Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactose Slip Up


designerstubble

Recommended Posts

designerstubble Enthusiast

Just a quickie. I went lactose free on the suggestion of an alternative practitioner friend when diagnosed last oct, as I had continued abdomen pain. The pain eventually disappeared mostly.

I've been dairy free for over 6 months, 2 days ago accidentally took a couple of gulps of my sisters milky tea. Ugh! I was thirsty so swallowed a couple of mouthfuls. I was nervous but nothing seemed to happen. Then a few hours later ate my normal rice & veg and since then... Bloating, diarrhea, massive wind, I don't 'feel safe' without a bathroom near by, have the urgency.

Apart from that I'm fine. No pains or cramps. I thought I'd be ok with lactose now, it's been over 6 months?

Any thoughts anyone? Anyone had similar? Does it sound like lactose I tolerance? Could it be that I need wait even more time (even though this was an accident!).... Must admit, what a nice cup of tea she was drinking! Mmmmm!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

It sounds like you need to give dairy a bit more time. Maybe try the lactose free foods first like hard cheeses in a few months?

Good luck!

cyclinglady Grand Master

I know that some folks who have Celiac have trouble digesting lactose (dairy), but are you sure you don't have a true milk allergy?  I've been allergic to cow's milk proteins (casein and whey) for more than 20 years!  Ingesting it doesn't just bother my GI tract but within seconds, my nose gets congested, etc.  

designerstubble Enthusiast

It sounds like you need to give dairy a bit more time. Maybe try the lactose free foods first like hard cheeses in a few months?

Good luck!

Thanks

Do you mean just normal hard cheeses? Are they lactose free?? Or do you mean specifically "lactose free" cheese? I'm eating butter but I know there is hardly any lactose in it!

designerstubble Enthusiast

I know that some folks who have Celiac have trouble digesting lactose (dairy), but are you sure you don't have a true milk allergy? I've been allergic to cow's milk proteins (casein and whey) for more than 20 years! Ingesting it doesn't just bother my GI tract but within seconds, my nose gets congested, etc.

Oh now there's a thought! It wouldn't surprise me tbh. I seem to have incurred many allergies and intolerances! It never bothered me until a year before diagnosis when I would have a real full on active phase of celiacs, feeling really very ill. It seemed that cheese triggered it always?? I think it might have been anything fatty actually. Anything fried. but especially anything with cheese. terrible with pizza! My body couldn't digest it, made me very ill.

I hope that maybe I'll be ok with it one day. All the docs here seem to thinking should be fine with lactose now. Is it normal to have such a bad gut for so long (2days so far!) just with a couple of gulps of tea?

nvsmom Community Regular

Thanks

Do you mean just normal hard cheeses? Are they lactose free?? Or do you mean specifically "lactose free" cheese? I'm eating butter but I know there is hardly any lactose in it!

Harder cheeses usually have less lactose, and aged cheese have less as well. Open Original Shared Link Your safest bet would be to buy lactose free cheese or switch to dairy free cheese.

 

I wasn't drinking milk when I was diagnosed because I was vaguely aware that milk gave me stomach aches.... that took me a looooong time to figure out because the doctor of my youth told me to drink milk when i got stomach aches after eating -no wonder I never noticed it helping, eh?  LOL :rolleyes:  Anyway, I was eating cheese and yogurt so I gave them up too because I was still not feeling perfect.  Well, I'm still not feeling perfect but my skin improved some and my gut is a bit better, and now that I'm used to not eating milk products, I do not see any need to go back to it. Besides, I doubt people are designed to consume a cow's breast milk.  ;) At least that's what I tesll myself when i see a nice swiss cheese.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748

    Bryan s
    Newest Member
    Bryan s
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.