Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Possibly Have Celiac's Disease?

Mezzanin

Recommended Posts

Mezzanin Newbie
Mezzanin
Posted

Hi,

I know nobody here are doctors but any advice would be greatly appreciated.

I gave up smoking in January 2013 and shortly after developed what seemed like a urine infection. After five negative tests, I came to believe I had Interstitial Cystiss. My symtoms are frequent urination, slight burning feeling before and after peeing.

Noticed I had a white tongue (which for five months I was told was not Candida) but tested last week as positive for it.

Sleep problems now lasting five months (constant) can fall asleep ok but wake after 4 hours and then can only sleep another hour. I often wake up sweating and seem quite red in the face.

Urgent bowel movements upon waking. Not quite diarrhoea but very loose. 

I have noticed that if I eat bread my stools are more frequent. If I don't for a few days then I still have an urgent need to go in the morning but it is not so loose (sorry for the TMI).

Also need to go more often in the day if I eat bread.

Feel fatigued but this could be lack of sleep.

Also get a burning sensation in my hands and feet.

I never had any problems until I was 44 and gave up smoking.

My vitamin D levels are fine

Not peri menopausal

Thyroid is fine

B12 is good

Been seen by a neurologist and rheumatologist

Does this seem like gluten intolerence to anyone.

The sleep issues are really getting to me

Oh and I have been suffering from anxiety too

 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

It sounds like you should be tested for celiac.  You wouldn't want to continue with these discomforts if you didn't have to.  I hope you will get some definitive answers about the root of your problems that can be managed!

 

Get well  ***

D

w8in4dave Community Regular
w8in4dave
Posted

I have a white tongue also lol well it comes and goes ! I was Dx'd with Celiac , I will see the Doc about white tongue :) I'd look into getting tested for Celiac if I were you!

Loey Rising Star
Loey
Posted

A white tongue usually means you have candida (yeast). Probiotics and yogurt might help with that. I've found that everyone on our Forum has additional medical problems. My naturopath says mine all seem to be connective tissue disorders on top of the celiac. Feel free to PM me any time. 

w8in4dave Community Regular
w8in4dave
Posted

A white tongue usually means you have candida (yeast). Probiotics and yogurt might help with that. I've found that everyone on our Forum has additional medical problems. My naturopath says mine all seem to be connective tissue disorders on top of the celiac. Feel free to PM me any time. 

So I have heard, thats why I am going togo to the Dr. When I get back from Vaca :)

Loey Rising Star
Loey
Posted

Enjoy your vacation!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,654
    • Most Online (within 30 mins)
      7,748
    Uli
    Newest Member
    Uli
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Medication

      By trents · Posted

      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      Medication

      By knitty kitty · Posted

      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      Medication

      By Julie 911 · Posted

      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Medication

      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.