Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Both Kids With Celiacs

kkcg2736

Recommended Posts

kkcg2736 Newbie
kkcg2736
Posted

I have 2 children and very new to this.  My daughter was diagnosed with Celiacs after a very long bout with fatigue, stomach aches, urgency to go to the bathroom, and anemia.  As she tested positive (blood and endo). My son had the bloodwork done and he had very high levels, so it's assumed he has it as well.  He was experiencing differnt symptoms of headaches, joint/muscle pain, constipation and stomaches.  They are 6 and 7.

 

My son is still complining of headaches and muscle pain..and both have belly discomfort a few times a week.  I did get a new toaster, very carefully about cross contamination but have not replaced pots/pans/plastic kitchen wear.  Do you think I have hidden gluten in my kitchen?

 

Seems ice cream is bothing my son as well, but the labels do not contain gluten ingrediants, can I trust foods/labels that are not gluten-free certified?  Can Lactose cause stomach aches?

 

All input in welcome and appreciated.  Thank you

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted

Many people find they have difficulties with dairy after going gluten-free so that could be the issue. It could be cross contamination as well.  What about mayo or butter containers? Have those all been replaced?  

 

How long have they been gluten-free?
 

 

As for trusting "gluten free" labels, that term is not regulated in the US so anyone can say they are gluten-free but don't need to actually test for it.  Some companies are better about it than others.

bartfull Rising Star
bartfull
Posted

You need to read the Newbie 101 thread, plus as many other threads here as possible. There are many places that gluten can hide and even though it's hard to believe at first, just the tinyest bit of gluten can cause damage.

 

Also, be aware that if the kids have it, both you and your husband should be tested. There is a very good chance that they inherited it from one of you.

 

Ask lots of questions. We're here to help. :)

cyclinglady Grand Master
cyclinglady
Posted

I have 2 children and very new to this.  My daughter was diagnosed with Celiacs after a very long bout with fatigue, stomach aches, urgency to go to the bathroom, and anemia.  As she tested positive (blood and endo). My son had the bloodwork done and he had very high levels, so it's assumed he has it as well.  He was experiencing differnt symptoms of headaches, joint/muscle pain, constipation and stomaches.  They are 6 and 7.

 

My son is still complining of headaches and muscle pain..and both have belly discomfort a few times a week.  I did get a new toaster, very carefully about cross contamination but have not replaced pots/pans/plastic kitchen wear.  Do you think I have hidden gluten in my kitchen?

 

Seems ice cream is bothing my son as well, but the labels do not contain gluten ingrediants, can I trust foods/labels that are not gluten-free certified?  Can Lactose cause stomach aches?

 

All input in welcome and appreciated.  Thank you

I agree about the Newbie 101 thread!  My celiac disease was symptom free other than having thryoiditis and anemia.  No intestinal issues at all until I glutened out prior to my getting scoped.  My husband has been gluten-free for 12 years, so with my recent diagnosis, I made my house as gluten-free as possible!   It's much easier on all of us (a 12 yr. old daughter) and since your children are so young, there will be less chance of them consuming gluten.  If you and your husband want to eat gluten (then do it on your date night), but chances are one of you may have celiac disease and your health might improve as well.  

 

I'd give up the dairy for now until there's some healing.  Or your son could be like me and just be allergic to milk proteins.  

 

Good luck!

kkcg2736 Newbie
kkcg2736
Posted
  • Author

They have been gluten free for about 6 weeks, my daughter a week before my son. 

 

We were all tested and my husband and I tested negative!?

 

I will go to the newbie 101, thank you.

 

I try some lactose free ice cream with him and see if that helps.

 

Many thanks to all!

StephanieL Enthusiast
StephanieL
Posted

It's pretty early in the game so it really could be anything. It does take some time for things to be 100% better.  I would just keep an eye on things like condiments, shared counters and stuff like that as well.

It can be overwhelming at first for sure so be gentile with yourself! It's a big adjustment for sure.  A new toaster was 100% the right things to do.  If you aren't going to make the whole house gluten-free, it may be to your advantage to make at least one counter gluten-free. That was what we did before we went virtually gluten-free (DH and  I have a snack cabinet that we have some crackers and stuff in but we don't have bread or anything anymore).  If you can spare the area it really did free up my comfort zone when I was doing meal prep.

 

Glad you and your DH were tested. It's been almost 3 years here and my DH has not gotten tested cause he's an idiot. I strongly suspect that it was from HIS side of the family as they have many many of the S&S of Celiac but of course if he won't get tested, no one on that side will. 

 

We're here to help if we can.  Hopefully you will figure out what's up and everyone will be feeling well ASAP!

nvsmom Community Regular
nvsmom
Posted

Glad you and your DH were tested. It's been almost 3 years here and my DH has not gotten tested cause he's an idiot. 

:lol:

 

If the kids continue to have stomach issues while consuming lactose free dairy, you might even want to drop all dairy for a few months. It won't hurt them it will just be a habit to break.

 

And I agree that there is a good chance of cc in your home unless you are very careful. Old sugar containers that may have been double dipped with wheat flour, baking soda or powder, some spices, cocoa, jam, peanut butter, condiments, cutting boards, spatulas should all be double checked for possibility of cc. Gluten can lurk in unexpected spots.  :ph34r: Don't forget to check ingredients on stuff like condiments, soy sauce, worchestershire sauce and others.

 

The classic symptoms of celiac disease that your daughter has seem to often clear up first. The more atypical symptoms like that of your son tend to linger in many people - I am still having problems with some of it almost a year later - so he may be forced to endure his symptoms a bit longer unfortunately (this is from my own observations). Hopeful his youth will act in his favour and he'll have a speedy recovery.

 

Welcome to the board.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kkcg2736 Newbie
kkcg2736
Posted
  • Author

Thank you everyone!

 

We have moved the gluten-free foods to one cupboard so the kids know that all of this is gluten-free, enjoy.  My husband's Pringles and Pretzel stash is in a higher cupboard they can not reach.  That stuff is only brought out when they are not home or asleep - we'd feel guilty chowing gluten in front of them.

 

Today I purchased new spatulas, wooden spoons, colander, cutting board, tupperware, pizza cutter and rolling pin.  Do I have to replace my cookie sheets and baking pans, metal and VERY used?  Will baking with Parchment paper work so the food does not touch the sheet?  The wheat flour is gone and I did dump the sugar.  My condiments are all of the squeezable variety, which they do not like anyhow.  Ranch dressing they do like and now Annie's cowgirl ranch is only available.

 

What I need is a fantastic sandwich bread.  I've attempted "gluten-free on a Shoestring" sandwich bread recipe but it hasn't turned out great yet.  My son was a diehard PB&J kid.  Any recommendations?

nvsmom Community Regular
nvsmom
Posted

Udi's is the best we can find but even then, they prefer it as toast.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.