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Do I Have Celiac Disease...or Is It Just Gluten Sensitivity


ArianG

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ArianG Newbie

I am currently 19 years old. I live a pretty normal life but my stomach has been distended for quite some time. My stomach sticks out as if I was a pregnant female and its been like this since an early age. It has caused me some anxiety problems and has even gotten me on medication which I am now tapering off. I work out 4-5 times a week at a local gym nearby my house and i am in complete good shape everything is fit and fine.. everything except my stomach. I have gotten an endoscopy and a colonoscopy and the results were that i had chronic gastritis. I was given a list of foods to eat and not to eat but that didnt really seem to work.. or maybe i didnt follow it right? But i am still concerned and would like to ask if they could find out if i have celiac disease or gluten sensitivity through these two tests? my stomach extends out alot I dont have much pains and no diarrhea or any of the many symptoms im just gassy and my stomach is really out there. I appreciate any responses and would love to receive some help. Thank you.

  • 1 month later...

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beeluxi Newbie

Maybe try removing gluten from your diet and see how you react? If you find any relief it would be worth it. Plus I think you should mention your concern to your doctor. It couldn't hurt. Hope you feel better soon! :)

GFinDC Veteran

Hi Arian,

 

If you can get the blood antibodie tests done you should do that before trying the gluten-free diet.  The blood test are a simple procedure but you may have to wait a few weeks for the results.

Deaminated Marcus Apprentice

Hi Arian,

Maybe you should ask your doctor to send you for an abdominal ultrasound.

I hope you find the cause. 

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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