Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iron Deficiancy Anemia


Adalaide

Recommended Posts

Pegleg84 Collaborator

hope the infusions work out for you

And if its what you can eat, eat all the cow you need. So lucky you can still eat dairy (jealous)

 

feel better soon! Hope it all sorts out and you can figure out what else is wrong.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

Made it home from the infusion all intact and survived it fine. (Except for the part where someone almost died in my book and I cried like a baby right when the nurse walked in. :ph34r:) I got a bit of a headache from it, but nothing I won't survive with a little afternoon nap. It is incredible to feel like I could eat something without vomiting.

 

Organizing my bookshelves again is tomorrow's to-do list. I'm not doing any bending/stooping with a headache, plus I'm keeping the noise to a minimum today. The hubs is still recovering from whatever had him so terribly ill yesterday and I want to let him just sleep. Somewhere in that mess I'll find my medical records and thyroid tests.

Adalaide Mentor

So, that cleaning at my leisure got kicked into high gear. My dad who lives 2000 miles away is 2 states away! I don't know that he is coming to visit but I have to think that he may, he is retired with all sorts of time on his hands and nothing better to do than ramble about, and being that close makes me think he may just pop in. GAH!!! I better get this place in ship shape!

 

So my records... that dips$#& doctor only ran one thyroid test. I found results from 1/15/13 and 4/1/11.

 

4/1/11: Thyroid Stimulating Hormone     2.33 uIU/mL     0.45-4.67 uIU/ML

1/15/13: Thyroid Stimulating Hormone   1.86 uIU/mL     same range

 

They both say under them "this is a 3rd generation TSH assay"

 

The moron didn't listen to a word out of my mouth about the whole it could be an autoimmune problem in which the numbers will be fine on the standard test so you need to test this and this and this and I gave him a freaking list of what to test for. I was at a point where I was so frustrated and upset with other things that I may have overlooked that when I saw the results myself. I was only a few short months away from firing him. (Which resulted in a very brief dalliance with an even more dips$#&ty doctor.)  I guess when I see the doctor on Thursday I will ask to have my thyroid actually tested. Sure, it is still in the "safe" range. But it also looks a whole lot like it could be a slowly tanking thyroid and if I can get a non-retarded doctor to do something now I could maybe stop it before it gives up on me entirely.

 

Have I ever mentioned how much I hate doctors? (Mostly I suppose I should be mad at myself for not double checking but omg I gave him a list! How much more can I do to advocate for myself. I explained why as a celiac I needed these specific tests blah blah blah.)

 

ETA: I realize tanking isn't the right word. IDK what word to use but if my numbers just keep going down and down my thyroid is doing something wonky. Or maybe it is normal fluctuation. Still, not happy with not having the right tests done.

BZBee Apprentice

For borderline low iron take prenatal vitamins, gluten free of course. I take brain strong.

Adalaide Mentor

As a quick update, for anyone who hasn't read through every post. I am no longer taking iron pills. I began iron infusions yesterday after speaking with my insurance people on the phone and being told it is an approved treatment. I got a call yesterday afternoon and I guess there may be some confusion on that, but as far as I can tell the hospital isn't going to deny me the treatments. Come hell or high water, I'm not taking pills again. I'll sort out the financial crap I guess, but I won't go back to pills.

frieze Community Regular

So, that cleaning at my leisure got kicked into high gear. My dad who lives 2000 miles away is 2 states away! I don't know that he is coming to visit but I have to think that he may, he is retired with all sorts of time on his hands and nothing better to do than ramble about, and being that close makes me think he may just pop in. GAH!!! I better get this place in ship shape!

 

So my records... that dips$#& doctor only ran one thyroid test. I found results from 1/15/13 and 4/1/11.

 

4/1/11: Thyroid Stimulating Hormone     2.33 uIU/mL     0.45-4.67 uIU/ML

1/15/13: Thyroid Stimulating Hormone   1.86 uIU/mL     same range

 

They both say under them "this is a 3rd generation TSH assay"

 

The moron didn't listen to a word out of my mouth about the whole it could be an autoimmune problem in which the numbers will be fine on the standard test so you need to test this and this and this and I gave him a freaking list of what to test for. I was at a point where I was so frustrated and upset with other things that I may have overlooked that when I saw the results myself. I was only a few short months away from firing him. (Which resulted in a very brief dalliance with an even more dips$#&ty doctor.)  I guess when I see the doctor on Thursday I will ask to have my thyroid actually tested. Sure, it is still in the "safe" range. But it also looks a whole lot like it could be a slowly tanking thyroid and if I can get a non-retarded doctor to do something now I could maybe stop it before it gives up on me entirely.

 

Have I ever mentioned how much I hate doctors? (Mostly I suppose I should be mad at myself for not double checking but omg I gave him a list! How much more can I do to advocate for myself. I explained why as a celiac I needed these specific tests blah blah blah.)

 

ETA: I realize tanking isn't the right word. IDK what word to use but if my numbers just keep going down and down my thyroid is doing something wonky. Or maybe it is normal fluctuation. Still, not happy with not having the right tests done.

Addy, the second # is better than the first...but getting the new doc to do the whole lot would be good!

pricklypear1971 Community Regular

After dealing with thyroid for 7+ years I've decided tsh means jack crap. At least for me. If its high, it's just easier to get docs to pay attention - so it's convenient. The meat and potatoes are in the free hormone tests and antibodies.

So, get antibody panels and free t3/t4 and rt3, and take it from there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

After dealing with thyroid for 7+ years I've decided tsh means jack crap. At least for me. If its high, it's just easier to get docs to pay attention - so it's convenient. The meat and potatoes are in the free hormone tests and antibodies.

So, get antibody panels and free t3/t4 and rt3, and take it from there.

 

Those are what I explained to my doctor I needed done. I explained exactly why I needed them done...blah blah blah. At least my new doctor isn't a moron. Hopefully on Thursday I can go play with the vampires again and see what the tests say.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,007
    • Most Online (within 30 mins)
      7,748

    Steven S
    Newest Member
    Steven S
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I think your question needs clarification. Are you asking who gets sick from consuming some of these prolamins are all of them? Everyone in the celiac/gluten sensitive community will get sick from consuming gliadin, hordein and secalin. Some will also get sick from consuming avenin. Apparently, some don't do well with any of them.
    • Bebygirl01
      Prolamins are a type of protein found in cereal grains. Different cereal grains contain different types of prolamins, which are named based on the grain they originate from.  Here's a breakdown by grain:  Wheat: The prolamin is called gliadin. Barley: The prolamin is called hordein. Rye: The prolamin is called secalin. Corn: The prolamin is called zein. Oats: The prolamin is called avenin. Rice: The prolamin is called oryzenin. Sorghum: The prolamin is called kafirin. Prolamins are a major component of cereal storage proteins and are known for their high proline and glutamine content and can get celiacs and non-celiac gluten sensitive individuals sick.
    • DebJ14
      Our son was put on Minocycline for his acne.  It did not solve the acne problem.  He developed drug induced lupus and pericarditis from it and missed an entire year of high school.  He literally went from playing football to bedridden in a couple of weeks.  His PCP tested him for genetic antibiotic resistance and he cannot take any drug in the Tetracycline family.  His gut microbiome was totally destroyed.  In fact he had a stool test done and had no good bacteria, whatsoever.   What did fix his (and his brother's acne) years after the Minocycline debacle was when I was diagnosed with Celiac disease and the kids were tested.  They were both put on a Gluten Free/ Caesin Free diet and within a week both kids were totally free of acne.  The family has now been on the diet 18 years and no acne, except for a teenage grandson who will not adhere.  The big clue that he is eating gluten is that his face breaks out!
    • wellthatsfun
      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
×
×
  • Create New...