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Possible Celiac Diagnosis

aoife17

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aoife17 Newbie
aoife17
Posted

Hi, for over 2 years I have had random pains in my legs, joints and arms. I have also suffered from excessive bloating, which has gradually got worse to the extent I can't even drink a small glass of coke anymore. I did a blood test and it came back with low calcium, when I repeated it came back normal. The doctor believed I had sciatica. But I continued to have the symptoms which had progressed to tiredness, dry skin and occassional stomach ache. In my 3rd blood test I demanded a celiac one, it came back saying I didn't have celiac but this time it was low in iron. I now get stomach pains when ever I eat something containing a lot of gluten, I am unsure if it is a subconscious thing. For example I had a baguette recently and felt ill all night, and I hadn't been thinking it contained gluten. Then I had a packet of crisps that contained gluten and I felt fine. 

 

My grandfather had celiac's disease, I was wondering if anyone thinks it is possible I could have it when the blood test said I didn't?

 

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notme Experienced
notme
Posted

my blood test(s) came back negative, but i was already eating gluten-free.  i understand that false negatives are pretty common.  my doc did an endoscopy anyway and that's how i got diagnosed as having celiac disease.  they also tested many other things, as well, to be sure to rule out any other diseases.  my vitamin levels were wacky, too.   

bartfull Rising Star
bartfull
Posted

Celiac runs in families. There are a bunch of different tests. Can you post here what the test was that you had? There are several that should all be run, and of course as notme said, a biopsy is considered the gold standard. But you have to make sure you have a good doctor! Some of them only take one or two samples and they miss the damaged part.

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

If your grandfather had it then that is a big red flashing light with a big horn going off type of warning. 

psawyer Proficient
psawyer
Posted

If your grandfather had it then that is a big red flashing light with a big horn going off type of warning.

Well, maybe. You inherited 25% of your genes from your grandfather. About 33% of the American population have at least one gene associated with celiac disease. About 1% actually have celiac disease. It is an indicator that you should consider, but don't lead a parade down main street about it.  :o

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      Supplements for those Diagnosed with Celiac Disease

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      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
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    • nanny marley
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      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
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      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
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