Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need A Gluten Free Hug!


mamatrois

Recommended Posts

mamatrois Rookie

Somehow, somewhere, I cc'd myself or something this past weekend.

My home is gluten free, my kids are gluten free, even my dog is gluten free. I bought myself a mini BBQ so I can enjoy hanging out with friends and family, which I used, and loved. I nearly- neurotically prepared everything from scratch for our outings this weekend, in my gluten-free kitchen, brought my own utensils everywhere, you name it, I think I covered it!

Obviously I missed something, and I know these things are bound to happen, but the sense of defeat after all the extra effort feels pretty epic tonight! I don't love whining, but getting glutened sucks!

-rant complete- ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fire Fairy Enthusiast

I need a gluten-free hug for a different reason but I totally sympathize with yours.  (((((HUGS)))))

notme Experienced

(((((((HUG))))))))  poor baby!  everything's gonna be ok..

 

my first camping trip i agonized and sterilized and brought everything but the kitchen sink!  still got glutened.

 

my first trip to my old home town in nj - we agonized and sterilized and on the last day, my husband says 'why are you rubbing your head?  do you have a headache?  - yup, got glutened - i even figured it out that i did it to myself (chose the wrong pan to broil shrimp - one of those ceramic coated broiler pans at my bff's house.  rookie mistake!!)  good thing we were going home the next day.  i popped half a xanax and mercifully slept for the 12 hour ride.  

 

feel better - you are not alone!  ((((((extra hugs))))))

GottaSki Mentor

(((((Hug)))))) for MamaTrois!

 

(((((Hug)))))) for FireFairy!

 

along with a (((((Hug)))))) for NotMe!

 

and a spare for anyone that hops in ((((((HUG)))))))

 

boy I feel so much better after all those

 

Happy Almost 4th of July :)

mamatrois Rookie

Thanks for the love, everyone! :)

((((((HUGS)))))) to you all as well!!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,204
    • Most Online (within 30 mins)
      7,748

    JaymeC
    Newest Member
    JaymeC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.