Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone With Confirmed Diagnosis But Constipation Not D?

Khickson1980

Recommended Posts

Khickson1980 Newbie
Khickson1980
Posted

So a year and a half ago I saw gastro specialist for bad bloating, pains, no appetite and constipation. Barium and ultrasound confirmed there is nothing wrong with my 'mechanics' and I was sent away with movicol.

Six months layer I went back with the bloating and feeling sick. I asked to be tested for Intolerances and he said a gastroenterologist doesn't do that and sent me away with domperidone!?

After researching further I started having colonics and on advise of therapist cut out bread, pasta, noodles etc. tummy got almost better for 4-5months but has slowly gotten worse again.

I do eat gluten, the odd biscuit, slice of pizza at a party etc but not masses.

Due to movicol I now have a good bm nearly every day but have had some pretty bad episodes of bloating, pains and a total loss of appetite in last few weeks. And I love my grub!! :-(

Do you think I should insist on a coeliac test? Or is it really unlikely with my symptoms? Most people have the opposite troubles.....

Any help appreciated!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


powerofpositivethinking Community Regular
powerofpositivethinking
Posted

take a look at the top of pg. 7 of this report 

 

Open Original Shared Link

 

constipation and bloating are both non-classic symptoms.

 

the big C and bloating were both issues for me that were not resolving with diet changes, and that's what prompted me to finally get tested  :)

GottaSki Mentor
GottaSki
Posted

I was a BigC'r all my life (only very rarely had BigD and had no idea what a normal BM really was until I was 43 -- sad but true) -- still struggle with it post diagnosis -- but has improved A LOT - thankfully ;)

Hala Apprentice
Hala
Posted

It's the first in the list of symptoms listed by Coeliac UK:
Open Original Shared Link

I think you should definitely push for blood test and biopsy. But remember, you have to be eating gluten for the tests to be accurate!

Khickson1980 Newbie
Khickson1980
Posted
  • Author

Thanks peeps. I do eat gluten at the moment, just not masses. Thought if been gluten free totally for last two days but have just found it in my stir fry sauce!

I'm gonna book an appointment tomorrow. I just want a diagnosis of SOMETHING.....then I might be able to start treating myself!

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

keep eating gluten until ALL testing is complete  :)

 

Thanks peeps. I do eat gluten at the moment, just not masses. Thought if been gluten free totally for last two days but have just found it in my stir fry sauce!

I'm gonna book an appointment tomorrow. I just want a diagnosis of SOMETHING.....then I might be able to start treating myself!

nvsmom Community Regular
nvsmom
Posted

I'm a "C" er too - my whole life but it took getting treatment for my hypothyroidism to actually get things moving. C is a big hypo symptom.

 

I was the same as Lisa (Gottaski), I had no idea that I was abnormal and was actually a bit annoyed when things normalized for me because I had to "go" everyday... how inconvenient!  ;)  LOL

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

I'm a "C" er too - my whole life but it took getting treatment for my hypothyroidism to actually get things moving. C is a big hypo symptom.

I was the same as Lisa (Gottaski), I had no idea that I was abnormal and was actually a bit annoyed when things normalized for me because I had to "go" everyday... how inconvenient! ;) LOL

Ditto. Freaked me out, thought I was getting D.

Khickson1980 Newbie
Khickson1980
Posted
  • Author

So which did you guys get diagnosed with first? The hypo or coeliac? What are nightmare having to find answers for two things!

I'm having trouble enough with one, waiting for a phone call today for a different gastro guy. Can't believe when you are going private they wouldn't test for intolerances!?

kareng Grand Master
kareng
Posted

So which did you guys get diagnosed with first? The hypo or coeliac? What are nightmare having to find answers for two things!

I'm having trouble enough with one, waiting for a phone call today for a different gastro guy. Can't believe when you are going private they wouldn't test for intolerances!?

 

 

There are tests for Celiac disease.  A gastro or a regular physician can do the blood test.  Is that what you mean?

 

There are allergy tests but those would be done by an allergist.  I understand that the food allergy tests aren't always accurate..

 

The only tests for food intolerances is to eliminate them and see how you feel.

nvsmom Community Regular
nvsmom
Posted

So which did you guys get diagnosed with first? The hypo or coeliac? What are nightmare having to find answers for two things!

I'm having trouble enough with one, waiting for a phone call today for a different gastro guy. Can't believe when you are going private they wouldn't test for intolerances!?

 

I figured out the celiac for myself, and then did a home Biocard tTG IgA test that confirmed it... Then I went to the doctor and told him I had celiac disease. He retested me for his own proof, and I requested thyroid testing because I knew it was linked. My TSH was high. So, I had my celiac disease and hypothyroidism diagnosed at about the same time.

 

I'm in Canada and our health care covered it all. I've never seen a gastro or an endocrinologist - they only allow access to those guys if you have a problem you can't figure out or if you have diabetes.  :rolleyes:

ruthie-ray Newbie
ruthie-ray
Posted

So a year and a half ago I saw gastro specialist for bad bloating, pains, no appetite and constipation. Barium and ultrasound confirmed there is nothing wrong with my 'mechanics' and I was sent away with movicol.

Six months layer I went back with the bloating and feeling sick. I asked to be tested for Intolerances and he said a gastroenterologist doesn't do that and sent me away with domperidone!?

After researching further I started having colonics and on advise of therapist cut out bread, pasta, noodles etc. tummy got almost better for 4-5months but has slowly gotten worse again.

I do eat gluten, the odd biscuit, slice of pizza at a party etc but not masses.

Due to movicol I now have a good bm nearly every day but have had some pretty bad episodes of bloating, pains and a total loss of appetite in last few weeks. And I love my grub!! :-(

Do you think I should insist on a coeliac test? Or is it really unlikely with my symptoms? Most people have the opposite troubles.....

Any help appreciated!!

Dear KHickson,

I was diagnosed celiac in March 2013.  I have suffered with constipation for 1/2 my life and usually am more backed up than "lose".  Sorry for the details, but the question required this sort of answer.  My answer is yes.  I am slightly less constipated now that I am on a gluten-free diet.  Constipation can be a symptom of celiac, but most celiacs have the opposite problem.  They thought I had other tummy troubles, but never could pinpoint them.  I sought my celiac diagnosis after unexplained excema, arthritis and headaches.  All 3 other issues went away since gluten-free after my March 2013 Celiac diagnosis.  Constipation is better, but not 100% cured.  Water seems to help with that.  Water...Water....Water.  Good like in finding out what is going on.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,867
    • Most Online (within 30 mins)
      7,748
    mark847
    Newest Member
    mark847
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.