Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying To Wait Patiently


greenbeanie

Recommended Posts

greenbeanie Enthusiast

I got negative results from a partial celiac panel last week, though total IgA wasn't included so I don't know how much to trust the results. Anyhow, I hadn't realized that my doctor also ordered the celiac genetic tests from Prometheus Labs. I only found out because I received a letter from Prometheus about insurance billing. The letter said that the results had been sent to my doctor a full week ago. But I haven't heard anything yet, and this is very unusual because my doctor usually posts lab results online immediately. I contacted her office on Monday to request the results, and I was told that I'd hear back from someone within two business days. But I still haven't heard anything, and I'm going crazy with all the waiting.

 

I know the genetic tests alone are not definitive either way, but I just want all the data I can get right now. The report has been sitting at my doctor's office for a week, and I don't understand why no one will give me the results. It's not like she's waiting for my next appointment - I'm not even scheduled to see her again. 

 

Should I just keep waiting? For how long? Or risk annoying the doctor by inquiring again? I am so, so glad that she ordered the genetic tests (especially since my daughter is also in the process of getting tested, so my genes will surely be of interest to her doctors too). But I've been waiting for decades to figure out what's wrong, and the thought of a relevant piece of info just sitting there on her desk when no one will tell me the results is driving me crazy. I know I have a legal right to my own test results, but marching in and asserting that right seems more likely to alienate the office staff than to help...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Call again. You know they have the results. Get them to send a copy of the genetic tests and the other tests, if you don't have them. They may be able to email them if the records are eletronic.

Your not annoying the doctor. They may have missed the results or thought they had already called you.

pricklypear1971 Community Regular

They don't understand what they're reading. Betcha $10.

kareng Grand Master

They don't understand what they're reading. Betcha $10.

You're probably right!

powerofpositivethinking Community Regular

patience is something I need to work on too, but I vote you should call again too  :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,514
    • Most Online (within 30 mins)
      7,748

    PaulK
    Newest Member
    PaulK
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.