Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Think Celiac Disease Is Likely With The Family History I Have?


taynichaf

Recommended Posts

taynichaf Contributor

Sorry... Once again I am very frustrated about this! My blood tests came back negative and I just had an endoscopy yesterday and am just waiting for the results...

 

I feel like family history on my moms side could indicate celiac...

 

My great grandmother died of multiple myloma.

My grandma has been going to the doctor for a reoccurring rash on her bottom, but her tests were negative... She got a referral to a GI but now canceled her appointments..

My mom had lupus

And now I got diagnosed with a hiatal hernia and GERD from my endoscopy..

 

We all have a history of anxiety and depression.. I'm trying to be patient but the closer I get the harder it issss!

 

So, all I'm asking is, Do you think all of these family problems could be related to celiac disease??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Sorry... Once again I am very frustrated about this! My blood tests came back negative and I just had an endoscopy yesterday and am just waiting for the results...

 

I feel like family history on my moms side could indicate celiac...

 

My great grandmother died of multiple myloma.

My grandma has been going to the doctor for a reoccurring rash on her bottom, but her tests were negative... She got a referral to a GI but now canceled her appointments..

My mom had lupus

And now I got diagnosed with a hiatal hernia and GERD from my endoscopy..

 

We all have a history of anxiety and depression.. I'm trying to be patient but the closer I get the harder it issss!

 

So, all I'm asking is, Do you think all of these family problems could be related to celiac disease??

 

It is certainly possible.

 

Now that your endoscopy is complete...you can remove all gluten.  Often the dietary response is the most important factor for Celiac Disease or Non Celiac Gluten Intolerance.

taynichaf Contributor

Okay thank you for your response! I The longest I have intentionally gone gluten free is like 1 week... And even then I was amazed with the difference, so i'm pretty excited to see what eating gluten free for longer will be like! :)

GottaSki Mentor

Good Luck!

 

Let us know if you have questions...pretty sure you have already seen the "Newbie 101" thread...but if not check it out :)

taynichaf Contributor

Thanks!

 

And it just dawned on me that I might have lupus...? How do doctors even check for this?! Would he be able to see it with an endoscopy or anything? Because I have always had some of the symptoms of lupus, but they are also the same for gluten intolerance. I'm very pale and today I was sitting outside for awhile, then an hour later I didn't want to eat anything and my face just felt all flushed and my mom said I was a little warm... I mean it could just be sunburn but i dont know... I have redness across the bridge of my nose and everything, but it's not like the distinct lupus rash... I don't know how to bring this up to my mom because she already thinks I just have a ton of problems ha, but do you think the doctor would have been able to tell somehow if I had lupus?

nvsmom Community Regular

Take a look at the lupus diagnostic criteria in the below link. A patient needs to have at least 4 of the criteria met to be diagnosed with lupus.

Open Original Shared Link

I suspected that I had lupus. I have arthralgias, hemotalitic abnormalities, have had a positive ANA in the past a few times, mouth ulcers (when the pain hits), and what could be a malar rash under my roseaca. That is 4, and maybe 5, of the criteria and my doctor says it it most likely the celiac. I am half annoyed and half relieved. Annoyed be ause if it was lupus, I could get treated, and relieved because if it is celiac then my symptoms might actually resolve....What I mean is that lupus is not so etching one would want, but if you suspect lupus, see you doctor and get the blood work done, and show him any symptoms (take pictures of transient ones). Be patient. It often takes years to diagnose that disease. It canbe one of the hardest to pinpoint.

But, before you worry about lupus, give the gluten-free diet some time. It can take months or even years for some symptoms to go (pain seems to be one of the last to resolve). It's only been a shrt time now. Hang in there.

GottaSki Mentor

But, before you worry about lupus, give the gluten-free diet some time. It can take months or even years for some symptoms to go (pain seems to be one of the last to resolve). It's only been a shrt time now. Hang in there.

 

This :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



taynichaf Contributor

Lol, thanks everyone! I think it actually is just sunburn! I'm so freaking pale, so it makes sense.

taynichaf Contributor

Take a look at the lupus diagnostic criteria in the below link. A patient needs to have at least 4 of the criteria met to be diagnosed with lupus.

Open Original Shared Link

I suspected that I had lupus. I have arthralgias, hemotalitic abnormalities, have had a positive ANA in the past a few times, mouth ulcers (when the pain hits), and what could be a malar rash under my roseaca. That is 4, and maybe 5, of the criteria and my doctor says it it most likely the celiac. I am half annoyed and half relieved. Annoyed be ause if it was lupus, I could get treated, and relieved because if it is celiac then my symptoms might actually resolve....What I mean is that lupus is not so etching one would want, but if you suspect lupus, see you doctor and get the blood work done, and show him any symptoms (take pictures of transient ones). Be patient. It often takes years to diagnose that disease. It canbe one of the hardest to pinpoint.

But, before you worry about lupus, give the gluten-free diet some time. It can take months or even years for some symptoms to go (pain seems to be one of the last to resolve). It's only been a shrt time now. Hang in there.

I looked and I don't even fit the criteria.. I must be mixing lupus symptoms with something else.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,035
    • Most Online (within 30 mins)
      7,748

    Olga zlotina
    Newest Member
    Olga zlotina
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Makes me wonder if it has something to do with the fact that the protein avenin in oats triggers a gluten-like reaction in some celiacs and that this stricter standard for oat products is concession to those people making noise on that basis.
    • Scott Adams
      Yes, but what has really happened is that companies just removed "gluten-free" from their packaging, as General Mills has done for Canadian Cheerios. Why they would allow a 20ppm for gluten-free in other foods and only set this higher level for oats is very odd, and no other countries do this.
    • knitty kitty
      That "gut ache" after drinking may be more than alcohol not agreeing with a gut that's trying to heal. Alcohol prevents absorption of vitamins, and actually breaks thiamine Vitamin B 1 so it cannot function.  Thiamine deficiency can cause Gastrointestinal Beriberi, with symptoms of digestive upsets and abdominal pain, nausea, vomiting, anorexia, and can cause neurological problems and problems with thinking and judgement.  I've experienced Gastrointestinal Beriberi myself.  Thiamine supplementation is a must, along with the other B vitamins and Vitamin C.   Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking https://pubmed.ncbi.nlm.nih.gov/31543793/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6739701/
    • Suze046
      Yeah I think my body is definitely telling me to lay off the alcohol I just don’t seem to agree with it right now but that might be because my gut is still trying to heal. 
    • Gwen myers
      We are a couple with celiac trying to find a concierge doctor in Palm Beach Gardens/West Palm/ Jupiter area that has knowledge of celiac .  Help!
×
×
  • Create New...