Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bruises

Jen85

By Jen85
in Related Issues & Disorders

Recommended Posts

Jen85 Rookie
Jen85
Posted

so I have been doing pretty well since being diagnosed with Celiac and following a gluten free lifestyle. It has been a relief since i was sick for years and could never figure out why. About a month ago i came across Gluten Cutter pills in my local pharmacy. I tried them out over my honey moon last month and they worked great. It was nice to be able to eat something i havne't been able to in months and thought maybe once in awhile when i wanted to cheat i could take a couple. i still got itchy after eating something i wasnt suppose to but never any stomach problems or any other issues. well here i am a month later and went camping with my children and husband last weekend and decided to take a couple pills and enjoy 1 s'more with my kids. The next day i woke up super itchy and covered in 30-40 bruises over both my legs, my joints are aching and i have been extremely tired for the last couple days. Could this be a reaction to the gluten or should i worry this is being cause by soemthing else?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

Oh Hon, I'm sorry but there is no pill available that will make it safe for a celiac to eat gluten. I guess you are finding that out now. The bruises are probably from scratching the DH. Unfortunately, that DH can flare for up to two years even if you don't eat gluten. You should stay STRICTLY gluten-free, go easy on the iodine (because it can make DH flare) and I hate to sound harsh, but you need to stop looking for ways to cheat. Even if you DON'T get digestive symptoms, you are still doing damage that can lead to all sorts or other autoimmune diseases including lupus, arthritis, and even cancer. Please, please, please, take care of your self. Don't take chances like that. No glutenous food is worth it, especially when there are gluten-free alternatives to just about anything you could want.

Jen85 Rookie
Jen85
Posted
  • Author

Well thanks for the info....I didn't realize all of that. I have kind of just been learning about Celiac disease as I go all the do's and the don'ts and here i thought i was doing good lol. i'm sure this will sound completely stupid but what is DH?

kareng Grand Master
kareng
Posted

Obviously, your doctor didn't tell you anything.  A diagnosed Celiac cannot eat any gluten.  You will accidentally get some in your life but you should never try to eat any. 

 

 

 

Open Original Shared Link

 

 

 

A lifetime commitment

The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms.

 

 

 

 

 

Please read the newbie thread for some basic info.

 

 

 

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

hi jen,

 

I started a thread about this https://www.celiac.com/forums/topic/101959-gluten-cutter-digestive-aid/

 

you know the saying if it seems too good to be true...

 

I hope you feel better!!

bartfull Rising Star
bartfull
Posted

Dermatitis Herpetiformis. It is an extremely itchy rash that some celiacs get. It is horrible. They sometimes call it "the suicide rash". There is a whole section in this forum didicated to it. You need to go there and read up on it. And you should go to the "Newbie 101" thread too. It will help you learn how to cope with going truly gluten-free.

 

Then maybe you should check out the breakfast/lunch/dinner threads. There are recipes for anything you might want to cook. And there is also a thread for gluten-free products. Have you bee to a health food store yet? gluten-free products are expensive, but there are some EXTREMELY good ones out there. If you can find Udi's Double Chocolate Muffins I promise you will love them. They make some pretty good bread too. There are cookies and gluten-free cake mixes and all sorts of yummy things.

 

Read as much as you can here. There are so many great folks here who really know what they are talking about. Ask lots of questions and you will get good answers. And please realize that celiacs need to go gluten-free for life. No cheating. EVER. It sounds hard and scary and depressing, but you will feel so much better and I promise, after a while it will become so natural that until you go to a restaurant, you'll never even think about it.

:)

As a matter of fact, there are some restaurants that have gluten-free menus. You have to be careful because some of them don't take it seriously. For example, Applebee's has a gluten-free menu but they cook their fries in the same fryer they cook breaded chicken and fish in. That means the fries are cross contaminated and we can't eat them. We can't just take the croutons off a salad either. We have to be strict and vigilant.

 

But of you live near a PF Changs, you can usually trust them. And Outback is good too. There are some others the folks here say are safe. Read as much as you can. Fire away with your questions. And if you need to rant or cry, feel free to do that too. You won't find a more understanding bunch anywhere.

 

And remember, it really DOES get easier. I PROMISE.

Jen85 Rookie
Jen85
Posted
  • Author

Obviously, your doctor didn't tell you anything.  A diagnosed Celiac cannot eat any gluten.  You will accidentally get some in your life but you should never try to eat any. 

 

 

 

Open Original Shared Link

 

 

 

A lifetime commitment

The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms.

 

 

 

 

 

Please read the newbie thread for some basic info.

 

 

 

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

 

thank you..no my doctor pretty much diagnosed and sent me on my way to figure the rest out on my own. thanks for the advice

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

thank you..no my doctor pretty much diagnosed and sent me on my way to figure the rest out on my own. thanks for the advice

 

 

My OB/Gyn insisted I go to my primary care and get a Celiac blood test.  He didn't want to but since she insisted, he did.  They called me and said it was positive and have a nice weekend.

Jen85 Rookie
Jen85
Posted
  • Author

Thanks for everyones help and support. I feel like I am annoying everyone in my life with my constant whining and not feeling well. I guess I am not doing as well as i thought. The more i read today the more i realize that i have other symptoms that i didn't even realize were related to celiac disease. I guess i just thought because i wasn't living with a constant stomach ache and my hair wasn't falling out anymore that i was doing better. To be honest all I ever think about is sleep. I am 27 years old and feel about 80. Not good a feeling when i have 3 young children and a brand new husband at home.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Hi Jen

 

Welcome in

 

It seems like yiou found the right place to start your gluten-free journey properly

 

Hang out and ask lots of questions :)

 

I've got 2 little ones, and it s awhole lot esier noww I am gluten-free and have more energy. Hope it works like that for you too.

Mw

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.