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Do You Think Celiac Disease Is Likely With The Family History I Have?

taynichaf

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taynichaf Contributor
taynichaf
Posted

Sorry... Once again I am very frustrated about this! My blood tests came back negative and I just had an endoscopy yesterday and am just waiting for the results...

 

I feel like family history on my moms side could indicate celiac...

 

My great grandmother died of multiple myloma.

My grandma has been going to the doctor for a reoccurring rash on her bottom, but her tests were negative... She got a referral to a GI but now canceled her appointments..

My mom had lupus

And now I got diagnosed with a hiatal hernia and GERD from my endoscopy..

 

We all have a history of anxiety and depression.. I'm trying to be patient but the closer I get the harder it issss!

 

So, all I'm asking is, Do you think all of these family problems could be related to celiac disease??

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GottaSki Mentor
GottaSki
Posted

Sorry... Once again I am very frustrated about this! My blood tests came back negative and I just had an endoscopy yesterday and am just waiting for the results...

 

I feel like family history on my moms side could indicate celiac...

 

My great grandmother died of multiple myloma.

My grandma has been going to the doctor for a reoccurring rash on her bottom, but her tests were negative... She got a referral to a GI but now canceled her appointments..

My mom had lupus

And now I got diagnosed with a hiatal hernia and GERD from my endoscopy..

 

We all have a history of anxiety and depression.. I'm trying to be patient but the closer I get the harder it issss!

 

So, all I'm asking is, Do you think all of these family problems could be related to celiac disease??

 

It is certainly possible.

 

Now that your endoscopy is complete...you can remove all gluten.  Often the dietary response is the most important factor for Celiac Disease or Non Celiac Gluten Intolerance.

taynichaf Contributor
taynichaf
Posted
  • Author

Okay thank you for your response! I The longest I have intentionally gone gluten free is like 1 week... And even then I was amazed with the difference, so i'm pretty excited to see what eating gluten free for longer will be like! :)

GottaSki Mentor
GottaSki
Posted

Good Luck!

 

Let us know if you have questions...pretty sure you have already seen the "Newbie 101" thread...but if not check it out :)

taynichaf Contributor
taynichaf
Posted
  • Author

Thanks!

 

And it just dawned on me that I might have lupus...? How do doctors even check for this?! Would he be able to see it with an endoscopy or anything? Because I have always had some of the symptoms of lupus, but they are also the same for gluten intolerance. I'm very pale and today I was sitting outside for awhile, then an hour later I didn't want to eat anything and my face just felt all flushed and my mom said I was a little warm... I mean it could just be sunburn but i dont know... I have redness across the bridge of my nose and everything, but it's not like the distinct lupus rash... I don't know how to bring this up to my mom because she already thinks I just have a ton of problems ha, but do you think the doctor would have been able to tell somehow if I had lupus?

nvsmom Community Regular
nvsmom
Posted

Take a look at the lupus diagnostic criteria in the below link. A patient needs to have at least 4 of the criteria met to be diagnosed with lupus.

Open Original Shared Link

I suspected that I had lupus. I have arthralgias, hemotalitic abnormalities, have had a positive ANA in the past a few times, mouth ulcers (when the pain hits), and what could be a malar rash under my roseaca. That is 4, and maybe 5, of the criteria and my doctor says it it most likely the celiac. I am half annoyed and half relieved. Annoyed be ause if it was lupus, I could get treated, and relieved because if it is celiac then my symptoms might actually resolve....What I mean is that lupus is not so etching one would want, but if you suspect lupus, see you doctor and get the blood work done, and show him any symptoms (take pictures of transient ones). Be patient. It often takes years to diagnose that disease. It canbe one of the hardest to pinpoint.

But, before you worry about lupus, give the gluten-free diet some time. It can take months or even years for some symptoms to go (pain seems to be one of the last to resolve). It's only been a shrt time now. Hang in there.

GottaSki Mentor
GottaSki
Posted

But, before you worry about lupus, give the gluten-free diet some time. It can take months or even years for some symptoms to go (pain seems to be one of the last to resolve). It's only been a shrt time now. Hang in there.

 

This :)

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taynichaf Contributor
taynichaf
Posted
  • Author

Lol, thanks everyone! I think it actually is just sunburn! I'm so freaking pale, so it makes sense.

taynichaf Contributor
taynichaf
Posted
  • Author

Take a look at the lupus diagnostic criteria in the below link. A patient needs to have at least 4 of the criteria met to be diagnosed with lupus.

Open Original Shared Link

I suspected that I had lupus. I have arthralgias, hemotalitic abnormalities, have had a positive ANA in the past a few times, mouth ulcers (when the pain hits), and what could be a malar rash under my roseaca. That is 4, and maybe 5, of the criteria and my doctor says it it most likely the celiac. I am half annoyed and half relieved. Annoyed be ause if it was lupus, I could get treated, and relieved because if it is celiac then my symptoms might actually resolve....What I mean is that lupus is not so etching one would want, but if you suspect lupus, see you doctor and get the blood work done, and show him any symptoms (take pictures of transient ones). Be patient. It often takes years to diagnose that disease. It canbe one of the hardest to pinpoint.

But, before you worry about lupus, give the gluten-free diet some time. It can take months or even years for some symptoms to go (pain seems to be one of the last to resolve). It's only been a shrt time now. Hang in there.

I looked and I don't even fit the criteria.. I must be mixing lupus symptoms with something else.

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