Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Of Being Gluten Free With Result In Negative Tests?

taynichaf

Recommended Posts

taynichaf Contributor
taynichaf
Posted

I'm not sure if that wording was right..Lol. But anyways, does anyone know about how long it takes to get a negative test result?? I know no one probably knows for sure... But i'm just wondering from anyones expiriences or maybe someone who just knows a lot about this?...

 

Since the beggining of the year I was following a really clean diet with just a few slips here and there. Then I tried low fat and high carb on and off, and then strictly for about 2 weeks. Then I had a carb binge and a week of eating bread with constant stomach pains(which led me to celiac) I tried a few days gluten free but I went back on it for about a week to get tested. After my negative tests I quit eating it for a week and then started eating it again for a new test within a week. How accurate would you think the results would be? My doc will probably get me an endoscopy and im hoping to be on a gluten full diet for at least 6 weeks before the biopsy.. I hope thats enough, since I've never been strictly gluten free for that long of a time period?.

 

Lol, sorry, I'm just very frustrated witht his and have so many questions :)

 

Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

I think the time required to get a negative test result can really vary. I've heard just a few weeks to up to a few years for the autoantibodies to stop production.... Thats not helpful is it.  LOL  Hopefully someone else can give you more advice.  :)

 

Could you repeat the blood tests in 6 weeks when the endoscopy is done?  6 weeks of gluten would most likely give more accurate results.

 

Best wishes.

GFinDC Veteran
GFinDC
Posted

Nobody can tell you for sure.  Some of the tests seem to be sensitive to the amount of damage in the gut.  So if you don't have much damage yet it may not show up on the test.  Celiac disease testing is not a perfect thing at all.  Positive test results are pretty darn reliable.  Negative results are not so reliable.  After all the testing is done, it is best to go ahead and do the gluten-free diet for a good 3 months trial.  Write down your symptoms an dhow you feel before starting and compare them after 3 months.  That may give you a better answer than any medical test you can buy.

taynichaf Contributor
taynichaf
Posted
  • Author

Thanks <3

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,590
    • Most Online (within 30 mins)
      7,748
    uhlissuh
    Newest Member
    uhlissuh
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.