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My Test Came Back

w8in4dave

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notme Experienced
notme
Posted

why do you have to go back on gluten?  omgosh that is another month and a half.  :(  

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1desperateladysaved Proficient
1desperateladysaved
Posted

Wow!  Glad you have a definitive answer.  It seems like you can be turning around in 6 weeks!  I think maybe you should make a different thread about it.  I am afraid some  won't notice.  What a deal to be told "no" and have it changed to yes!  Still, You know.  Sorry you have celiac, but glad you know!

 

To receive find out when someone posts on your thread scroll up and to the right and click on follow this topic.  Mine even sends me and e-mail.  I used to miss the answers to mine all of the time before I found that out.

 

D

love2travel Mentor
love2travel
Posted

YAY! Welcome to our big fat celiac family. So happy that now you have answers. This will explain a lot, I'm sure.

w8in4dave Community Regular
w8in4dave
Posted
  • Author

why do you have to go back on gluten?  omgosh that is another month and a half.   :(

You really should be eating gluten for test. So they know for sure , I really don't know how to word this right. I guess in order to be tested you have to be eating it. I will eat gluten , see this next doc, then ask him what he wants "test wise" and just see...  

Thank you everyone for all the positivity!! We can all use it!! I know it helps me!!! Ty so much!!! I may make another thread! Thanks for the advice :) 

notme Experienced
notme
Posted

You really should be eating gluten for test. So they know for sure

of course, sorry, i thought they were done testing you :)  good luck!

w8in4dave Community Regular
w8in4dave
Posted
  • Author

of course, sorry, i thought they were done testing you :)  good luck!

Thats was my 1st blood test, I now have to go to another Dr. So I figure I might want to be eating Gluten incase he wants to do any testing. I don't know! It is going to be harder for me to start eating gluten than it was for me to quit! 

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      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this or happen to know why that would happen? The meds they gave me were all meds that I've taken to try to resolve the rashes, but they never worked in pill form. I'm wondering if it the addition of the epi that helped, it if injected steroids and antihistamines were what did the job.
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      Test interpretations

      By Dr. Gunn · Posted

      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      Test interpretations

      By trents · Posted

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Test interpretations

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      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
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