and lots of other grain alternatives in it.

 

Also, I don't have the recipe, but a friend mentioned that she'd made gluten-free cupcakes with cooked quinoa that turned out really really well - might be worth a search!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,470
    • Most Online (within 30 mins)
      7,748

    Elkay008
    Newest Member
    Elkay008
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.