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Anyone Remember...

AmandaD

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AmandaD Community Regular
AmandaD
Posted

Hi - Anyone else here on this board remember (if they had the tissue transglutaminase test done to diagnose them) what their TTG number or level was?

Just curious...

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Rachel--24 Collaborator
Rachel--24
Posted

Mine was a stool test...not blood. I'm not really sure what the difference is but here's my results.

Fecal Antitissue Transglutaminase IgA 15 Units (Normal Range <10 Units)

BTW....I was not consuming gluten for 4 months prior to my test but was still glutened from supplements, etc. Does anyone know if after 4 months this number would have come down? Is it likely it was higher when I was eating gluten everyday?

If I'm totally gluten-free should this number go down to zero eventually?

Canadian Karen Community Regular
Canadian Karen
Posted

When diagnosed, over 100.

Last month, bloodwork showed 13.

Karen

Matilda Enthusiast
Matilda
Posted

..

KaitiUSA Enthusiast
KaitiUSA
Posted

I believe mine was almost 3 times what it should have been.

nikki-uk Enthusiast
nikki-uk
Posted

My husbands was 12 for the tTg which was negative .

Positive biopsy though. :huh:

My son had the test a couple of months ago and scored a 10(neg again)but surely if there's 'no coeliac' it should read zero??(Have asked for a referal for gastro doc as symptoms continue)

Wondered if other celiac disease'ers antibodies ever go to zero?

nikki-uk Enthusiast
nikki-uk
Posted

Sorry,just read your post Rachel,I've just asked the same question?Brain running a bit slow tonight.... :blink:

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Rachel--24 Collaborator
Rachel--24
Posted
Sorry,just read your post Rachel,I've just asked the same question?Brain running a bit slow tonight.... :blink:

<{POST_SNAPBACK}>

Thats OK...ask away cuz I never got an answer to that question.

nikki-uk Enthusiast
nikki-uk
Posted

Just like to say Rachel you look so much better!(hope you don't mind me saying!)

AmandaD Community Regular
AmandaD
Posted
  • Author

Odd - my number was 10.5 and then a positive biopsy as well. Don't get it...

I don't know about the antibodies ever going to zero but my doc did say they should go into a negative zone which was about 1 to 7...

My husbands was 12 for the tTg which was negative .

Positive biopsy though. :huh:

My son had the test a couple of months ago and scored a 10(neg again)but surely if there's 'no coeliac' it should read zero??(Have asked for a referal for gastro doc as symptoms continue)

Wondered if other celiac disease'ers antibodies ever go to zero?

<{POST_SNAPBACK}>

Rachel--24 Collaborator
Rachel--24
Posted
Just like to say Rachel you look so much better!(hope you don't mind me saying!)

<{POST_SNAPBACK}>

Thanks...I feel alot better too. :D

PicturePerfect Explorer
PicturePerfect
Posted

I had about 4 times more than I should have had, if I remember correctly. Then with the endoscopy, the doctor could not tell just by my intestines if I had Celiac or not.. they had to take a sample. :huh:

celiac3270 Collaborator
celiac3270
Posted

I don't remember my numbers-- but to answer one question: it would never go to zero. You can be perfectly healthy, perfectly non-celiac with no gene or anything, and still have a tTG of say... 6.

Rachel--24 Collaborator
Rachel--24
Posted
You can be perfectly healthy, perfectly non-celiac with no gene or anything, and still have a tTG of say... 6.

<{POST_SNAPBACK}>

Why is that? :huh:

SueC Explorer
SueC
Posted

Mine was 187. 3 months gluten-free it was 25. I just did my 6 month testing but haven't got result back yet. I am hoping it will be in the norml range.

julie5914 Contributor
julie5914
Posted

I didn't have it run before going gluten-free - I only had the EMA. But I am 4 months gluten-free and my ttg was 20 (not sure what the range was, but that was a blood sample). They just told me over the phone to be more diligent about keeping gluten out. Rachel, I am not sure if my number was still 20 just because I am still getting out of my body or if it was because I am still getting it somehow.

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