Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated, Just Need To Vent.


dark-angel-warriore

Recommended Posts

dark-angel-warriore Newbie

So I posted about a month ago regarding positive blood work, various symptons, and my fear of going through the endoscopy.

 

SOOO, I got it done last monday (a week and a half ago).

Everything went well, I thought I was asleep, but apparently I just don't remember being awake.

 

Anyways, I had a pleasant experience at the hospital, no complications. Though they sent me home about 10min after I regained concsiouness, without explaining anything to me.

I did not think to ask about how it went.

 

4 days after the Endoscopy, I get a call from the surgeon's office saying that the surgon would like to see me to discuss the procedure that was done, and that they would give me the soonest appointment (today, so less than a week after the phone call).

 

Because I am confused about what the surgeon would want to talk to me about, I called my family doctor (who ordered the endoscopy), to see if she had received the results.

Apparently she received the results last week, just put it in my file without contacting me, and closed it.

So the "nice" secretary told me " it is your reponsability to book an appointment to discuss test results".

It would be nice if I even knew the results were in!!!!!!!!

She said that my doctor "PROBABLY" put the results in the file without saying anything because it did not show anything important.

 

 

We wern't looking for anything "important" we were looking to confirm if it is Celiac.

 

So now they are giving me an appointment in a month, because they need to leave room for emergency appointments.

 

How is anyone supposed to appreciate doctors if they do things like that ?

 

Now I am confused as to why I am even taking time off of work and losing pay to go see the surgeon, and then losing pay AGAIN to go see my general doctor who does not seem that concerned.

 

I have been "gluten free" (My boyfriend forgets and always cooks gluten products along with my gluten free products (on the BBQ, on serving plates, etc...) and I have been feeling worse than I did 2 weeks ago.

 

I know I should just wait until the appointment with the surgeon tonight, since he probably also has the biopsy results himself

 

but I just wanted to say "grrrr"

 

*end rant*


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

This makes some sense to me.  The Family doc would have received the results but not necessarily do anything with them.  He would think that the surgeon/GI doc would explain them to you.  And it sounds like the surgeon has set you up an appointment to discuss this.  After that visit is over, you may just want to cancel the Family doc appt.

 

Even if they told you something right after the procedure, you wouldn't remember it.  Anesthesia does that to you.  He would want to get the pathology results back first before telling you if you have Celiac.  I suppose, if he had seen a tumor or something obvious and dangerous, he would have told the person accompanying you to the procedure.

 

Get copies of the procedure report and the pathology report and blood tests while you are there.

dark-angel-warriore Newbie

This makes some sense to me.  The Family doc would have received the results but not necessarily do anything with them.  He would think that the surgeon/GI doc would explain them to you.  And it sounds like the surgeon has set you up an appointment to discuss this.  After that visit is over, you may just want to cancel the Family doc appt.

 

Even if they told you something right after the procedure, you wouldn't remember it.  Anesthesia does that to you.  He would want to get the pathology results back first before telling you if you have Celiac.  I suppose, if he had seen a tumor or something obvious and dangerous, he would have told the person accompanying you to the procedure.

 

Get copies of the procedure report and the pathology report and blood tests while you are there.

I had written a long text but I will keep it to : I disgaree.

 

The surgeon is NOT a G/I, I have no idea if he will have the results since the test was ordered by my family doctor and not the surgeon itself.

 

Waiting a month and a half to get confirmation of tests results does not seem right to me. If it was a diagnostic test perhaps, but we were doing nothing but confirm, I am not sure what I need to "discuss" with her, if it is not important.

kareng Grand Master

I had written a long text but I will keep it to : I disgaree.

 

The surgeon is NOT a G/I, I have no idea if he will have the results since the test was ordered by my family doctor and not the surgeon itself.

 

Waiting a month and a half to get confirmation of tests results does not seem right to me. If it was a diagnostic test perhaps, but we were doing nothing but confirm, I am not sure what I need to "discuss" with her, if it is not important.

 

 

I'm sorry. I missed something.  The "surgeon" wants to discuss your results 11 days after the procedure? It can take 3-10 days to get the pathology report back.  Not sure why a "surgeon" did an endo but maybe you are in a different country and that is how it works?  Usually, an endo is a diagnostic test used to "officially" diagnose Celiac Disease.

 

Was just trying to help you understand the process because medical procedures can seem silly sometimes.  But I don't feel like fighting with you, so good luck.  I hope eating gluten-free makes you feel better.

notme Experienced

my g.i. did my endoscopy - so i guess she is a g.i. surgeon?  i see you are in canada, so i don't know how that all works with the different doctors.  i got my results pretty quick, (she told me AND made sure she told my husband in case i didn't remember lolz)  and the office called with the pathology results so i requested copies of everything at that time.  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,171
    • Most Online (within 30 mins)
      7,748

    Kristy Roberts
    Newest Member
    Kristy Roberts
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.