Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Trying To Interpret My Boyfriend's Test Results, But I'm Not Sure If The Country I'm In Uses The Same Names For Tests. Please Help?


BelleVie

Recommended Posts

BelleVie Enthusiast

Hello again everyone. 

 

Since I met my boyfriend, he has had chronic dry skin/eczema (especially around his mouth and on his elbows and knees,) a rash on one of his knees that looks just like DH (he has had the rash forever, it comes and goes in cycles but never completely heals, but it only itches a little bit), really bad gas all the time, a bloated mid-section, and abnormal BMs. I don't think he realized that any of this was abnormal until we met, but now he's been very open to information concerning digestive issues/celiac/gluten. He also has a history of acid reflux and dental enamel defects. 

 

He had asthma as a child, extreme skinniness (until he was college age), and currently has tiredness, a geographic tongue, and a history of his body rejecting the Hep. B vaccine. 

 

I convinced him to have a celiac panel done, but I'm having trouble understanding it, because it uses terminology and test names that I'm unfamiliar with. 

 

Here is the panel we got back from the doctor:

 

 

Intrinsic factor Ab - negative

Parietal cell Ab - negative 

Tissue transglutaminase Ab - negative

ASCA - positive

Gliadin Ab - positive  

 

Is Gliadin Ab the old test used? I did read that the ASCA is normally a marker for Crohn's disease, but that it CAN signify celiac.

 

We tried to have his rash biopsied at an English speaking dermatologist but they told us they could not test for DH. 

 

Additionally, a full nutrition work up showed that he (at the time of that test) had low glucose, high creatinine, low chloride, high triglycerides, high HDL and calcium, low phosphorus, low GGTP, very high uric acid, and high albumin. He also has low WBCs, low SEGs, high monocytes, high eosinophigils, and low basophils.

 

Thank you to anyone who can help. Does anyone know if this sounds more like celiac or Crohn's? Is there a way to tell based on lab tests alone? We were, of course, recommended to get a biopsy done, but there isn't a doctor in the country who is familiar with doing celiac biopsies.  (We'd be willing to go to a nearby country, Japan for example, but even there it seems that there are no doctors who can do celiac biopsies.) 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Can you contact the lab directly for clarification?

BelleVie Enthusiast

Can you contact the lab directly for clarification?

Hm, maybe. But they speak Korean. And I do not.  :D

shadowicewolf Proficient

Hm, maybe. But they speak Korean. And I do not.  :D

Do you have a friend or someone who can interpret them?

BelleVie Enthusiast

That's a good idea. The doctor who did the test advised him that he has potential gluten sensitivity/celiac but that he should get a biopsy. I'm just trying to figure out the likelihood of this being celiac or something else. 

frieze Community Regular

if I remember correctly, most medical personnel in Korea will have at least a rudimentary proficiency in English.  Can you get the biopsy done and have the slides sent out?  Korea is not a backward country, it would amaze me that no one there could do the testing ....

BelleVie Enthusiast

if I remember correctly, most medical personnel in Korea will have at least a rudimentary proficiency in English.  Can you get the biopsy done and have the slides sent out?  Korea is not a backward country, it would amaze me that no one there could do the testing ....

I can check into it, but the doctor that I was seeing before is the head doctor at an English medical clinic in Seoul, and he told me that he had previously recommended another patient to have a biopsy done, but that the doctors in the local hospitals (the best ones in the country) basically said "no, we can't do that." I wonder how sending the slides out would work? That's certainly worth checking into. Thanks! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I can check into it, but the doctor that I was seeing before is the head doctor at an English medical clinic in Seoul, and he told me that he had previously recommended another patient to have a biopsy done, but that the doctors in the local hospitals (the best ones in the country) basically said "no, we can't do that." I wonder how sending the slides out would work? That's certainly worth checking into. Thanks!

I would contact the University of Chicago Celiac Center. They are known for their online communication and resources.

BelleVie Enthusiast

Thanks, pricklypear. I'll do that. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,117
    • Most Online (within 30 mins)
      7,748

    Mary Pack
    Newest Member
    Mary Pack
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.