Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Get Tested?


NicoleMT

Recommended Posts

NicoleMT Newbie

I am curious on what others think.... I am new to gluten-free, I have already seen major improvments in myself only after a short time. I chse to go gluten free on my own. I am wondering if I should start back up on the gluten and go get the testing done. Honestly, I DO NOT want to go back, I felt horrible and am not sure if getting a diagnosis is worth the misery for me.

 

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

It really is up to you whether you choose to test or not. If you decide to skip testing because you are feeling better gluten-free, then you can declare yourself Non-Celiac Gluten Sensitive (NCGS) and keep doing what you are doing. If you think having a doctor given diagnosis will help you stay gluten-free for life, then that could be a reason to consider testing.

 

Because there is a chance of celiac disease, you should probably get tested for some of the health problems that celiacs (and possibly NCGS's) face. Nutritional deficiencies are common; ferritin, iron, calcium, potassium, D, B's, zince are some of the most common problem areas. Thyroiditis is associated with celiac disease so you might want to check out your TSH, FreeT4 and T3, and possibly TPO Ab. Some people get bone density checked because osteopenia can be a problem.

 

Best wishes and welcome to the board.

w8in4dave Community Regular

I kinda have the same problem!! I went Gluten Free after I was told I didn't have Celiac. Then they say I do have Celiac and they want me to see another Dr. I went Gluten free after they told me I didn't have it!! Within a week I felt soooo much better!! The energy is incredible! So now back to gluten? Well I am Kinda!! I am not fully Gluten free! But I know what NOT to eat when I am out!! I will be honest with this next Dr. I am just having a hard time going full Gluten again!! After feeling so great without!! I don't want to poision myself again!! On purpose anyway! 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,864
    • Most Online (within 30 mins)
      7,748

    Lillian Loureiro
    Newest Member
    Lillian Loureiro
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Thanks rmj when I first rang up it was we can't do it without , but I talked to a lovely lady and she sorted it all out for me, so it pays to be persistent , I would have had to decline if I hadn't been given the water option too , so yes I'm glad too 😌
    • RMJ
      I’m so glad they listened to your concerns!  I hope you get some answers from the MRI.
    • nanny marley
      Had my MRI today I didn't have to have the manitol with my allergy's , I just had a litre of water , they were great with my concerns , so let's see if anything comes of if will keep posted once I have results 👍
    • Peace lily
      Thank you ,it’s been a long road for me for having both now ,what upsets the most is that if they discovered that I also have cealiac earlier I would not have injested gluten if I was aware. Double whammy.
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.