Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating Gluten Free Makes Me Starving!


taynichaf

Recommended Posts

taynichaf Contributor

After my first celiac tests were negative I tried eating gluten free anyways.. I ended up STARVING! I lost weight really fast and I just needed to stuff my face all day! I love food, but it got to the point were I was just so tired of eating lol. Having such a big appetite is what caused me to cave and start eating gluten again and just get more tests done.

 

Well, gluten free again and I can feel the hunger slowly coming back! How do I deal with this?? Does this happen to anyone else? I've only lasted like a week gluten free because of this...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



taynichaf Contributor

Ohh and im tired all the time... but being gluten free makes it WORSE! I feel like I can get better sleep though.

karichelle Newbie

What are you eating differently when you are eating gluten free? Are you eating lots of empty-caloried gluten-free processed products? Or are you continuing to eat whole grains, just of the gluten free variety, along with a balanced diet?

taynichaf Contributor

I'm eating my regular diet pretty much, except no bread. I'm eating a lot of fruits, veggies, chicken, peanut butter, rice, rice cakes... and just fairly healthy stuff.

bartfull Rising Star

Yep. When I first went gluten-free I was eating meat, potatoes, veggies, and I would munch on fruit for snacks. And I was ALWAYS hungry!

 

Before gluten-free, I always felt that unless I had meat, I never felt full. After gluten-free I thought it must have been the bread (I lived on burgers) that made me feel full.

 

I suggest you eat lots of small meals instead of three big ones. After a while the hunger will diminish. Gluten acts like a drug and until you "detox" from it, your body will keep craving it.

 

Uh, it took me about three months. :mellow:

Deaminated Marcus Apprentice

When I went gluten free in October 2010 I had the opposite reaction.

I went hyper and I barely slept and was talking really fast like someone on speed.

 

Later I tried the high protein diet and I was starving on that one.

So that was useless for me.

 

Are you ok with eating cheeze?  

I found eating real cheeze made with real cream really cuts my appetite.

Peanut butter without all the additives is better too as it has less sugar.

I also ate Coconut cream (it's comes in a little box and tastes quite sweet but is low in sugar).

 

I like eating a cut apple and cucumber pieces which is quite filling.

 

I eat broccoli and steamed carrots which I sprinkle with garlic powder.

 

I drink water rather than juice and sodas which are loaded with sugar.

 

Keep on eating and don't starve. :)

taynichaf Contributor

Yep. When I first went gluten-free I was eating meat, potatoes, veggies, and I would munch on fruit for snacks. And I was ALWAYS hungry!

 

Before gluten-free, I always felt that unless I had meat, I never felt full. After gluten-free I thought it must have been the bread (I lived on burgers) that made me feel full.

 

I suggest you eat lots of small meals instead of three big ones. After a while the hunger will diminish. Gluten acts like a drug and until you "detox" from it, your body will keep craving it.

 

Uh, it took me about three months. :mellow:

YES. When i'm eating gluten I'm never full either! Ohh my... I'm going to be spending ALL my money on food for the next three months... Lol!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



taynichaf Contributor

When I went gluten free in October 2010 I had the opposite reaction.

I went hyper and I barely slept and was talking really fast like someone on speed.

 

Later I tried the high protein diet and I was starving on that one.

So that was useless for me.

 

Are you ok with eating cheeze?  

I found eating real cheeze made with real cream really cuts my appetite.

Peanut butter without all the additives is better too as it has less sugar.

I also ate Coconut cream (it's comes in a little box and tastes quite sweet but is low in sugar).

 

I like eating a cut apple and cucumber pieces which is quite filling.

 

I eat broccoli and steamed carrots which I sprinkle with garlic powder.

 

I drink water rather than juice and sodas which are loaded with sugar.

 

Keep on eating and don't starve. :)

I don't like cheese all that much... But cheddar cheese is pretty good.. I'll think i'll buy some more soon ha. and I already eat A LOT of peanut butter.. And it's the natural kind :P I love eating natural when I can.

 

Lol, ohh i'll defiantly keep eating! Ha.

 

But your lucky that it made you hyper! Ha. I feel like once my body adjusts i'll be more like that too, but for now I need lots of naps! But in general I feel a lot happier and nicer, so i'm good with that :) 

1desperateladysaved Proficient

Make sure to have plenty of good fats.  I have coconut, olive oil, or butter.  I have about 1 Tbsp 3 times a day.  This helps you feel full and stay full longer.  Still, your body just may need time to adjust.

 

Diana

dilettantesteph Collaborator

I had that problem too.  I think it may have been gluten withdrawal.  I stuck it out and it went away.  That was almost 6 years ago so it is hard to remember, but it maybe took 6 weeks?  Keeping a balanced diet including all nutrients should help.

pricklypear1971 Community Regular

Fats will help. Slows down the digestion, too.

Also, do you think you might be going a little hypoglycemic? Because that's how I get when I do that...I eat nonstop. Adding fiber rich foods and 2x the protein, and preemptive eating helps. And if it gets too bad, 12 ghiradelli semi sweet chips.

When you go through withdrawal the body can flip out - wouldn't surprise me that your body goes hypoglycemic from withdrawal and from eating gluten....one is from shock, the other from irritation.

taynichaf Contributor

Fats will help. Slows down the digestion, too.

Also, do you think you might be going a little hypoglycemic? Because that's how I get when I do that...I eat nonstop. Adding fiber rich foods and 2x the protein, and preemptive eating helps. And if it gets too bad, 12 ghiradelli semi sweet chips.

When you go through withdrawal the body can flip out - wouldn't surprise me that your body goes hypoglycemic from withdrawal and from eating gluten....one is from shock, the other from irritation.

Hmm... I have no idea! I'll have to do some more research on that... I used to actually think there was something wrong with me that had to do with diabetes... How long did it take you for this problem to go away?

taynichaf Contributor

Fats will help. Slows down the digestion, too.

Also, do you think you might be going a little hypoglycemic? Because that's how I get when I do that...I eat nonstop. Adding fiber rich foods and 2x the protein, and preemptive eating helps. And if it gets too bad, 12 ghiradelli semi sweet chips.

When you go through withdrawal the body can flip out - wouldn't surprise me that your body goes hypoglycemic from withdrawal and from eating gluten....one is from shock, the other from irritation.

Actually this makes a lot of sense... If I don't eat for a long period of time a get really shaky and i get heart palpitations (i think... my heart will feel like it beats rapidly for a short time, then it usually goes away) and probably other symptoms that I don't even realize... And I thought that these were just related to gluten. How do I get tested for this?? I've been going to the doctors a lot and I'm afraid they just think i'm a hypochondriac...

pricklypear1971 Community Regular

Actually this makes a lot of sense... If I don't eat for a long period of time a get really shaky and i get heart palpitations (i think... my heart will feel like it beats rapidly for a short time, then it usually goes away) and probably other symptoms that I don't even realize... And I thought that these were just related to gluten. How do I get tested for this?? I've been going to the doctors a lot and I'm afraid they just think i'm a hypochondriac...

There's a test for it, ask your doctor.

The BEST way, IMO, to test your glucose levels is to buy a home glucose monitor and track your levels for a week - when you wake up, before you eat, after you eat, and 2 hours after meals. Write it all down, and keep a food diary with it. THEN go to the doctor.

You can have hypo symptoms without technically having hypoglycemia - probably related to a hormonal imbalance or adrenals, or even pre diabetes.

You can learn to manage it, and I've been successful at calming mine down. My thyroid plays a HUGE part in my hypoglycemia, I've discovered.

frieze Community Regular

yes, you don't need to be pathologically low blood sugar to get symptoms.  can be the "rate" of drop that will do it.

pricklypear1971 Community Regular

yes, you don't need to be pathologically low blood sugar to get symptoms. can be the "rate" of drop that will do it.

And the swings - up and down. That gets me...

taynichaf Contributor

There's a test for it, ask your doctor.

The BEST way, IMO, to test your glucose levels is to buy a home glucose monitor and track your levels for a week - when you wake up, before you eat, after you eat, and 2 hours after meals. Write it all down, and keep a food diary with it. THEN go to the doctor.

You can have hypo symptoms without technically having hypoglycemia - probably related to a hormonal imbalance or adrenals, or even pre diabetes.

You can learn to manage it, and I've been successful at calming mine down. My thyroid plays a HUGE part in my hypoglycemia, I've discovered.

Hmm okay! I think i'm going to wait and see what my doctor says, or if it goes away after being gluten free for a longer period of time.

 

I guess I'm not saying I HAVE hypo, I just think that something in that nature is effecting me. I normally probably wouldnt even think that I had a blood sugar problem, but i'm sort of convinced because a long time ago I thought I was just pre diabetic or something just because some of my symptoms matched it... But this was during the time that I was eating the healthiest I have ever eaten in my life.. so i thought..(wheat bread).

 

Plus, through dieting I found that I need sugar... The more sugar I eat the better I feel.. sort of. And this is probably because my diet used to be sooo bad, filled with sweets.

pricklypear1971 Community Regular

Hmm okay! I think i'm going to wait and see what my doctor says, or if it goes away after being gluten free for a longer period of time.

I guess I'm not saying I HAVE hypo, I just think that something in that nature is effecting me. I normally probably wouldnt even think that I had a blood sugar problem, but i'm sort of convinced because a long time ago I thought I was just pre diabetic or something just because some of my symptoms matched it... But this was during the time that I was eating the healthiest I have ever eaten in my life.. so i thought..(wheat bread).

Plus, through dieting I found that I need sugar... The more sugar I eat the better I feel.. sort of. And this is probably because my diet used to be sooo bad, filled with sweets.

Your doctor probably won't do a thing, and you'll probably continue to suffer. Sorry, I'm not getting the congeniality award online or at home today.

You're getting a sugar high - your adrenals are getting a kick from sugar - something isn't working right.

My doc would say yeast overgrowth or SIBO. If you crave sugar or need it like that - something is wrong.

She would also put you on adrenal support and give you the sugar speech (which I didn't get because by the time I got to her sweets made me want to vomit). But I did get the adrenals speech, supplements, and the eating-on-a-schedule pre diabetes/insulin resistance speech.

Could this be a stage? Yes. But it existed pre gluten-free. Not likely. You are compensating - autoimmunies do it VERY well. It's a process, healing.

taynichaf Contributor

Your doctor probably won't do a thing, and you'll probably continue to suffer. Sorry, I'm not getting the congeniality award online or at home today.

You're getting a sugar high - your adrenals are getting a kick from sugar - something isn't working right.

My doc would say yeast overgrowth or SIBO. If you crave sugar or need it like that - something is wrong.

She would also put you on adrenal support and give you the sugar speech (which I didn't get because by the time I got to her sweets made me want to vomit). But I did get the adrenals speech, supplements, and the eating-on-a-schedule pre diabetes/insulin resistance speech.

Could this be a stage? Yes. But it existed pre gluten-free. Not likely. You are compensating - autoimmunies do it VERY well. It's a process, healing.

Hmmff.. :( Well I mean... I have anxiety super bad right now because of gluten... i'm 18.. Recently moved and have no money to buy any of this stuff that you say... I also can't tell my mom about this, because shel just blow it off.. I cant even tell her about any doctors appointments i schedule anymore either. So I guess right now, I just can't organize my brain to figure out what to do about this! I'm going to atleast bring it up to my doctor to see what he has to say first... then if he doesnt do anything about it, i'll try and find the next step once im able to think straight.

 

I don't really get what your saying in the last sentence?... that because i eat gluten free is why my blood sugar is low?

taynichaf Contributor

Ohhh nvm, I get it. Yeah, I know I had this problem pre gluten free, but then, i just thought it was just another celiac symptom

pricklypear1971 Community Regular

Ohhh nvm, I get it. Yeah, I know I had this problem pre gluten free, but then, i just thought it was just another celiac symptom

If a glucose monitor isn't in the budget, see if you can borrow one. You still must buy the lancets/strips, and the strips are the most expensive part.

Have you been diagnosed with Celiac or NCGS? Sorry, I can't see footers on my phone.

The test a doc can reco is something that should be covered under insurance; however, if you are pre diabetic or above the hypo range (but still getting that feeling) it won't show it. It tests for a specific glucose drop. Your doc can order a breath test for SIBO, and an HBA1C for prediabetes.

You may be paranoid from withdrawal, but you know if you crave sugar....and there's more to it than going gluten-free. I hope you find the support you need. Id hate for you to limp along, wondering why things aren't progressing like you feel they should. And if glucose/adrenals/SIBO/yeast are issues, also, it can be tough to feel as well as you'd like.

taynichaf Contributor

If a glucose monitor isn't in the budget, see if you can borrow one. You still must buy the lancets/strips, and the strips are the most expensive part.

Have you been diagnosed with Celiac or NCGS? Sorry, I can't see footers on my phone.

The test a doc can reco is something that should be covered under insurance; however, if you are pre diabetic or above the hypo range (but still getting that feeling) it won't show it. It tests for a specific glucose drop. Your doc can order a breath test for SIBO, and an HBA1C for prediabetes.

You may be paranoid from withdrawal, but you know if you crave sugar....and there's more to it than going gluten-free. I hope you find the support you need. Id hate for you to limp along, wondering why things aren't progressing like you feel they should. And if glucose/adrenals/SIBO/yeast are issues, also, it can be tough to feel as well as you'd like.

Alright, thanks.

 

ANd no I have not been diagnosed. My tests were negative for celiac so I just consider myself NCGI.

 

This is allll soooo confusinggggg! Ughhhh! But thank you so much for the help... Hopefully I will be able to get all the tests that I need.

eers03 Explorer

vanilla ice cream, hershey syrup, a scoop of peanut butter, and a banana with a splash of milk...  blend...  I have to eat eggs, bacon, and two pieces of gluten free bread in the morning to stay full passed 11a.  I usually do steak, chicken, or pork of some kind for dinner with sides.  If you're staying hungry, adding calories is easy.  

 

not sure if that's what you're looking for but I stay hungry all the time and meats/calories help.

taynichaf Contributor

vanilla ice cream, hershey syrup, a scoop of peanut butter, and a banana with a splash of milk...  blend...  I have to eat eggs, bacon, and two pieces of gluten free bread in the morning to stay full passed 11a.  I usually do steak, chicken, or pork of some kind for dinner with sides.  If you're staying hungry, adding calories is easy.  

 

not sure if that's what you're looking for but I stay hungry all the time and meats/calories help.

Ahh... My issues isnt weight loss its actually weight gain btw ha. But once I start gluten free I drop weight fast, no matter how much i eat... But I dont know how my body reacts long term... I hope I dont stay hungry and gain a bunch of weight :/

taynichaf Contributor

If a glucose monitor isn't in the budget, see if you can borrow one. You still must buy the lancets/strips, and the strips are the most expensive part.

Have you been diagnosed with Celiac or NCGS? Sorry, I can't see footers on my phone.

The test a doc can reco is something that should be covered under insurance; however, if you are pre diabetic or above the hypo range (but still getting that feeling) it won't show it. It tests for a specific glucose drop. Your doc can order a breath test for SIBO, and an HBA1C for prediabetes.

You may be paranoid from withdrawal, but you know if you crave sugar....and there's more to it than going gluten-free. I hope you find the support you need. Id hate for you to limp along, wondering why things aren't progressing like you feel they should. And if glucose/adrenals/SIBO/yeast are issues, also, it can be tough to feel as well as you'd like.

And btw, I will get those things that you say, once I get a job. Thanks so much :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Ginger38's topic in Related Issues & Disorders
      15

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Tazfromoz replied to Ginger38's topic in Related Issues & Disorders
      15

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

    4. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    5. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,076
    • Most Online (within 30 mins)
      7,748

    Monica L
    Newest Member
    Monica L
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Thank you for your thoughtful contribution, @Tazfromoz. I live in the UK and the National Health Service funds free vaccines for people deemed to be at heightened risk.  I was pleasantly surprised to discover that as a coeliac in my 50s I was eligible for this vaccine, and didn't think twice when it was offered to me.  Soon after diagnosis I suffered mystery symptoms of burning nerve pain, following two separate dermatomes, and one GP said he felt that I had contracted shingles without the rash aka zoster sine herpete.  Of course, without the rash, it's a difficult diagnosis to prove, but looking back I think he was completely spot on.  It was miserable and lasted about a year, which I gather is quite typical. For UK coeliacs reading this, it is worth having a conversation with your GP if you haven't been vaccinated against shingles yet, if you are immunosuppressed or over 50. I have just googled this quickly - it is a helpful summary which I unashamedly took from AI, short for time as I am this morning!   My apologies. In the UK, coeliac patients aren't automatically eligible for the shingles jab unless they're severely immunosuppressed or over the general age for vaccination (currently 50+) but Coeliac UK recommends discussing the vaccine with a GP due to potential splenic dysfunction, which can increase risk, even if not routine for all coeliacs. Eligibility hinges on specific criteria like weakened immunity (chemo, certain meds) or age, with the non-live Shingrix vaccine offered in two doses to those deemed high-risk, often starting from age 18 for the immunocompromised.
    • Tazfromoz
      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until she was 65. Me at 45. I've had the new long lasting vaccine. It knocked me around badly, but worth it to avoid shingles.
    • hjayne19
      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.