Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Doctor, New Diagnosis? Rule Out Dh?

sisterlynr

By sisterlynr
in Dermatitis Herpetiformis

Recommended Posts

sisterlynr Explorer
sisterlynr
Posted

Here we go again! 

 

I stopped taking Dapsone on June 10th after an increase of rash.  Maybe I'm allergic to Dapsone?  Maybe this isn't DH? 

 

I was seen by a new doctor Friday.  First let me say he has diagnosed Celiac for many patients that had fallen through the cracks by their regular doctors.  He was knowledgeable of Celiac and DH but had never seen DH in person.  He did know how a biopsy should be next to a lesion and all that . . it was refreshing to know he had a handle on this condition.

 

I have posted about having Diabetes, how the rash had many forms, how I did not respond to Dapsone as I have new lesions, bubbly rash and in most cases, the skin clears fairly quickly when taking Dapsone..  I had some relief for a month but the rash never cleared and the symptoms only became manageable.  With all my past and present issues, he gave me a game plan.  Let's start from scratch (no pun intended) and see if we can solve the puzzle.  I'm good with that!  He tells me I have many, many symptoms of systemic Candida or Yeast.  I do not have the 'usual' problem that us ladies have with yeast.  Here is our game plan.

 

  • Started a daily dose of Diclufan for 14 days (the pharmacist sure was inquisitive)
  • Absolutely NO sugar, fruits, dried fruits, dairy, refined grains or peanuts
  • Eat high protein, low glycemic carbs only - organic chicken or organic beef
  • Garlic - one clove a day or 10 mg of allicin capsule
  • Take 200 mg of oil of oregano 2 x daily

If this a systemic yeast issue, I should feel pretty lousy by the 3rd day.  His explanation was the yeast would be dying and of course a reaction to no sugar.  By the end of 7 days I should be feeling much better.  I forgot to ask if the rash should start healing.  Sure hope it doesn't get worse.

 

The food list he gave me is pretty much what I follow for gluten-free so not a big deal for me.  One food that I can't have is peanuts or peanut butter.  Odd, been eating that with celery and apples all this time.  He told me to replace it with almond butter.

 

I like this doctor.  He did not say I didn't have Celiac DH but does want to work with me and I really appreciate his concern.  

 

BTW, check out skin yeast . . . a rash is a rash, is a rash.   :blink:   Golly, they all look so much alike.  Thanks for all my DH buddies on here. . . I cannot stomp my foot and say, "This is DH" and want to be open minded about the possibilities of other disorders.  I believe I've found the doctor to help!

 

 

 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

That's great news, that you've found a doctor to work with.

I had what they thought was a yeast rash on my chest after mastitis. I was on multiple rounds of diflucan to no resolution...rash went away immediately when my milk dried up (9 months).

Obviously, a hormonal element to it. I've wondered many times the rash was related to gluten.

I have had my dh flare during a virus, and one time tweaking my thyroid meds....so I wouldn't be surprised if my boob rash was linked to gluten/dh.

And I agree, most rashes look the same. No wonder derms shrug and toss you an rx of steroids...

sisterlynr Explorer
sisterlynr
Posted
  • Author

That's great news, that you've found a doctor to work with.

I had what they thought was a yeast rash on my chest after mastitis. I was on multiple rounds of diflucan to no resolution...rash went away immediately when my milk dried up (9 months).

Obviously, a hormonal element to it. I've wondered many times the rash was related to gluten.

I have had my dh flare during a virus, and one time tweaking my thyroid meds....so I wouldn't be surprised if my boob rash was linked to gluten/dh.

And I agree, most rashes look the same. No wonder derms shrug and toss you an rx of steroids...

 

I agree about the derms. . . I expect them to 'know it all'    :unsure:  beginning to think it is just trial and error.   Oddly enough, no one has given me a steroid, probably because of my high sugar levels.  I am really worried this evening.  I weighed and have lost another 4 lbs during this past week.  That is not normal for me.  In 2008 I dropped lbs like this and it was the NH Lymphoma.  I have lab orders from my PCP and Oncologist set for Aug and Sept. I had tried to calm myself and wait but with this happening, think I'll have the labs on Monday and then call them and set an appointment.   :unsure:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      47

      My journey is it gluten or fiber?

      Try adding some Thiamine Hydrochloride (thiamine HCl) and see if there's any difference. Thiamine HCl uses special thiamine transporters to get inside cells. I take it myself. Tryptophan will help heal the intestines. Tryptophan is that amino acid in turkey that makes you sleepy after Thanksgiving dinner. I take mine with magnesium before bedtime...
    2. Known1
      - Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      12

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I live in the upper mid-west and was just diagnosed with marsh 3c celiac less than a month ago. As a 51 year old male, I now take a couple of different gluten free vitamins. I have not noticed any reaction to either of these items. Both were purchased from Amazon. 1. Nature Made Multivitamin For Him with No Iron 2. Gade Nutrition Organic Quercetin...
    3. SilkieFairy
      - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir.
    4. Scott Adams
      0

      Celiac Disease Beyond the Western World: Hidden Populations, Changing Diets, and Growing Awareness

    5. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,361
    • Most Online (within 30 mins)
      7,748
    Xpedit73
    Newest Member
    Xpedit73
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Try adding some Thiamine Hydrochloride (thiamine HCl) and see if there's any difference.  Thiamine HCl uses special thiamine transporters to get inside cells.  I take it myself.   Tryptophan will help heal the intestines.  Tryptophan is that amino acid in turkey that makes you sleepy after Thanksgiving dinner.  I take mine with magnesium before bedtime.
    • Known1
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Known1 · Posted

      I live in the upper mid-west and was just diagnosed with marsh 3c celiac less than a month ago.  As a 51 year old male, I now take a couple of different gluten free vitamins.  I have not noticed any reaction to either of these items.  Both were purchased from Amazon. 1.  Nature Made Multivitamin For Him with No Iron 2.  Gade Nutrition Organic Quercetin with Bromelain Vitamin C and Zinc Between those two, I am ingesting 2000 IU of vitamin D per day. Best of luck, Known1
    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.