Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Soon - Hooray!


greenbeanie

Recommended Posts

greenbeanie Enthusiast

I had a long-awaited appointment with a GI today, and she was superb. She actually seemed to think she'd have to convince me that I needed an endoscopy urgently, whereas I was expecting that I'd need to convince her not to dismiss my concerns about celiac because of the negative blood tests. She clearly didn't expect me to be as thrilled as I was to have her schedule an endoscopy! I suppose it's not often that they get a patient who is so happy to be told they're having an unpleasant medical test.

 

The funniest thing was that I presented her with a long list of symptoms, but before we even talked about it she lifted up my shirt to listen to my belly and asked about the rash on my torso. I asked her what rash - there's no apparent rash on my torso at the moment! The skin was just very slightly mottled. Now, I've had horrible, oozing, immensely itchy rashes on various parts of my body for the last 30 years, and numerous doctors told me it was just from stress. The current mottling on my torso is nothing compared to how bad the rash often gets. But seeing this minor rash alone was enough to convince her that we need to get the endoscopy done quickly so I can go gluten-free for good! Go figure. And she strongly supports me going gluten-free immediately after the endoscopy and never, ever eating gluten again, regardless of what the tests show. Finally, at LONG last, I feel like I have a competent doctor who knows what she's talking about. It was reassuring, too, that she was adamant about the need to look around in there for other problems, either in addition to or instead of celiac. One way or another, the wait for a diagnosis is almost over. 

 

Endoscopy in four days!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

YEAH!  That doctor sounds like a gem!  :) I hope your procedure goes perfectly.

 

Enjoy a last donut for me.  ;)

1desperateladysaved Proficient

I am so happy for you, and hope your results will be definitive.

 

D

w8in4dave Community Regular

Wow!! That is absolutely wonderful!! I love to hear these stories!! Absolutely!! Now this Makes me want to start back on Gluten so I can have that test!! No more stressed about that huh?

pebbles12 Newbie

Fabulous!  Is there enough of your doctor to go around?!  Here's to a smooth procedure and road to recovery :P

GottaSki Mentor

I had a long-awaited appointment with a GI today, and she was superb. She actually seemed to think she'd have to convince me that I needed an endoscopy urgently, whereas I was expecting that I'd need to convince her not to dismiss my concerns about celiac because of the negative blood tests. She clearly didn't expect me to be as thrilled as I was to have her schedule an endoscopy! I suppose it's not often that they get a patient who is so happy to be told they're having an unpleasant medical test.

 

The funniest thing was that I presented her with a long list of symptoms, but before we even talked about it she lifted up my shirt to listen to my belly and asked about the rash on my torso. I asked her what rash - there's no apparent rash on my torso at the moment! The skin was just very slightly mottled. Now, I've had horrible, oozing, immensely itchy rashes on various parts of my body for the last 30 years, and numerous doctors told me it was just from stress. The current mottling on my torso is nothing compared to how bad the rash often gets. But seeing this minor rash alone was enough to convince her that we need to get the endoscopy done quickly so I can go gluten-free for good! Go figure. And she strongly supports me going gluten-free immediately after the endoscopy and never, ever eating gluten again, regardless of what the tests show. Finally, at LONG last, I feel like I have a competent doctor who knows what she's talking about. It was reassuring, too, that she was adamant about the need to look around in there for other problems, either in addition to or instead of celiac. One way or another, the wait for a diagnosis is almost over. 

 

Endoscopy in four days!

 

Thank you for sharing -- wonderful to hear these stories -- sad that they remain the exception rather than the rule -- but thankful none the less that things are beginning to change :)

 

Glad you will have the endo behind you soon and be able to begin living gluten-free :D

EmiPark210 Contributor

I remember the countdown to my endo... gosh those were the longest days ever. I'm glad to hear you had such a positive experience with your doctor. :) 

 

It really isn't that unpleasant of a test; I don't remember a thing. And then you just get to sleep a lot.

 

Keep us updated with how recovery goes!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BelleVie Enthusiast

Wow GB, that's great. I'm very happy for you. Doctors who care really make me smile. :) 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.