Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tips For Going Gluten Free?

taynichaf

Recommended Posts

taynichaf Contributor
taynichaf
Posted

My blood tests were negative for celiac, but I have an endoscopy this friday(FINALLY), and starting then I'm going to be eating gluten free! Celiac or not, I know i have a gluten problem...

 

So does anyone have any advise for me?? I'm an 18 year old girl living with my parents and starting college very soon :)

 

Also, its very difficult living with my mom when she doesnt support me with this... She seems to believe that none of my problems are gluten related and that im a hypochondirac... I have been seeing a therapist for my depression/anxiety and she is so EXCITED for me to stop eating gluten again! She is like urging me to do it. She notices a HUGE different, and it just kinda hurts that my mom doesnt..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

Have you read the "Newbie 101" thread?

kareng Grand Master
kareng
Posted

https://www.celiac.com/forums/topic/91878-newbie-info-101/

Maybe your mom could go to a therapy session with you?

taynichaf Contributor
taynichaf
Posted
  • Author

Didnt know about that thread, thanks! And thats a good idea, I never thought of it but I think that would be very beneficial! Thanks again :)

1desperateladysaved Proficient
1desperateladysaved
Posted

My blood tests were negative for celiac, but I have an endoscopy this friday(FINALLY), and starting then I'm going to be eating gluten free! Celiac or not, I know i have a gluten problem...

 

So does anyone have any advise for me?? I'm an 18 year old girl living with my parents and starting college very soon :)

 

Also, its very difficult living with my mom when she doesnt support me with this... She seems to believe that none of my problems are gluten related and that im a hypochondirac... I have been seeing a therapist for my depression/anxiety and she is so EXCITED for me to stop eating gluten again! She is like urging me to do it. She notices a HUGE different, and it just kinda hurts that my mom doesnt..

 

 

You have quite a challenge with an unsupportive mother.  I hope things will get better.  Can you understand how difficult some of the symptoms are to see? (brain fog?  fatigue?)  My mother use to tell me that, "I can't tell how you feel."  It is when people can see you feel different, by your behavior, that the light begins to dawn in their heads.  First you need to avoid gluten and get better.  That could be difficult.  Are you staying at home during college?  I hope you will be able to set up your own kitchen stuff somehow.  Many of us start the journey with not many others on board completely.  You have the forum to ask questions and it will help.

 

I can feel about having mother troubles regarding diet. My mother almost won't talk to me. I don't live at her house though.  She hasn't failed to notice I can't eat the food she makes.   I also am a mother struggling to get my young adult children to see they have gluten trouble too!.  These conflicts are a hard part of life....For sure, when one is young, or older these are a hard, but normal part of life.  On the forum we see these struggles all the time.  It was one thing that impressed me at first.  I and my family were struggling with the same problems as others on the forum.

 

I am hoping that you will have enough help, but being 18 you are ready to fly!  You will be gluten free soon.  I want you to be helped by the diet..

 

Diana

 

taynichaf Contributor
taynichaf
Posted
  • Author

You have quite a challenge with an unsupportive mother.  I hope things will get better.  Can you understand how difficult some of the symptoms are to see? (brain fog?  fatigue?)  My mother use to tell me that, "I can't tell how you feel."  It is when people can see you feel different, by your behavior, that the light begins to dawn in their heads.  First you need to avoid gluten and get better.  That could be difficult.  Are you staying at home during college?  I hope you will be able to set up your own kitchen stuff somehow.  Many of us start the journey with not many others on board completely.  You have the forum to ask questions and it will help.

 

I can feel about having mother troubles regarding diet. My mother almost won't talk to me. I don't live at her house though.  She hasn't failed to notice I can't eat the food she makes.   I also am a mother struggling to get my young adult children to see they have gluten trouble too!.  These conflicts are a hard part of life....For sure, when one is young, or older these are a hard, but normal part of life.  On the forum we see these struggles all the time.  It was one thing that impressed me at first.  I and my family were struggling with the same problems as others on the forum.

 

I am hoping that you will have enough help, but being 18 you are ready to fly!  You will be gluten free soon.  I want you to be helped by the diet..

 

Diana

 

For some reason this almost made me cry... gluten also makes me overly emotional, lol. But I will be staying at home for college, so thats somewhat good... And atleast my dad supports me with this, although I do not live with him anymore :( Good to know he understands at least. And I know, I hope my mom will be able to see the changes that happen in me but shes stubborn, and i dont think she ever will.... She says a lot of things that make me believe that she just really doesnt want me to have some sort of gluten intolerance.. like shes jealous I found this out so soon i guess?? I might add, she became interested in gluten intolerances and was reading a book i bought on it.. She decided to go gluten free but it only lasted a week or two... she doesnt have the self control with food that i do! I really wish she would stop eating gluten though, as she has many symptoms too, but they are mainly neurological...

 

Thank youuuuu! I am so excited to finally start living, and to find the person that I used to be! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748
    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.