Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy And Colonoscopy Tomorrow

Scarletgrrrl

Recommended Posts

Scarletgrrrl Rookie
Scarletgrrrl
Posted

Hi

I have my endoscopy and colonoscopy tomorrow. I strongly suspect I have celiac disease but I have had 2 blood tests. I hadn't been consuming gluten 12 weeks prior to either test. They didn't do the full celiac blood panel. I took the list into the doctor last time (my usual doctor was away) and he just looked at me and had no idea.

I went off gluten in march for 8 weeks and started to feel good by the end of it only to have to reintroduce it for this procedure tomorrow. I have been on gluten for most of the last 7 weeks. I had to stop for just over a week as I was on holiday in New Zealand. I still had to go to a doctor there: I had an ear infection and a  bad lung infection (all courtesy of gluten). I needed antibiotics. Every since I reintroduced gluten I have had respiratory problems with a nose constantly full of green snot. I haven't even been having much gluten every day. I am just so sensitive now. On saturday with the tests coming up, I had a bit more (a piece of bread, small piece of cake and some pasta), the next day I couldn't move. I had to lie in bed all day in pain.

I have to wait 4 weeks for my follow up visit. Will the gastro. give me any indication of what he sees on the day or will I just have to wait?

I really miss food. This day of liquids isn't easy. I am enjoying my broth though. :)

Scarletgrrrl

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

Hi Scarlettgrrl,

 

Occasionally a doctor will see damage and verify a suspicion of celiac right away, but villi damage is looked for by microscope later if I got that right.  I just want to say that I hope you will get definitive results.  As soon as testing is finished you can go gluten free!  No more challenges for you, I hope.

 

Get well Soon,  ***

D

Scarletgrrrl Rookie
Scarletgrrrl
Posted
  • Author

Thanks D

I was first in to have the procedure. There was no damage visible to the naked eye, so I will have to wait 4 weeks for the biopsy results. Bummer I couldn't have an earlier appt but the doctor just got back from holidays.

When I finished the procedure, they made me a coffee and then gave me a cheese sandwich and some biscuits. All gluten! I was so hungry but not tempted to eat them. The gluten challenge has done enough damage for me to heal. A lady came past later and went to see if they had any gluten free ones and then found me a yoghurt.

S

nvsmom Community Regular
nvsmom
Posted

A biscuit... LOL :rolleyes:

 

I'm glad it went well. I hope your results come in early.

Scarletgrrrl Rookie
Scarletgrrrl
Posted
  • Author

A biscuit... LOL :rolleyes:

 

I'm glad it went well. I hope your results come in early.

 Thanks Nicole :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,951
    • Most Online (within 30 mins)
      7,748
    Insanity Clause
    Newest Member
    Insanity Clause
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Thanks for your reply. She has been given a date for her endoscopy, 28th of this month, so hopefully she’ll know for sure if she definitely has coeliac. Needless to say she’s dreading it!!!!
    • Russ H
      Blood results

      By Russ H · Posted

      That is more than 10x the standard range, so a strong positive. In the UK for children and adults under the age of 55, at least 10x the standard range is sufficient to be diagnosed without having an endoscopy. The NICE guidelines are are different for children in that a referral to a gastroenterologist is also recommended for diagnosis. https://www.coeliac.org.uk/healthcare-professionals/diagnosis/how-to-test/ https://www.coeliac.org.uk/healthcare-professionals/diagnosis/diagnosis-in-children/  
    • knitty kitty
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By knitty kitty · Posted

      Welcome, @annamarie6655, I followed the AIP diet, too.  It allows the intestines time to heal.  I still avoid a lot of processed foods.  Once you get used to eating whole foods, they taste better than processed foods. I couldn't eat pepperoni without becoming ill.  Pepperoni is a processed meat that uses "meat glue" to hold its shape.  "Meat glue" is microbial transglutaminase produced by microbes in a lab.  Transglutaminase produced by microbes works the same in our bodies as tissue transglutaminase, which causes inflammation.  Remember those antibody blood tests, tTg IgA and tTg IgG?  They test for tissue transglutaminase produced by the body in response to gluten.  The microbial transglutaminase provokes the same response in our bodies as if exposed to gluten.  Best to avoid processed meat products like formed chicken nuggets, luncheon meats, formed hams, sausage, etc.   Best wishes.
    • knitty kitty
      How to work through food paranoia

      By knitty kitty · Posted

      Welcome to the tribe! Do discuss the Autoimmune Protocol Diet (Dr. Sarah Ballantyne) with your dietician.  The AIP diet helps while the intestines are healing, lowering potential to develop other food sensitivities.  Be sure to discuss supplementing with vitamins and minerals.  Damaged intestines don't absorb essential nutrients well.  Supplementing while healing boosts absorption and provides vitamins needed for repair.  
    • MegRCxx
      How to work through food paranoia

      By MegRCxx · Posted

      Update: Biopsy results in, i have coeliac disease and awaiting advice with the dietitian. Thank you everyone for your help.
×
×
  • Create New...