Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Exasperated By Daily Nausea And Migrains

Ciel121

By Ciel121
in Coping with Celiac Disease

Recommended Posts

Ciel121 Apprentice
Ciel121
Posted

Hi All,

  I was diagnosed 4 years ago and was doing well until about a few months ago. It seems to be getting progressively worse. I feel nausea all the time and get migrains. I'm thinking I'm getting contaminated with something, so I started from scratch and went through my supplements, sauces and spices and I did find that some spices were probably contaminated. I also started (gluten-free) raspberry ketones and that did not go well since they seemed to contribute to my stomach pain.  I made an appointment at the Celiac Center at Columbia, but that's not till June.

  I'm also on a tight budget and feel really alone. People don't seem to belive me that this is a real illness or are rude to me when I tell them I have Celiac disease. Checking everything and being paranoid about food all the time makes me feel like a lunatic and sometimes I mess up and get contaminated like I have this week. No one gets my symptoms. My dad has it too, but I can't relate to him. I joined a Celiac support group and the meeting is May 1st, but wow this illness is so alienating and after 4 years it really gets to be a bit much. I don't know how to re-invigorate myself to keep going and maintain my gluten-free diet truly gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

I suggest starting a food log now, and take it to your appointment. In the interim, you may notice a certain food causes an issue - not unusual for Celiacs to develop another intolerance.

Personally, I've had bad headaches with accompanying nausea this spring. Allergies are terrible here this year and I'm taking so much med I get dehydrated which leads to bad headaches. If I don't take antihistimines I get headaches from the allergies...anyway, just a reminder it may not be gluten but something else. Have you been tested for other autoimmune diseases in the past year?

Ciel121 Apprentice
Ciel121
Posted
  • Author

I suggest starting a food log now, and take it to your appointment. In the interim, you may notice a certain food causes an issue - not unusual for Celiacs to develop another intolerance.

Personally, I've had bad headaches with accompanying nausea this spring. Allergies are terrible here this year and I'm taking so much med I get dehydrated which leads to bad headaches. If I don't take antihistimines I get headaches from the allergies...anyway, just a reminder it may not be gluten but something else. Have you been tested for other autoimmune diseases in the past year?

Thanks so much. Yet I do know that I only get nausea and migrains from gluten although I know the raspberry ketones did upset my stomach, which didn't help. I had allergies before getting a diagnosis, but they are gone now. But I guess I really want to find more Celiac friends. Other people just don't understand. I'm still shocked after 4 years of being gluten-free just how challenging this lifestyle is and it is heartbreaking that I can't go to any restaurants at all with friends and try different foods. Every time I travel it is a disaster and I get sick. On may 1st I will be attending a Celiac  support group with a lecture on how to travel safely--and I'm extremely skeptical that this is possible at all. All I can think about is that the government needs to step in and regulate labeling of foods and restaurants to cater to Celiacs. It's so wrong that we are so isolated over food.

Brandiwine Contributor
Brandiwine
Posted

I get those symptoms with CC and emotional issues too, I feel lonely and weepy. We could all use good friends through this it is very very stressful and alienating! I can't find any support groups in my area, none if the restaurants in my town are safe and I know no one with this disease, I understand where your coming from... Hang in there and keep coming back to this forum it's the only thing getting me thru right now :-/

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Travel is possible, but does require planning. Lots of us here enjoy travel. At the moment, I take most things with me.

Let us know how you get on at your meeting, and we can help you fill any gaps.

This forum is a great start for finding people who understand. There is always chat going on in what's for dinner tonight chat and ticke me elbow in GAB. We are very friendly :)

Your normal is a lot like our normal. Hanging out here makes me feel I am not alone, whinging or mad, and has made it easier to have confidence in standing up for myself, without needing to argue.

Good luck

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.