Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy And Colonoscopy Tomorrow


Scarletgrrrl

Recommended Posts

Scarletgrrrl Rookie

Hi

I have my endoscopy and colonoscopy tomorrow. I strongly suspect I have celiac disease but I have had 2 blood tests. I hadn't been consuming gluten 12 weeks prior to either test. They didn't do the full celiac blood panel. I took the list into the doctor last time (my usual doctor was away) and he just looked at me and had no idea.

I went off gluten in march for 8 weeks and started to feel good by the end of it only to have to reintroduce it for this procedure tomorrow. I have been on gluten for most of the last 7 weeks. I had to stop for just over a week as I was on holiday in New Zealand. I still had to go to a doctor there: I had an ear infection and a  bad lung infection (all courtesy of gluten). I needed antibiotics. Every since I reintroduced gluten I have had respiratory problems with a nose constantly full of green snot. I haven't even been having much gluten every day. I am just so sensitive now. On saturday with the tests coming up, I had a bit more (a piece of bread, small piece of cake and some pasta), the next day I couldn't move. I had to lie in bed all day in pain.

I have to wait 4 weeks for my follow up visit. Will the gastro. give me any indication of what he sees on the day or will I just have to wait?

I really miss food. This day of liquids isn't easy. I am enjoying my broth though. :)

Scarletgrrrl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

Hi Scarlettgrrl,

 

Occasionally a doctor will see damage and verify a suspicion of celiac right away, but villi damage is looked for by microscope later if I got that right.  I just want to say that I hope you will get definitive results.  As soon as testing is finished you can go gluten free!  No more challenges for you, I hope.

 

Get well Soon,  ***

D

Scarletgrrrl Rookie

Thanks D

I was first in to have the procedure. There was no damage visible to the naked eye, so I will have to wait 4 weeks for the biopsy results. Bummer I couldn't have an earlier appt but the doctor just got back from holidays.

When I finished the procedure, they made me a coffee and then gave me a cheese sandwich and some biscuits. All gluten! I was so hungry but not tempted to eat them. The gluten challenge has done enough damage for me to heal. A lady came past later and went to see if they had any gluten free ones and then found me a yoghurt.

S

nvsmom Community Regular

A biscuit... LOL :rolleyes:

 

I'm glad it went well. I hope your results come in early.

Scarletgrrrl Rookie

A biscuit... LOL :rolleyes:

 

I'm glad it went well. I hope your results come in early.

 Thanks Nicole :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,495
    • Most Online (within 30 mins)
      7,748

    CrazyCatLady
    Newest Member
    CrazyCatLady
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.