Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Two Weeks In - Crying My Eyes Out!


MxMyownsummer

Recommended Posts

MxMyownsummer Newbie

Do you remember?  Think back to the beginning of your diagnosis.  Think back to when you started changing everything, the constant mistakes, the accidental exposure, the feeling great and then feeling like crap again.  The constant headache from gluten withdrawal.  All of it is totally normal, totally expected.

 

And then, then.. then you start to cry.  

 

Did anybody go there, or am I alone?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

It is tough.  I think I would have done more crying, if I could of.  Depression is a sad sign of the things you are going through.  Realize that it isn't forever and you can keep going.

 

I had someone to carry me, and I am better,

 

D

Lisa Mentor

Please remember that everything you eat, even though it's gluten free, will run through your body, until you heal.  When the gluten is removed, your intestines will heal. It takes time and dedication to heal.

 

Keep in mind that the goal is to be healthy and feel good.  And every step is working toward that. There are slow steps and we all make mistakes, because it's hard to learn everything all at once.  I had many meltdowns in the frozen asile.  I cried and then I got mad. 

 

I then decided, that if I wanted to regain my life, I had to learn everything I could about Celiac Disease.

 

I hung out here for  a while.  I learned a lot. Eight years later, I 'm still here, through many ups and downs.  There were some really cool people who held my hand as I recovered.

 

I live a very full, normal life.  It's within your reach. :)

pricklypear1971 Community Regular

Do you remember? Think back to the beginning of your diagnosis. Think back to when you started changing everything, the constant mistakes, the accidental exposure, the feeling great and then feeling like crap again. The constant headache from gluten withdrawal. All of it is totally normal, totally expected.

And then, then.. then you start to cry.

Did anybody go there, or am I alone?

No, we've all been there. And we all still make mistakes, years into it. And sometimes, despite doing everything right...gluten still finds you. That's life.

But getting better, and occasionally ill, beats the heck outta being sick 24/7. IMO, anyway.

Marilyn R Community Regular

Do you remember?  Think back to the beginning of your diagnosis.  Think back to when you started changing everything, the constant mistakes, the accidental exposure, the feeling great and then feeling like crap again.  The constant headache from gluten withdrawal.  All of it is totally normal, totally expected.

 

And then, then.. then you start to cry.  

 

Did anybody go there, or am I alone?

Hi MxMy,

 

No....no...no...you aren't alone.  I was really depressed about it, then really angry (what DID I do to  deserve this), and gradually worked it all out.   Going to the grocery store was really hard at first.  I'd end up in tears before I could check out because of shopping cart envy.  Now I look in the carts and think "Those poor sods." 

 

Remember, you still get to eat really good food, better than most people do.  You just have to cook and plan more.  Wish you well.

ravenwoodglass Mentor

No your not alone. I was so very sick when diagnosed I couldn't imagine how I was ever going to have the energy to cook every meal. Shopping was a long and frustrating task. My DD even refused to shop with me for a while after I burst into tears in the grocery store. I made so many mistakes at first, in part because I didn't know I couldn't tolerate soy and in part because I didn't have the wealth of info and support that I found here a couple years later. The withdrawl is tough but for me one day it was like a huge and heavy blanket was suddenly lifted off me. I think that took about 2 to 3 weeks. It was easier after that withdrawl was done.

You will get through it but it is hard to be patient with your body. After diagnosis we all want to instantly be well but it does take time to heal. You will get there.

VeggieGal Contributor

Oh do I remember !! Shopping in the supermarkets reading labels and saying pffft pffft pffft as I moodily felt like slamming the items back on the shelf :(

I like lots of others had no energy at first to cook or think clearly, I went through mild depression (which was probably the gluten and withdrawal).

It felt like Id never feel right...but finally 7 months later (touchwood!) I have much better days than pre-diagnosis. Im happy I can do something about my health as if it wasnt for diagnosis, I wouldnt be eating and trying new healthy things and learning about nutrition or have realised other intolerances/allergies.

It does get better .. you'll be fine :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nikki2777 Community Regular

Oh yes, breaking into tears outside of Chipotle when I realized they weren't taking any precautions and I couldn't trust to eat safely there (my local one, I started a thread).  And then again when my mom said I was over-reacting, and don't let this be such a big deal (after I broke down, she did some research on her own and realized that this was serious stuff, not a hangnail).

 

What really helped me was knowing that I needed to appear strong for my kids, so that if they ever got this, they wouldn't fall apart.  And once I started finding snack foods that were really (really!) tasty and figuring out what I could and couldn't order at restaurants (and how to ask for it), it started getting better.  Now - 4 5 months in -- it rarely gets me down.

 

Good luck.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748

    Chels22
    Newest Member
    Chels22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...